Not true; for instance look for publications by (Alan) Katz et al (PubMed). Here is one example https://pubmed.ncbi.nlm.nih.gov/33035622/ This study only goes as far as unfavorable intermediate...
Hi Turboz, I was informed that any form of brachytherapy appeared to be ruled out due to location of tumor at posterior side of apex and the increased risk of toxicity to the critical erectile...
I know, hence my reaching out to clinical trials in the US. Here in France they are behind in terms of SBRT treatment unfortunately and the ROs operate within a strict protocol and are not as...
Certain EPE was noted on the MRI which indicates T3a which is high risk and PSA is now 7.5 and tumor has grown from 7mm to 9mm. IMRT with 6 month ADT is possible if I refuse surgery. I need to update...
Because no studies proving efficacy in high risk patients...
Thanks Djin, that's interesting. I have contacted the trial investigator and an waiting for a call back from a doc in UCLA. I have recently progressed to the high risk stage of T3a with EPE of 1.5mm...
Does the patient have to pay for the treatment in a clinical trial if they don't have insurance coverage and if they are coming from overseas (i.e. not residant in the US)?...
Chance PSA test at around age 36 showed PSA= 4.5, MRI showed epithelial hyperactivity but no tumour. Twice yearly PSA tests revealed a fluctuating PSA between 4 and 6 until MRI Sept 2018 detected a...
Gedman: I don't know what the odds are in the general population but I was also 41 at time of diagnosis of PCa, no family history and of caucasian origin. No treatment yet but it won't be long. It...
Ok thanks for the info Djin. I'm going to stick with the Pomi-T brand ordered directly from their website - when you order in bulk it works out a bit cheaper. Also just including more polyphenol rich...
[quote="DjinTonic" I took Pomi-T for two years (a supplement with some good results developed specifically for a British double-blind, placebo-controlled, randomized study and then commercialized),...
Food for thought Article: https://nutritionfacts.org/2020/08/18/food-combining-for-prostate-cancer/ Video: https://nutritionfacts.org/video/best-supplements-for-prostate-cancer/ The supplement...
Interesting study. Its a good idea to study the effect on PCa of various foods and/or the ways in which we eat. It can also be empowering psychologically to have daily disciplines and routines within...
Pratoman: Yes you are correct in your assumption. The RO I'm seeing has mostly used SBRT in clinical trials up to now. He said he has used it around 100 times and has no significant data yet to prove...
Thats some quality information on OncotypeDx & Decipher testing of which I was not aware and it makes a lot of sense - More food for thought!...
Ok thats a good idea, I'll look into sending on the slides for both 2nd opinion and Decipher Test. Point taken about bone scan sensitivity and the difficulty picking up micro metastases in LN & SV....
Djin: It may be problematic getting an Epstein review of the slides. I would imagine the French might not take to kindly to sending slides to the US for a 2nd opinion. But it's a valid point, I will...
Really appreciate all your shares and valuable information from the patients experience... Have an appointment with a MO on the 25th to get the systemic perspective (and ask for a bone scan,...
Djin: Absolutely, this is all about minimising treatment regret as much as possible. Its my understanding that while the neurovascular bundle is actually fixed on the prostate at the base, mid-gland...
Halbert: Thanks for that way of explaining likely impact of surgery on erectile and continence function. It makes a lot of sense to look at it from the bell curve perpective like that. And yes that...
Hi Djin I'm hoping to avoid another biopsy if possible but we'll see. Thanks for the response to my questions about penile impact of RP. Its quite infuriating not knowing how its going to turn out....
Thank you all for the support, comments and observations. Oh, I omitted to mention that I did a genomic test in 2018 following initial diagnosis and got results one year later stating no genetic...
Ok, so I will give an overview of my journey so far. During routine bloodwork for nutritional reasons at age 37 (2014), a PSA test was inadvertently undertaken which revealed my PSA at 4.4. A...
Hi all, Great site, been reading through it. See my profile signature for details, I'm at the unenviable stage of deciding on primary treatment, if indeed I do choose to treat. Any thoughts? The...