Don't attribute too much of your taxotere experience to cabazataxel. Mine were completely different and much better with Jevtana. Six plus good months for me. Almost no side effects. Hang in there...
Not me Cajun Jeff....
I was just curious about how many of us forum participants here are on hospice. I expect to be here a long time as I feel reasonably good despite the rising 1300 PSA with basically nothing left to...
I have been having decent results on Cabazataxel since December, but like everything else before it, that treatment may be running its course. I am going to re ask about Lutetium . My RO had thought...
The cancer center I use, Siteman, has its own pharmacy and I use it for my opioid needs. They make it so much easier. My MO nurse can just walk the paperwork (required) over to them based on my phone...
I had a TURP surgery shortly after my DX. I had no choice, really, as I was completely blocked from normal urination. The day I had the surgery is one of the top 10 of my life. I was so much better...
Adding an interesting link stolen from another post... https://www.urotoday.com/center-of-excellence/imaging-center/video-lectures/video/mediaitem/1467-players-brightcove-net2019-09-10-14-49-08.html ...
Outstanding, thanks....
AusTex - I am sorry you are going thru all this. JNF's reply was outstanding. FWIW, my PSA right now after 4.5 yrs of fighting is almost 1100. I've been through several treatments and am currently on...
@Alphanull - We have a place that does the same maple and bacon. I found it too sweet. Hard to mess up bacon, but I think they did. @Halbert - Did you have a favorite place when you were located...
Fortunately, the dosages we need to replace the functions that the prednisone fixes is pretty small. Many/most doctors, for instance, don't find the need to ween patients off of the prednisone we...
Good point LarryE, the shots sting less for sure if you can get the Lupron temp up closer to room temp....
4.5 years as a hip guy. No issues at all....
I am a Siteman patient who also sometimes uses CBD for nausea moderation and I can tell you that the Siteman docs are not very likely to be very supportive. They have basically been told to cool...
Fairwind, I was sort of expecting RA-223 to be a next choice, but my RO and MO were both fairly negative about it and both thought Cabazataxel a better choice. Either way I get booted from the...
Great insights, thanks George. BTW, I did rechallenge Xtandi after ending docetaxel and got no response over a period of a couple of weeks....
I had a dismal time with chemo. It forced my resting pulse rate to above 130. It was all I could do to move from one room to another when I had to go urinate or eat. Went on for months before a...
I am in heavy tears right now reading this. Your posts have meant a lot to me at this site. Thank you so much for the help, advice, and grace with which you have handled the crappy hand you were...
Well, very bad luck for me. I got randomized into the control arm which is basically a pat on the back and a hearty "good luck to you, sir". I will probably drop out of the VISION trial very soon so...
While I don't have any knowledge of a trial with such a combination, it would seem to make all the sense in the world. There are lots of Xofigo reports out there where the scans show amazing...
I hear ya Infohound2. PC has made a tremendous personality adjustment in me. Probably many. But for sure, frugality has taken a step back. GFMPH is a very useful acronym....
There has been a fair amount of excitement about this clinical trial. https://clinicaltrials.gov/ct2/show/NCT03511664 This is probably the best hope-giving trial out there for guys who are mCRPC and...
My guilty pleasure is buying bulk Starbursts from Amazon. A 54 oz package comes every month and do not go stale in the month it takes to consume them. Best of all, my sister's 4 grandbabies who come...
People should be free to choose whatever TX they deem best for themselves. Sequencing may play a part and that again is for the patient to learn about and make informed choices. In my particular...
Personally, I have some hope for Provenge. I like the concept. My MO however is very much against it. He says if it came up today, it would not get approval, and he was on the committees back then...
Well, for the record, the Xtandi experiment failed. My PSA continued growing rapidly when I restarted on Xtandi for a week after failing chemo. Up to 908 now from 750ish. It looks like Jevtana for me...
