Cyclone, thanks for the message. Yes they put me on Xarelto to thin the blood and helps dissolve the current clots both in the lungs and one still in the leg and prevent future ones. Hopefully I can...
They said in the scan of the abdomen/lower body there was something suspicious, that looks like a lymph node that is near the site of my procedure. They want to biopsy that lymph node to be sure....
Djin: here you go: 12/29/18 <.01 4/5/18 <.01 9/1918 <.01 3/18/19 <.01 10/21/19 <.05 (The labs testing parameters changed) 4/27/20 <.05 6/23/20 <.05...
Djin: here is the full report. Thanks for the help. A: Peri-prostatic fat, excision Mature adipose tissue with no specific pathologic change Negative for carcinoma B: Prostate and bilateral seminal...
Thanks for the replies. My Post Op was negative margins: Pathological stage pT3aa NO Mx PSA's were as follows: 12/29/18 <.01 4/5/18 <.01 9/1918 <.01 3/18/19 <.01 10/21/19 <.05 (The labs testing...
Looking for some help on this. I had RP almost 3 years ago and since then have had all undetechtable PSA tests. I had to go to the ER this week due to shortness of breath and they discovered that I...
Just got a call back from the Lab and they let me know the testing parameters changed in August of this year and the lowest they can go now is <.05, so I am good to go! What a relief! As far as the...
So who do I ask to talk to and what specifically am I asking them? Thank you for that response....
Hey Andrew, I called the lab and her words were nothing has changed. But that does indicate that it has gone up correct? What are the questions to ask and to who so that I can be as happy as you guys...
Hello All, I have had 4 Tests since I got my surgery done 2 years ago and they all came back <.01. Today I went to have my fifth test done and it was the same lab and it came back at <.05. Is this a...
Denis - 6 weeks post op here and virtually no pain at all. The first night int the hospital I needed medication and I took one for the ride home because I had a 2 1/2 hour ride. I didn't need it, but...
All of the things you are describing are normal and will get better. I am 40, so I know the shock that comes with hearing those 3 words at our age. I also understand not having anyone around our age...
I have not found a bias one way or another. As a still relatively new guy, I found people to be helpful, knowledgeable and interested in making sure people do their due diligence before making a...
NKinney - I checked my discharge instructions and they say the following. No sex for 4 weeks post surgery. However, with the Cialis instructions it says the following. "If you had nerve sparing...
Hello All, I just wanted to post how I am doing 3 weeks post op. After getting through the first few days at home, I have been feeling really really good. I had little to no pain following surgery...
Halbert - are you saying trust my local uro? If so, no I don't. I was pissed when I left his office and called my surgeon who I have full confidence in. I only went to him today because he is local...
Thanks for all the responses and support! The cath is out! I do truly feel like a new man. However, today I go to my local uro - who yes I've had issues with, but figured it was just to get the cath...
Thank you for the responses and I guess you are both right. No reason to worry. Live and hope it doesn't come back. I suppose I would have been having the same yearly worries without EPE vs with....
Thanks for the responses guys! I am spinning a bit and am looking for some help. The doctor said it was "great news." I posted my report here and on another site and one gentleman said I should not...
I feel far better then I was expecting. I am up and moving and have been able to get to my sons soccer games, spend time with friends and really have not skipped much of a beat. I had my procedure...
I just got my post op pathology report and the Dr. seemed very happy and said I was "cancer free" but I just want to be sure I should be so excited. He said it had broke through, and it was good I...
Good luck Frostypro. We started this journey at about the same time and are both the same age. We chose different paths, but did what we feel is best for each of us. I just wanted to reach out to...
Thank you for this post and congrats on the good news you keep receiving. With my surgery a little less than a week away, all of these post about regret surely have me wondering. I think having a...
Thank you for all of the helpful responses. As i've posted here and a few other places, one thing that keeps coming up is while out walking with the catheter in, putting the big bag in a bag that you...
