3 months is not a long time - some recover after 1 year, some after 2. There is always Trimix. Does not hurt and very effective....
Johns Hopkins has a program where they will discuss all the options, RALP, beam radiation, seeds. I also think you should have them review your pathology slides...
I had RP 4 years ago and no sex since. Viagra and Cialis no longer worked. Tried Muse max dose 1000 mcg and it had some effect but not enough and it stung. Made the head swell but not the shaft stiff...
OK OP reporting back. A couple of days after my surgery I woke up in the morning and my pad was bone dry. Mind you, I wasn't activated yet. Found I could pee but only in little spurts, took a dozen...
So three and a half years have passed since DaVinci RP and I still suffer from major SUI. Looking forward to a better quality of life going forward. My SUI didn't keep me from being out and about,...
You might try MUSE it worked for me....
Won't be able to make this one, maybe next year or in the fall. Those of you going to Acme Oyster House, have a dozen for me....
OP you need to be patient it can take 6 months for things to heal. 11 days is nothing. Measure progress month by month. I am 7 months post RALP and now seeing a PT. It is helping but you have to be...
You might also consider a MPMRI of the prostate....
Nick you need to be patient. I am nearly 6 months post RALP and still struggling, yet when I look at the progress I've made it is pretty good. I buzz cut my pubic hair using the sideburn trimmer on...
Denis as you know I am almost 6 months post RALP and still experiencing incontinence. Best advice I can give you is start doing the kegel exercises as soon as you decide on surgery. Also keep your...
Hi Denis I am 5.5 months post RALP, dry overnight but leak like a sieve during the day :mad: Went to a nice local urologist yesterday and he wrote me a script for Physical Therapy. Apparently they...
I asked my surgeon that very question as I was upgraded post surgery from 3+4 to 4+3 with tertiary 5. He said I might consider doing PSA check every 6 months instead of annually which is standard...
I, too, will arrive around noon tomorrow. Stopped part way in Binghamton NY just across the PA border....
Denis we can chat this weekend at GFMPH. I had RALP and can tell you what to expect if you go that route....
I will be 5 months post RALP on 10/1 and I am in the same boat. Dry overnight and leak all day. BUT now I can pee in the toilet during the day whereas before everything just leaked into my pad. I too...
Having a little discharge around the catheter is normal when straining to move the bowels. Be prepared for 6-8 weeks after surgery to see more blood when the dissolvable sutures dissolve. That...
Worried guy I see you had me down as 2 but wife will not be able to attend as she is at a horse show, so I am coming as a single. Is there something I can bring? Also I will be driving and staying at...
Actually the article you linked says they only bill you if it works... This was developed in my backyard. My wife retired from CHOP and went to Penn. I still remember the excitement when they saved...
You have nothing to worry about but if it makes you feel better get another PSA at 3 months it should be undetectable. Mine at 6 weeks came back <0.006 which is the detection limit for the LabCorp...
I'm 4 months post surgery and still in Depends. Things are getting better but very slowly. Tell your friend to: 1) be patient 2) do his kegels 3) get a PC or a smartphone or go to the library and...
My surgeon at Johns Hopkins wanted me to get the regular test 6 weeks post surgery. But my family doc ordered the Ultrasensitive. Since the script read "post prostatectomy PSA" I did not even realize...
I am a retired chemist. I'll go a step further and say you could split a blood sample, run two tests back to back on the same blood and get more variation than that. Definitely no difference....
I booked my room in the hotel block. Very much looking forward to meeting all of you....
I do know that prostatitis is very difficult to cure. For starters antibiotics don't reach the prostate very well and in my case it sometimes took 60 days of doxycycline to resolve it, furthermore it...
It is no big deal. I had a bone marrow biopsy with just local anesthetic. If you are antsy and they won't give you midazolam, take some lorazepam before you show up. I took 2 mg before my last...
