Very funny. People who test positive for Lynch Syndrome are more inclined to get colorectal , pancreatic, uterine, stomach, liver, kidney, brain and skin. So my husband being positive for Lynch...
My husband was diagnosed with PCA in 2017 at age 62 with Gleason 8. His uncle had had prostate cancer in his 60’s as well. Fast forward to last July when our 38 yr old son was diagnosed with stage 3...
When my husband had his robotic surgery in May of 2017 a nurse came out and told me they had found 2 hernias and were going to repair them while they were in there. Although he didn't know any...
Thanks for the input. I did forget to mention my husband is lately experiencing joint pain especially in his hands. It is really uncomfortable. Is there anything in particular that you take for it....
It is hard to believe it will 2 years next month since Richard's surgery. He has been doing ok on the Lupron. The weight gain and the loss of libido are the things that bother him the most. H has...
So my dad has had a slowly rising PSA. It is a bit awkward to get details from him. He said it is about 5ish. He didn't say anything about any lumps. The PCP sent him to a Uro for a consult. The...
My husband had no symptoms. 5.0 PSA. Negative DRE. Biopsy had 2 out of 12 samples positive. But the 2 were 4+4. We were pretty stunned. Knowledge is power. When the urologist told us the news and...
I don't know what is going on in the blog world. The personalities and egos of the moderators can be too much. I was on Tripadvisor like I have been for years and 2 moderators from 2 different areas...
We went today to meet with the oncologist and to get the next 3 month Lupron shot. His PSA is undetectable. Yay!! His weight is good ( chock that up to a lot of hard work in the summertime heat...
Fairwind, the Onc did throw out that maybe DH should consider some Taxotere. Another reason we feel the goalposts are being moved without any evidence that the RT and ADT has failed. DH is saying no...
My DH just went to his check up with the Onc. He got his next 3 month shot. His labs were great with an undetectable PSA. Yay!!! He is feeling good. The only SE would be reduced libido and some...
My DH was doing pretty well with the leaking. He mostly only had a problem with stress like sneezes or certain movements. He went to the physical therapist at the hospital who works with PC patients....
Dreamer, What did your pathology end up being? Don't borrow trouble. Hope that your PSA comes back undetectable. My DH went to Dr. Ash at St. Joe's in Orange for his RT. He completed his RT in...
Richard and I are so glad to hear that you are off to a good start. Hopefully, the pathology report will be the beginning of putting this behind you. As mentioned above, do plenty of walking and do...
Good luck. I will keep you in my prayers. As soon as you are able, do all of the walking that they tell you to....
There were no LN removed during DH's RALP. We had questioned Ahlering about it prior to surgery and he said he was not inclined to take them as he says he could yank out a bunch and if he doesn't get...
My husband used Dr. Ahlering last May. He came highly recommended to us by several people. One is a lawyer who specializes in medical malpractice here in the Southland. He sees a lot and he was the...
Thanks for the quick reply. My Husband is going and speak to the PA and clear it up. We were told that there is some new research that is saying that doing a course go Taxotere ,right give some...
My DH finished his RT 1/17/18. He was very blessed and had little to no SE. Hopefully that gives hope to other guys out there who are afraid to get RT. My husband almost didn't go for it and luckily...
Nice to hear from you all. I know as we have been on this journey I appreciated hearing all of the member's experiences. My husband would never have checked any of this out. I am the type who needs...
I haven't posted in awhile but trust me that I have been keeping an eye on the board. I have read so many posts regarding members fear and negative experiences. Often times in forums it is the people...
My DH is in the group as well. He will receive his 4th Lupron shot tomorrow. He has been receiving 1 month shots so far and handling it well with no SE other than maybe some fatigue. The loss of...
Tall, when we met with the RO he suggested we meet with the oncologist as he thought ADT should be added to the RT. We haven't had a chance to speak to him regarding adding the chemo after RT is...
Well, our day didn't go as well as we had hoped. The planning CT went well. His bladder was more than full and it all went off without a hitch. Off we went to the oncologist. We spoke to the NP who...
