I've been away from the HW Forum awhile and was surprised to see this thread. Not sure of the history, but wanted to extend my thanks for all the assistance I received from Tall Allen. He was...
Welcome to the board, and sorry you have to be here. I can understand your anxiety about the process as I was there not too long ago. If you have a Urologist like mine, if the biopsy confirms P-ca,...
Thanks Skip and JJ....just glad that the levels went down....
Thanks for the feedback, Roger! I was also wondering if the type of SBRT has anything to do with it...notice that at Swedish, they use the Calypso whereas at UCLA, where I went, they use the Novalis...
Yup...my step felt a little lighter after getting the results... I've come to really appreciate the positive moments in life recently....
Thanks Allen for your quick and reassuring response!...
Just wanted to give a quick update on my progress since my SBRT Tx last year. My first PSA results returned higher than expected levels (4.49), although still lower than my pre-Tx numbers, I though...
1. Just completed SBRT Tx in July of this year. 2. No problems 3. No incontinence, but experienced an increase in urgency. Also some pain/discomfort w/bowels, about a week after ending Tx, but that...
No scaring on the skin for me...just the tattoos. Most of the damage from the radiation is internal....
Thanks Tarpon for directing me to TA's post on tenesmus (thanks TA), yes I agree that this is probably what I am experiencing...will now be approaching the sensation I was feeling, differently..as I...
As for my personal experiences, I was impressed with the combination of effectiveness and low SE for SBRT as a mono therapy, especially for my situation (G6, normal size, shape, MRI showed no...
Notam, I had some of the same travel concerns, somewhat magnified because I was traveling from Hawaii. Because of this Dr King structured a treatment plan whereby I could complete the treatment...
I recently (3 wks ago) completed my SBRT Tx at UCLA with Dr King--someone who I would recommend. I experienced a similar struggle with local docs here in Hawaii. I was referred to several RO's...
Sorry you had to be here. I recently (3 wks ago) completed my course with SBRT, so can share my experiences. As previously mentioned, this involves using high intensity external beam radiation for a...
As far as current research, I would defer to Tall Allen, but I recently completed my SBRT Tx at UCLA about 3 weeks ago and can share some of my experiences. You should be able to see my condition...
Good news!...congratulations! I can only hope mine goes as well....
I know that the comments here can be...how shall I say...very "direct" at times, but then again so is the advice given by many physicians. This coupled with the fact that individuals coming to this...
I was Dx'd at 55 but was getting tested (PSA) because my father, uncle, g-father (on my father's side) were all Dx'd with P-ca. I knew my chances of getting P-ca was higher than most because of my...
My risk (as can be seen in my signature below) was a little higher than yours, but still a G6. It's always tough hearing the "C" word. I know for me it was devastating and in as much as I knew I was...
Congratulations on completing your SBRT Tx, I am in a similar situation where tomorrow will have made 2 weeks since completing my Tx. I know when I finished my Tx, I was jumping for joy and the...
Just wanted to throw something out to possibly get some feedback from the members here. I have completed 4 of the 5 SBRT Tx's at UCLA and last night tried out the "equipment"...glad to find that I...
Allen, thanks for your concern. I didn't mean to infer that I have only been sitting around in my hotel room when not in Tx. I usually go out walking around the Westwood area 3 x day. With the hills...
Frosty, I'll try to provide as much info as I can, but you can also email me for any additional info...I thought I would post the following info in case others on this board might benefit from it: 1....
Thanks for the feedback from Paxton, Terry and John. I was kinda wondering about the fatigue...if there are any more out there that have experienced this, would be interested in your experiences. I...
I really appreciate all the helpful information I've got from this board and thought I'd share of some of my experiences as I am just past mid-way through my SBRT Tx. I decided to take the plunge and...
Frosty, Sorry to hear that you were diagnosed at such an early age. I went through many of the same feelings when I got diagnosed...like I told my close friends, coping with a cancer diagnosis has...
19t-yes, I'm going to have the procedure done with Dr King @ UCLA, the scans will be done the same day as the fiducial implants and they will work out a plan for the Tx within the next two days. It...
19t, congrats on your progress towards treatment! I am one of the "newbies" here, but have finally scheduled my treatment as well (I tried to do as much research as I could after getting the dreaded...
Thanks again for all the responses and the lively discussion...learning more and more each time. In response to Allen's question about having a Urologist, yes, I do have one that I see in Hawaii. He...
Again, thanks for all the responses...the info you guys provide is invaluable as these are things no one has ever told me and are very important to consider. I will discuss the possibility of getting...
Thanks Allen and Terry for the info you've shared. To answer Allen's about the fiducials, when I spoke with Dr King's nurse, he said what they would try to do is to get me an appointment in the...
Thanks for all the good info provided (Chipmaker, Paxton, John, searchinginla)...so grateful for the quick responses and support coming from members of this community. It puts me at ease knowing that...
I have not been active on this form recently and have had to update my signature info since my last visit. I have been pursuing SBRT treatment and have had to overcome many hurdles to date. Some of...
It's been a long (and frustrating, at times) road, but I have seen 2 Urologists and will be seeing my second RO tomorrow I also plan to see a Medical Oncologist to get a more unbiased opinion. It...
Sorry for the late reply, but thank you for all your responses. With regard to Active Surveillance, this is something I discussed with my Internist and Urologist and both were pushing me to get Tx'd...
Didn't mean to hijack this thread, but thanks to Michael_T and JNF for their responses. In response to JNF, the reason why I was asking about the insurance coverage was that I recently found out that...
Congratulations Dewayne on the good news. It's always nice to read about a treatment with low SE and positive treatment results. Being a new member here and still researching about different...
Sorry to hear about your friend's condition. I am by no means an expert and am still researching possible treatments myself. But wanted to mention that I saw a presentation made by Peter Grimm, D.O....
Thanks for all the responses so far. The facility which I am thinking of doing the SBRT Tx at is advertising things like: TomoTherapy; Elekta Infinity, Dual-Energy Varian Multi-Leaf 2100C, and Tomo-...
As a update, I have been continuing my research in to the most effective treatments and am leaning strongly towards SBRT. It's been difficult trying to learn about all the technical details about...
Thanks Allen for understanding the dilemma I’m going through….trying to deal with all this stuff makes me feel like I’m going crazy at times. As far as the MRI, my Urologist noted that he didn’t see...
Thanks Paxton for your advice on perhaps taking viewing this journey as a project and keeping focused on the goal. The feedback I received from members on this forum advising me that I did have time...
Just wanted to bring the members who were providing me feedback on this thread, up to date on my situation. I went to see my Urologist today to discuss the findings from my biopsy...I had previously...
Thank you for sharing that information (TA, George), but to gain a better understanding of treatment options available, does focal therapy include radiation therapies like SBRT (cyber/gamma knife)......
Thanks to Wolfster for letting me know about FLA...I hadn't come across that type of treatment in my research up to this point. I spent a few hours this morning finding out more about this procedure...
Thanks again to everyone for the support...I am finding the info from this forum invaluable in helping me to better cope with my situation and giving me the strength and knowledge to move forward...
Thanks again to all for your whole-hearted input. As many of you have perceived, the cancer diagnosis had me going in a tail spin and I was trying to digest all the info I was coming across on the...
Thanks for all the wonderful responses (Don, Lam, George, LNF, Brownout, Duke, Paul, Andrew), appreciate your suggestions and warm words of encouragement. With each kind of therapy/strategy, I am...
This is my first post, hopefully my newly created signature will provide some info leading up to my recent P-ca diagnosis. I got my results two weeks ago and have been trying to research like mad to...