MY RP is scheduled for next Wednesday morning and I'm wondering for those of you who've gone through it, is there any last minute advice? I should be sent home Thursday morning and I'll have my wife...
In all my travels and research over the past month plus a couple of times, i've heard the following and wanted to see if anyone has any more information on this. I kept hearing I'm way to young to...
DangNabbit - I'm 40 and met with a highly respected and recommended RO at Dana Farber in Boston and he also said surgery for me. I have spoke to a good amount of people where the RO says that surgery...
LeoLuna - below is the website which will explain exactly how to do it. Also, if you tell your Dr. you'd like your slides sent to JH for a 2nd opinion, they should know how to do it. Just in case...
Wow Skypilot.....so you did about a mile per day while the catheter was in and then once removed you were doing 4 plus miles 7 days per week?...
I'll let the experts reply about the specific questions as I"m a newbie. Heading to surgery myself on September 13, I am wondering when you say you did a lot of walking right after surgery, how much?...
I think it depends on who you are as a person and how comfortable or not you are in talking about it. I know for me i'ts only been a month since I found out and I talk about it a lot. Mostly to...
Just got my 3T MRI results in and this is what the Radiation Doc said: Good news is that your MRI shows us no surprises. There is a 1cm tumor visible. Everything appears to be contained in the...
Excellent. Thanks for all the help. I am torn 50/50 on which to choose, but do have one more left to meet. Tall Allen - thank you for all the help and articles and all that you have provided. I"m...
JNF - I started a new thread and maybe I shouldn't have because it is probably confusing. I spoke to a radiation oncologist and he said that in my case and situation, he would recommend surgery 99...
InTheShop - I have more confidence in the first doctor, but is that because he didn't give me a realistic prognosis? Is it possible he just spent more time looking at his overall stats vs. my...
Ok Everyone, I have met with two of the three surgeons I'm considering. Some of the top in Boston and here's what I"m being told. My situation is I"m a 40 year old male that's a Gleason 7 3+4 6 of 12...
You got the page right Paul and thank you for reminding me about your story. I was quite surprised it happened this morning. Also, thank you for sending along all the information you did via email!...
Just back from Dana Farber and seeing Dr. Nguyen (A radiation Dr.) and he basically told me that my best bet was surgery. He said with my particular case and age that he'd have to do a triple play of...
Congrats on the great news! I've been following you closely as we are close in age and I'm hopeful for the same outcome. So happy for you!...
Just got the good news...It did not spread to the bones! Time to put my head down and focus on my visits that are all set up for next week and tackle this thing head on! Thank you to all who have...
Excellent thank you! Fingers crossed for the bone scan!...
Ok just got the 2nd opinion back from JH and here is what it says. To me it sounds like they just confirmed diagnosis, but maybe someone here will be able to shed some light on any differences. So...
I'm on pins and needles waiting for these slides to come back from JH. I called the pathology place today and they said they have them, but can't release the information directly to me. They need to...
Diagnosed 2 weeks ago at 40. I went to the Dr. because I had some blood in my urine. At first they thought it was nothing. Had a CT scan showed nothing. Was referred to a urologist, did a PSA was...
Paulmerc - I don't see an email in your profile?...
Tall Allen - You continue to amaze me with your ability to make all this make sense to me. Thank you for that. I do have the questions and am prepared to ask all of them. The only thing I did not see...
Thank you halbert, I appreciate that perspective. I do fully agree on having a full pathology and knowing what I truly have. I also, feel like i'll have more clarity as I get to speak to the surgeons...
Thank you for all the help over the past week and getting me to this point. I have gone from being very anxious and sick each day and feeling bad for myself to moving into focus mode and getting...
Thanks again for all the help and support! The good news is, i've started to settle into a mode where I am comfortable with what I'm dealing with and not waking up anxious and worried. This has...
I think one of my biggest worries is the Bone Scan. That is scheduled for August 1st and due to the fact that I have ongoing lower back and tailbone pain, I am finding it difficult to not think it...