Avalanche - I'm sorry to hear that your doctor is not being more supportive. Are they frustrated that you're asking for second opinions out of network? I don't have Kaiser, but one strategy for you...
Avalanche. I'd like to offer you a little hope. Your diagnosis sounds so similar to my husband's from 2/2017 (He was 57 at the time, he's now 61...alive and well...we still monitor his PSA every 6...
That is great news! My hubby is also a G9. We head in for a PSA update in a couple of weeks...hoping for a good report as well. I remember feeling so terrified upon diagnosis, it's important to have...
Frostypro-please, no shame! Your questions are fair. I don't know what the odds are, but it seems they aren't zero. I hope you get some clarity soon. Suggesting a DNA test makes scientific sense, but...
Oh dang. If I'm understanding your question correctly...you're wondering if you're fertile due to a positive pregnancy test that's already happened? Like you're wondering if it's yours? Everything...
RobLee I think my husband was pretty floored by that feeling too. I suppose you could say he was fortunate to not have any history of depression prior to the Lupron, but it's one thing to see...
Yeah that's a good article. I don't feel like my husband himself or we as a couple tolerated ADT very well. I also felt kind of angry that such a radical treatment didn't warrant some mental health...
My husband made the choice to stop the lupron earlier than originally planned as well. Also Gleason 9, lower PSA than you though, but high volume cancer in the prostate. His RO supported the choice...
I have had trouble not spitting at a few people who told me "If you're going to have cancer, at least your husband has prostate cancer, it's the best kind to have". Then I had to either smile and nod...
I appreciate the suggestions for Cleveland clinic and I think that makes more sense on the surface, BUT...I have another aunt in Houston and since a few other family members have been treated there...
OMG AJMan. You know what? I didn't think of that because he told me multiple times verbally and in writing that it went from 56 to 80 and it didn't occur to me to clarify. I just texted him and asked...
Michael, me too. I did confirm with him that the scan he had was the PETCT Fluciclovine- CAP, which is the same as the Axumin scan. And despite that high PSA, the scan was clean. His pelvic MRI also...
I wonder that too Island Time. My uncle also had his RP in California while he lived in Idaho, now he lives in Ohio and is fairly recently there (to be near grandkids, a good reason to move!). So I'm...
Mumbo - yes definitely, and in fact I hope that is what's happening here, because I believe the plan they have him on would be with a cure in mind (rather than ongoing management of a chronic...
Thank you. It's definitely the truth that I do not have the whole story...and unfortunately I think part of it is that he doesn't understand everything himself, so I'm getting information filtered...
That's kind of what I thought about the PSA of 80...that it's likely out of the cage, and so I understand the Lupron but I guess I don't get the benefit of putting him through SRT (keep in mind that...
Thank you so much. This is mostly what I thought but I wasn't sure about the Docetaxel. Thanks for the confirmation....
My husband's experience has put me in the position of becoming the family expert on prostate cancer. My uncle (74) is dealing with a recurrence (he had a gleason 7 diagnosis a little over a decade...
Hero- well, since I live in a house with 3 teenaged boys as well as my hubby, I'd settle for just being ruler of my own home rather than the entire world. You know, baby steps. But thanks for the...
Peter DisAbelard that is so well expressed and I agree with you. Good discussion everyone, thanks....
One thing I didn't add before that I should have: From my perspective as a wife (this is only mine...I'm sure everyone is different), it's easier to deal face some level of ED than it is to deal with...
I'm a wife but I'm still pre-menopausal, so my input doesn't fit the original post (also my husband had the triple play rather than RP). Anyway, the disruption in intimacy has induced a lot of grief...
Hey Artist Mark. My husband's original diagnosis (G9, although he was 4+5, with a relatively low PSA) was similar to yours. His last lupron shot "ran out" in October of 2017. He was only on the...
This (HW) has been the best combination of frank/informed/wife-friendly board I've found. I was on here constantly at the start of our journey, but I've been more intermittent recently due to just...
