Todd, I check in very occasionally to see if any of my old buddies are still posting updates and to see if any of the guys with new Dx get on here when I highly and enthusiastically recommend this...
Did the ability to have our email available members disappear with the new format. I have made many "forum friends" through email. I would hate to see that function go away....
I had neuropathy from carpal tunnel prior to surgery. A friend suggested a cannabis salve, which I tried (with no real expectation of relief). But surprisingly it helped when nothing else did....
Hi Doggie, I am thrilled to hear you are getting a good response! I did so well on Humira that I was really bummed that it ran its course and quit working after about seven years. That's why I quit...
This was a very good thread and good information. I was taking a turmeric capsule daily with absolutely no change in inflammation, even though I kept hearing about it's benefits. No wonder though, I...
When I was on Humira, I was able to get off methotrexate completely. Now I'm on Enbril and back on it. The doc says it is better than prednisone, but I wish I could go off again. I hope you are able...
Hi Doggie and welcome to the HW forum! How do you feel after the injection. I have been on two biologics, Humira and Enbril. Humira worked the best, but eventually quit after about 7 or 8 years. Both...
Hi Dingie, Welcome to the HW forum. I'm sorry that your active lifestyle had to end this way. Plaquenil, methotrexate and prednisone are the standard first course of treatment for RA. If it's not...
Hello and welcome B&R! Now go hug the member who sent you here. Because this is the place to get the most current and best information about PCa and compassionate support from all the members. You...
Pretending I'm in the audience of a Johnny Carson show: HOW TALL IS HE??[/quote] Tall enough to rise above any negativity or impunity and hang in as the most respected and referred to advisor (as...
Hi SMO, My DH had one round of xofigo. The side effects weren't too awful in his case, and the reduction in pain and mets was significant. I don't know if anything has changed, but we were told this...
Hola J J and GG. I hope you had a wonderful time hiking and sightseeing! I wondered if you had returned from your trip. Are you both in amazing shape after running about in the hills?👍...
Hey Kathy, I was in a similar situation as an educator. Do you have a summer break? I took off the last few weeks of school to be with Gary. I should have taken off sooner because I did not expect...
Hi smurfine, I documented my husband's end of life journey from advanced PCa in a thread called "end of life journey". It sounds like your dad is right about where my DH was in cancer progression...
Hi Kathy, I well remember the " out of breath " experience with my DH. It scared him when he felt like he couldn't breathe. After a trip to the ER, we were doing breathing treatments and rescue...
Hi Dennie, As few have specifically answered your question about what to say to your wife, I would like to offer a suggestion:knowledge is power. She will be your greatest advocate, but you are way...
Hi Kathy, I am really happy to hear that you are going to chat with another oncologist. Especially after the stairs incident. That wouldn't happen here because they would be sued. I have a question...
Hi Kathy, Don't worry that you are getting on nerves. Everyone posting on this thread is here to provide you support. You certainly have a lot going on right now and the need to understand what's...
Hi Kathy, Have you talked to your Dad about other possible treatment options? In my opinion, if he feels strong enough and wants to try, your next step would be to ask for a copy of his blood panels....
Kathy, Thank you for reading my thread and sharing your thoughts. And thank you also to whoever sent Kathy to this thread. My biggest hope was that this thread would provide some insight and comfort...
Hello again Kathy, I re-read your posts on this thread and, admittedly, I have been out of the loop on previous threads, but there seems to be a disconnect between what you say your Dad wants to...
Hey Kathy, If you click on the colored envelope below my screen name, you will access my email. IMHO, waiting until June to discuss further tx options is waiting too long. I would love to chat with...
Hello Kathy I am not on HW much since my DH passed from PCa almost a year ago, but TA mentioned a tx that Gary had, mitoxantrone in a prior post. First let me say that I am so very sorry for the pain...
One more bump. Somehow this one is getting missed guys!...
Have you had an MRI of your back? I thought I had RA in my hips because of the pain radiating in my pelvis and thighs. Turns out my hips are fine and I have stenosis of the spine unrelated to RA. Not...
