Hi all, I haven't been around in a couple of years, I had successful Davinci surgery in 7/17 and my PSAs are undetectable. I was told that the post surgery biopsy was a Gleason 8 and I thought at...
Hmmmm.....I have been on Metformin for years and still got prostate cancer.[i] Nick...
100 surgeries? That's a rookie. My guy has done 4000+ This is so important that you need the MOST experienced surgeon, who has seen it all. The downside is that if he is at a teaching hospital, you...
Thanks all! I feel like I can exhale......
Also, I was wondering...the post op biopsy of my prostate showed I was a Gleason 8, not the 7 they had thought. To me that means it's the fastest growing variety therefore I need to get on top of...
Thanks guys. When you use the phrase Standard of Care, that's an insurance term for what they are will to pay for, correct? That's the only time I have run into it, is that what you mean? I had the...
Hello guys, I just read the thread started by refers about his USPSA numbers and some posters mentioned that waiting until it hits .2 is the "old standard of care". Well, I had my surgery in July,...
Hi Fairwind, What did you mean by this: Do you have any incontinence issues ? Try to get that rectified before you start any SRT... Thanks, Nick...
Wow. Today I found out I am doing all wrong! To rehab the blood flow to Mr. Happy post op, we're suppose to do "manual stimulation" either kneeling or standing up. Who knew? My surgeon says if we are...
Thanks fellas. Confusedpt: What type of diaper do you use? Worried guy: I can't collect the data like you did because I am dripping at a constant rate, so there's no way to do a scientific method of...
I have been to the pelvic floor therapist who uses biofeedback and she said I did great kegel exercises, yet I am still dripping when naked. I am getting very fed up wearing diapers. Wearing them is...
Hi love, You said that here were recent threads re: Medicare on 7/19 and 9/1, but how do you search by date on this forum? And when I use the search box and enter Medicare, other forums' threads pop...
OP here: Thanks everyone for your insights. I live in Illinois. Also, if you could give me an idea as to what it costs you per month that will be a great help in my retirement planning. I am figuring...
I had a successful RP in July and am now with an undetectable PSA. I will be turning 65 next July and want to know which Medicare supplements I need to pay for in the unfortunate event I have a...
Hey 3 5s and a Jack, Haven't seen you in awhile, did you ever decide what you're going to do? Interesting thread...I found this site invaluable between my diagnosis in May to a few weeks post July...
Thanks! I am just 2 months out, so although all my other factors are excellent my odds presently are less, my 7 years is 59%. So perhaps if I can get to 6 years I can be 99% too! Thanks, Nick...
Thank you for cheering me up Beothail. I am undetectable as of now, had surgery July 19th, and was worried about recurrence from what I have seen, especially at the Us Too support groups. I guess...
Hey Islandtime: When you left the operating room, did they charge you? How did that work? 3 Jacks: What pushed me to "take care of it" was my deep experienced with close loved ones dying horrible,...
There is a test by a lab named Prolaris which does a genetic test to determine how FAST your cancerous cells may spread. They use the material from your biopsy. Unfortunately for me my hospital's...
I take .5 of Xanax when I have to lay still like that. I also keep my eyes closed so I don't see the machine 5" from my nose. That helps. I have napped for a couple of hours in my car in the parking...
I had wanted to wait until the end of the summer for my surgery, so I could enjoy it. I had come across studies that there was no difference of outcomes if one waited 90 days from the date of...
Pratoman, All your blood glucose questions will be answered here: https://community.diabetes.org/discuss/viewcategory/3 Nick...
Billy Bob wrote: "Now if someone can actually tell us unequivocally, with good science to back it up what that healthy diet is (whether PC healthy or heart healthy or overall healthy), with actual...
P.S. to my post above, two things I forgot: • Unintended good consequence: Since going to 100% plant based diet about 8 weeks ago my Diabetes sugar level numbers have plummeted to "almost" normal. My...