I have tried various cannabis based solutions to both pain and nausea issues. For pain, it has basically done very little. Especially compared to the harder stuff I take every 12 hours. For nausea,...
Darn, I was hoping to be able to get in on this trial. In fact, I am scheduled to visit with my RO who is a part of the study in 2 days. I don't know if he has any sort of "pull" but maybe I can get...
My MO said there was not a need to taper the prednisone when I stopped using it in conjunction with Zytiga. The dosage is small enough that it shouldn't pose a problem. Indeed, I had no issues then...
Thanks George. Great reminder on the Lutetium trial. Been aware of that for a while....
I have read stories about guys who had failed on second line hormonals, then did chemo, and then went back onto hormonals and found a renewed potency to the Xtandi or Zytiga. I am going to have my...
I did not have a sling, but I did self-cath for a couple of months around a TURP surgery. It wasn't fun, but you get used to it and it is not bad. Be careful to have impeccable hygiene as you don't...
An interesting side note... I had a TURP done 4 yrs ago at age 54. Last month, I had another set of scans done, and the bone scan interpreter thought I had my prostate surgically removed, which I had...
Thanks Cyclone-ISU. I do get Benedryl prior to the Taxotere starting. Dexamethasone too, which I like. The bad part is that the chemo doesn't seem to be working much on my cancer. My PSA was 319 at...
I started Taxotere a couple of months ago and have been through 3 of the anticipated 6 cycles. The biggest problem I have is that my resting heart rate has now gone through the roof. Normally, I...
This was very helpful. My MO said that 2/3 of guys with bone mets will never have them spread beyond bones. I had a difficult time understanding how that would lead to death then. Clearly, when QOL...
For me, the best of all is being out in nature walking with my dog. Couple of miles is plenty. We go slow, sniff anything that interests us, see all kinds of things. Easy enough on the joints and...
For me, it is computer games. I play them and watch others play them online. Have made lots of friends that way and passed literally thousands of hours. Also my dog. He is my first and we are...
I am now 6 days into my Taxotere treatment and thought I'd contribute to this collection of our experiences. My history - I've been in treatment for 50 months after a DX of PC at age 53. Gleason was...
Just a followup...pretty much back to normal by Sunday morning after Thursday's wild rise. BS back below 150. While I did continue to manage my sugar and carb intake, I can't say I did much different...
I started Chemo today (Taxotere). I am borderline diabetic, currently taking nothing to control the T2 diabetes per my PCP's recommendation. Diet and exercise have worked very well in the past, but...
I stumbled across this old post looking for info on Dr. Michalski, who I may be seeing at some point if we end up going onto radio-pharmaceutical treatments. I saw Tall Allen's post mentioning Dr....
I had my TURP about 3.5 yrs ago and it was one of the best things I've ever had done. I didn't have any burning and have been able to urinate normally ever since. My TURP story is in a comment on...
This is my experience and understanding. I just had CT and bone scans yesterday. I think it was my 4th time in almost 4 years since DX. There is some concern about cumulative radiation, but I don't...
I went to several group meetings sponsored by the local Cancer Community Support Center. It was fine and all, but overall, it was too depressing. The guys closest to my condition ended up...
When I was first diagnosed 3 1/2 years ago, it was probably 4 or more times a day. Now it is maybe once or twice a week. Just too much life to do at this point. Very grateful to have it when I need...
I have been on Xtandi for 6 months now after failing Lupron/Casodex, then Zytiga, each of which worked about 18 months or so. I sort of expected that since Xtandi is similar to Zytiga, that I would...
I am sorry for the news and that I did not get to know of Mark's blog before this. Terrific storytelling there....
I had a CT scan and bone scan today. This is the 4th time for each, I think, over my 3 years with this disease. Today was a little different as I got very nauseous shortly after the CT scan...
Thanks for the nice summary Fairwind. I always try to follow your posts as I am in a similar spot having failed Zytiga recently with a PSA of 10.3 doubling every 6 weeks. I had my scans today and...