Hi Steve and forum folks. I wrote Steve here a longer response and a welcome, but somehow lost the post. I hate it when that happens! So trying again with a shorter version. Welcome Steve! Bumping...
I don't post much any longer, but I do check in frequently to see how everyone is doing and who has come aboard with a new dx. One thing for certain, I have made friendships from being here, most...
Hi Valery, I'm also on Enbril and have been for several years. I occasionally get a bit of an injection site redness and itchiness, but I think it's likely due to my latex allergy, which isn't...
Wishing you all a very blessed 2018! Try every day to keep hope in your heart and gratitude for seeing the sun rise and set, and for each day given. Enjoy any moments free from pain to the fullest,...
My first holiday season without Gary, but I tried to keep it low key, low stress and I can honestly say I enjoyed the time spent with my boys and the grandkids, despite the empty space that only my...
Dear Jkorourke, There are some really good past threads about the effects HT has on our men. My DH, like yours, did not want to research or talk much about what was happening to him from the HT. But...
Todd, I am so happy I checked in and saw this last post of another less than zero for you! May 2018 be a year of life's blessings for you and Mandy and family! Love, Beth...
G G the man! But it doesn't hurt to have a very good woman by his side to encourage him to use that wood to build a nice warm fire!...
Hi Priscilla, I read a bit of your blog and some of the links. I will read more when I have time, but I really like the message and your perserverence. I especially like the link about what NOT to...
About a week ago I had 20cc of fluid drained from my knee and a cortisone shot for a very similar flare. It was tight and painful from fluid build up, but not red or particularly swollen. I would...
Hang in there Todd! And happy holidays to you and Mandy!! A lot of us are still here and following your posts. I find myself mostly lurking and checking in on you guys. Beth...
Hi Boo, I didn't get an email from you, so I'll respond to the thread. Unfortunately my answer is I don't know. Mine is annually. Yours may require it calendar year, but I doubt it. I've found that...
Happy, happy, happy dance!!!! :turn: :yeah: :smilewinkgrin: PS...me personally, I'm on medication that has risk of SE's and even though I have never shown any problems, still have to get tested every...
Microchip, Extending a warm welcome to HW and my suggestion for additional encouragement for hope. First, take a look at Tood 's blog. Just type it into the search bar and Todd's posts and blog will...
Hello Boo and welcome to HW. I'm sorry you have gotten this diagnosis, but I do hope the Enbril gives you relief. I have used both the pen and syringe and the dosage is the same, so I'm sure you can...
Hi Patty, I have been on both Humira and Enbril. Along with mtx and prednisone. Honestly, my Drs and I are more concerned about the long term use of prednisone than the biologics. Without enbril, I...
I think I'll stick with the Enbril and cortisone shots for occasional flare. I've done acupuncture, with little success, too, but bee stings? I'm just too skeptical to put myself through that! Beth...
I am taking seven pills (one day a week), and folic acid, and so far I haven't experienced any side effects. I just wish it were controlling my RA a little better. I'm on Enbril too. I remember...
Jesus, Don't worry about any mistakes. You are doing a great job in your posts and your mom must be so proud to have such a caring and sweet son. I hope the information Laney gave you will help you...
Welcome to the forum carottop, and so sorry that you find yourself here with your DH so young and a depressing dx of G9. You have done well to arm yourself with knowledge and you have found yourself...
Jesus, Welcome to the forum. I'm sorry your mother is having to suffer due to the circumstances in your country. So unfair! Have you thought about contacting the makers of Enbril directly and asking...
Can't think of a thing to add to what others have said, but I just had to add how pleased I am to hear this and wish you all the best. Beth...
Gotta love Marge! The Author of "Boonville" is Robert Mailer Anderson. The town of Booneville is located in Anderson Valley, (named by the Author's predecessors), hosts the County Fair, and is the...
Thawsome! Humor is a good platform from which to launch. I'm currently rereading " Boonville" which I find outrageously funny, but you either have had to live there or have a warped sense of humor....
Dearest Sue, I find myself so often thinking of you and wishing you as much comfort as possible as you navigate through uncharted territory after so many years with Chris by your side. We traveled...