Hi Doire, Your husband sounds like more of a cardiologist's problem than a urologist's problem. I too have allegedly been "cured of PC", my prostate was taken out six weeks ago and now my PSA is...
Thanks Tall Allen and Halbert for the clarification. I freaked out when it wasn't 0.000 Nick...
I had a prescription for an ultrasensitive PSA test, which I thought would mean three digits to the right of the decimal, but I just received the result of 0.02 From what I have read I need to have...
Ask if parking can be validated. Nick...
I am 6 weeks post surgery, my surgeon said to do 10 sets of 10 keels each, hold for 10 seconds, relax for 10 seconds. I am still 100% incontinent but have coping techniques that allow me to function...
I am 6 weeks post surgery and quite incontinent. The doctor's staff insists this is normal. From what I have read it can take 4-10 months! So...he's got to find which diapers and pads work for him...
I am 6 weeks post surgery and this is fresh in my mind. So, hoping for the best but planning for the worst, I'd say your two best choices are: • Stay the first week at a convalescent care facility,...
Ask around, who do doctors in the Seattle area go to for surgery when THEY need PC surgery. That's what I did in Chicago. Found The Doctors' Doctor. Nick...
I have a question. At the 6 weeks after surgery point I am suppose to go in for a PSA test. However, I was given a prescription for a "regular" PSA. I thought that an ultrasensitive PSA would be...
Thanks everyone for that. I do have his business email from his business card, if I don't get satisfaction from the staff I will send one directly to him. I do agree that a surgeon is a surgeon and...
That's great! Count your blessings. I'm a leaky faucet. Nick...
Just curious. When I need to communicate at my regular hospital via its patient portal, my doctors get back to me sooner or later. However, having PC surgery at a major teaching hospital downtown, by...
Congratulations! I know what a great feeling it is to have the cath removed. May I ask, what do you mean by being "dry all day"? I had my cath out 4 weeks ago and am always dripping. I can't urinate...
I had Davinci 31 days ago. When researching, having ruled out radiation, my choices were Open vs Robot. So...when considering surgery you want a surgeon who is not too young, not too old. I found two...
You raised a big red flag, you mentioned you "live alone". If you choose surgery it is a real PITA to recover from surgery without help in the house. I started a thread on this a few weeks ago. You...
I've been wrestling with this the last few months since I was diagnosed, I try to keep it a secret from anyone who doesn't need to know, especially neighbors, because I don't want anyone feeling...
When I came across Artists Mark's post I was curious, so I then read the threads. I came away with the conclusion he is way too sensitive, I found nothing to take offense from. I myself am a blunt...
How are you guys handling it mentally? Do you tell yourself: "At least I'm alive?" The cancer is under control? Being shorter is better than dead, right? Nick...
Hello Skylark, Please PM me for more information, perhaps as fellow Chicagoans we can communicate via the phone. I chose UC over NW because of Dr Z's reputation and the new building. Also, UC uses a...
Ooops sorry. Ignore that above post. Was meant for a different thread....
P.S. Go with the doctor who has done the most operations! My first two choices both did over 4000. However, one had no bedside manner, plus the other doc was known as a "Doctor's Doctor". He was the...
When I was told my various options, at North Shore, NW and UC, I was told that that the hormones would bring my testosterone down to zero, making it easier to kill the cancer cells, which feed on...
As the owner of a one man service business for 41 years I always Hope for the best but PLAN for the worst. This is the best survival strategy. So believe Doc #2, hope Doc #1 is right, but their stats...
OP HERE: Thanks guys. I don't know where the urine is coming from except I eat a LOT of citrus, watermelon, cantaloupe, salad. I'm 100% plant based diet the last month (lost 11 lbs!). If I drank what...
Is this normal? I had my RP surgery 20 days ago and was told “the reconstruction went exceedingly well”. Since he has done over 4000 operations I believe him. I had the cath removed 14 days ago. I...