Carolyn, that is excellent news, both the response and the insurance. Good for your MO at FCCC. I wouldn't be alive today if it weren't for the support I have received from Fox Chase....
I think the forum is great and I visit pretty much every day. Yes there are divides between the RT and surgery crowds and sometimes the G6 and the 9-10 folks. But by and large a supportive group. I...
How long is the wait list? You do not have to be in a hurry with those numbers. My biopsy came back 3+4 in January and I had RALP in May. More important to make the right treatment decision (for...
I am three months post surgery taking 5 mg tadalafil daily. I would kill to have your "problem". Cause for celebration, not anxiety....
What is GFMPH?...
Gene you and I both had RALP at JH the same day. Check your PSA report to see if it is preceded by a "<" sign. My 6 week came back <0.006 I scanned it and emailed the PDF to JH and it is in my...
My first biopsy was very uncomfortable, the urologist did not numb one lobe effectively or didn't wait long enough for the local anesthetic to kick in. I felt nothing for the 6 samples from one lobe...
As others have said, 2 months is early. Some people take up to two years to regain useful erections - some never do. I am two months out and in the same boat as you. Trying hard to be patient....
So I called Johns Hopkins and they called me back saying it is normal, that around 8-10 weeks after RALP the dissolving sutures start to pop out and a little blood in the urine is normal. Wish they...
And I am guessing SA means South America. Hopefully OP will let us know if she is from South America, Saudi Arabia or South Africa so the knowledgeable folks on this board can help her find the best...
You might want to have the biopsy slides sent to Johns Hopkins for a second opinion although doubt anything will change a Gleason 9 to a good situation. Prostate cancer often is asymptomatic, that is...
I was also 3+4 on biopsy but upgraded to 4+3 with tertiary 5 post RALP at Johns Hopkins. Just got my 6 week PSA and it came back <0.006 ng/mL. Hoping your husband's first PSA draw comes back equally...
Good for you, you made it through the tough part! FWIW I developed bad peripheral neuropathy from my chemo for lymphoma - couldn't shuffle cards or button my shirt. It gradually got better, took...
As a 3 time cancer survivor I have experience in this area. As a rule, you need to be 5 years cancer free before anyone will underwrite you at rates you would even consider paying. I went in...
Barfy you need to be patient on the continence thing. I had my surgery 5/1, catheter out 5/10. I am going through 3-4 Depends a day. But this morning my depends only weighed 100 grams which is a...
You are taking 3x 100 mg sildenafil? I believe it is marketed in 25, 50 and 100 mg strengths because the clinical trials showed no benefit (and increased side effects) over 100 mg dose....
I got 40 100 mg sildenafil citrate tabs for $32. Used a Canadian pharmacy and the product was made by Teva. Shipped from UK....
great news on the pathology report!...
For what it is worth I had a single PIRAD 3 lesion and then on biopsy they found multiple sites some 3+3 and some 3+4. With PIRAD 3 it isn't even clear to do a biopsy but they did anyway due to...
Hey Barfy, great that you made it thru the DaVinci surgery OK. I had mine May 1st. Every day will be better than the last. Hoping you get a favorable pathology report....
My anesthesiologist wanted to know if I could climb a flight of stairs, When I said yes he wanted to know if I could climb two flights. I said I had climbed Mt Kilimanjaro at 19,340 feet, hiked the...
Kat for what it is worth my dad was diagnosed with metastatic prostate cancer in 1984 and he lived 30 years on ADT. Finally died at 90 from heart failure and arteriosclerosis. I am curious how men...
gene62, small world I had my surgery at JH the same day. But I was on 6th floor at Bayview. Yes nerve sparing, 50% on one side and 75% on other. PS I am removing my catheter tomorrow also. Kind of...
Hi everybody, really happy to have found this site and all the knowledge and experience here. My PSA has been increasing for years and had a biopsy (negative) in 2011 and a negative MRI in 2013....