My husband is in his planning CT as we speak. They will start him after Thanksgiving. We sure wish he would have 5 weeks of treatment instead of 7. It will be such a struggle with his work. He has...
My husband had a MRI an it showed the cancer was contained in the prostate. That turned out to not be true. There was cancer outside at the apex. Isn't it somewhat possible that doctors order these...
My husband is having his fiducial placement done tomorrow. We forgot to even ask how long the procedure is. Can anybody tell me? Also, he is having it done at 7:30 am. the RO is doing it through the...
Well John, that really sucks. I'm so sorry to hear that. It seems like on this forum all of the RT guys, which seems to be the majority, make it sound like they have little to no SE from RT. In fact,...
We just got home from the oncologist. The PSA came back at .2 still. The scans all came back negative. He consulted his colleagues regarding my husbands stats. The Dr. couldn't say enough how...
So, mi esposa has resigned himself that he will go with the RO's recommendation for the RT. It was just 4 months on Sept 10th. I thought that there had to be some healing before you could start the...
Fiddle, we have just gone to the one post op meeting with the surgeon at 3 month. It is funny I don't remember when he said we would follow up. He just gave us a stack of lab orders and sent us one...
I thought I would post an update and see if anybody had any words of wisdom as we navigate the next step. We met with the surgeon who said DH should hang tight a test every month or so and wait to...
I would say his PSA is detectable since after 4 tests it has never gotten below .17. I had heard that after a RALP there could be a few cells that could produce some PSA and then they kind of die...
Well crap, we met with the RO and he recommended RT without a doubt as DH's PSA has not been detectable. He believed starting earlier rather than waiting for over .2 is necessary based on his G8 and...
I met with Dr Ahlering right after surgery to go over my husband's surgery. DH was still out of it. The dr told me he was leaving for a conference the next day so wouldn't be there for discharge....
I forgot to mention when I was saying how good my husband felt is that he is continent with no pads. He might have a little leak with a sneeze or sudden exertion. He said the drinking lots of beer on...
My DH just got the results for his 4th post RALP PSA. His first was at 8 weeks instead of 12 weeks because the path report listed the tissue removed at the Apical Margin left biopsy as Gleason 8 like...
The RO who we spoke to said he felt it was a bit of marketing tool without much guaranteed benefit. When one is a patient you are pretty desperate to minimize SE's at all costs to a certain degree. I...
Funny you should bring that up. We just met with a RO and I asked about the SpaceOar. He said he doesn't use it as he feels that the research doesn't show it is very beneficial. I'm curious about it...
Yesterday wasn't such good day. The 3rd PSA result came back at .18 so no change essentially. It isn't rising but it isn't reducing either. The RO looked at the path report and said that it didn't...
I am so happy for you both. That PSA is such good news. I pray that it stays that way....
Hi PWallace, did you get the results on Friday? I'm hopeful for you all that the result is low. My DH has an appt with an RO, Dr. Ash, tomorrow to see what he has to say. We were so impressed with...
When the doctor opened up my DH during the RALP he found 2 large inguinal hernias which he didn't even know he had. So it was nice to get a 2 in 1 surgery and not have to go back. He has a huge pain...
P, My husband gets his PSA tests at Quest in Anaheim Hills. We get a call from Ana in Dr. Ahlering's office in 2 days. I signed up for the Quest Portal but it takes almost a week before the results...
I keep asking my husband if that is for sure what the dr.office said. He said yes. When is the earliest one could start radiation after surgery?...
We just got the results back from the 2nd test which was done 2 weeks after his first test done at 8 weeks post RALP which was .2. The doc's assistant called and was happy to report his PSA had...
The dr only gave my husband 400 mg Ibuprofen which he took off and on for just the first few days. He is a beast who never likes to take painkillers even if he is sick or super sore from the gym. He...
Hi pwallace! I was wondering how you were doing. I told my husband what people had posted. He is a super pragmatic guy and wants to get at least another test and talk with Dr. Ahlering before he...
Well, shoot the boot. We just spoke to one of Dr. Ahlering's assistants (it is very impressive that they give you a cell number to call one of his assistants after hours) and the PSA is 0.2 which is...