Hi and welcome! Sorry about your diagnosis...a Gleason 10 is definitely serious. My husband is a Gleason 9, and we felt pretty crazy in the information gathering stage at the beginning of fighting...
I'm in CA too so I can't compare to elsewhere, but yeah, it's crazy. And what's billed vs what's actually paid/collected will be wildly different (allowing the provider to write off the difference),...
F8 - his T was about 350 prior to treatment, and it was in the low 300's last we checked (August). As for the grim numbers...G9 is obviously not good...Dr. King at UCLA, based upon the diagnosis and...
that makes me feel like a horrible person. I'm not ready to give up #3. Maybe because of my age...I'm 46 this week, perhaps another 10 years and I won't care? I don't know (but I hope not). But I'm...
Yeah his final Lupron shot was July of 2017 (a 3 month shot). He says his libido is nonexistent...the only time he feels any desire is if he makes a decision to go for it (so never a...
Thanks for the replies. Is Frank Talk open to women? I thought it was a men only site....
I'm a wife of a post HDRBT/IMRT/ADT Gleason 9 (no surgery). I am struggling to find a place to go (whether online or in person) to talk through options and frustrations (example: I'd like to know if...
Great news - thanks for sharing this update! All the best to her, you and your whole family....
I love this update!! Thank you for sharing!...
Hi Charlene, I'm also the wife of a G9 guy. I'm 45, he's 58 (we're also married 21 years). I've struggled mightily at times. I don't have solutions for you because I haven't discovered them for...
My husband is also a Gleason 9 (4+5). I also recommend talking with Dr. Chris King at the Santa Monica UCLA medical campus. He's a wonderful radiation oncologist. Whether you choose the surgery or...
I haven't been on the site for a week or two, I must have missed out on your reasons. I'm sorry to hear you'll be leaving. Your input was extremely valuable to me in narrowing down our treatment...
Hi, I've been hesitant to post much here about our latest decisions and outcomes...but after all the help I've gotten from this site, I feel like it's time for me to share. Nutshell: Hubby was...
I'm a little hesitant as a wife to weigh in on this, but I'm going to try... As a wife, to have my husband physically respond in such a different way than usual, can be a pretty big blow to the ego...
So glad to see this news!! Happy for you and thank you for the hope!!!...
Robynlpn. I had a similar reaction to that comment. Your concern is in no way silly. Sex is absolutely not the only thing altered by the lack of testosterone, but I fully admit to you that it was...
He will most likely lose all interest in sex, but that doesn't mean he'll lose all interest in you romantically (my husband actually kind of grew more attached to me I think than he had been before)....
Thanks Anne for this post and to all of you for the responses. I appreciate speaking frankly (I don't mean to disrespect the rules or the reasons for them, however). It's the quickest way to get...
My husband's ROs said it didn't matter at all as far as efficacy, but since the HDR brachytherapy boost is invasive, the RO was able to place the fiducial markers for his subsequent IMRT during the...
My husband was diagnosed G9 at age 57 in early 2017. The diagnosing urologist wanted to do surgery right away and offered that if surgery wasn't curative, we'd always have radiation as a backup....
My husband was diagnosed similarly last year at age 57 (age 57, no symptoms, G9, PNI). He went with the triple play (HT, a HDR brachytherapy boost, and 5 weeks of IMRT). Starting HT prior to...
California Dreamer- I don't want to get too into the specifics of our interactions with Dr. Ash on the public forum (I think it's against the rules anyway). If you're interested in more info, you are...
My husband had his radiation at St. Joseph's in Santa Ana. Dr. Ash was the RO (although I don't know that I'd recommend him specifically at this point...). We also interviewed Kevin Lin (RO) at Hoag...
As a wife, I can tell you that ADT has sucked and been pretty hard on our relationship (not devastating, we're fine, but it's been a stress). That said, if it's only for 6 months, and Dr. King feels...
This is wonderful news. I remember you posting on my first thread when my husband was diagnosed 2/2/17, just after your husband had recovered from his surgery, and I wondered how your hubby was...
Such great news!!!...