NiRo, As I mentioned in your earlier post, I had my treatment done by Dr. Zelefsky in Manhattan. While my brachy was LDR, he is a top specialist in HDR. My radiation and ADT was done in Middletown...
You’re welcome. ADT is usually started first in order to bring the PSA down as close to 1 as possible. At that point brachy would be done. ADT would Still continue for the prescribed time. Radiation...
Hi Dogdays, Can you let me know who your RO was in Middletown? We are meeting with Dr. Khan out of Middletown on Monday virtually. We live closer to Basking Ridge though, so I wasn't sure we'd end...
NiRo GS 9 guy here from NJ also. I went the triple play route with MSK. I had brachy done in Manhattan and my radiation done in Middletown NJ. They also have a facility in Basking Ridge. Depending on...
Hey Wayne, great choice on the treatment plan from another GS9’er. I actually had LDR and SBRT which was done in 5 treatments. Completed my treatment in Sept. of 2017. Great results so far. Best of...
I’ve always thought it best to test with the same lab every time. Differences in their testing methods can cause you unnecessary stress. May be time for another trip to Amsterdam. I think I would be...
Manich......I believe you require markers for cyber knife. I thought it was generally the same as SBRT, which I had and required fiducial markers to be placed. Since I also had brachytherapy, my...
Yeah, it took more than 2 weeks to really kick in. I’m thinking more like 2 months. I hate to recall those fun days.....lol. Best thing to do is keep active. You said you were 80% disabled, but if...
Wayne, my first shot, firmagon, was done in March of 2017. My next shot, lupron, was done in April 2017. My radiation doc at MSK said he would not do brachy until my PSA was at least 1. My last shot...
First, thank you for your service to our country. Second, welcome to our little club nobody wants to join. Third, from one G9, PSA at start was 12.4, to another high risk aggressive cancer guy, the...
Best of luck SailingBob. Only my opinion, but good choice....
Congrats Mal. Best of luck...
Manich, I am covered by traditional Medicare with AARPUnited Heatlhcare as a supplemental coverage. I also have Walmart/Humana as my prescription drug plan. As you can see in my signature, I had...
Godspeed 142. RIP...
So sad to hear this. Hopefully, he is not alone. Prayers and strength to 142...
GS9 = high risk aggressive cancer. I don’t think you need to think further than that. There is really nothing to be confused about. It will kill you and not a peaceful death once it metastasizes....
Charty, as JNF said above, at least go and get that first ADT shot. It will put the brakes on progression. As a GS9, you really need to get something going pretty quickly. Waiting is just giving the...
^^^^^^^ What he said. Very important ^^^^^^^...
Star, as someone more than likely has mentioned somewhere in this thread, a urologist is a surgeon and obviously a surgeon is the same. They rarely have any real expertise in any other protocol than...
I am a GS 9. My treatment plan. Was a triple play of ADT, low dose brachy and SBRT in 5 fractions. Check my signature for my up to date results. And I hope they stay that way...
Unfortunately yes. But it is not a reason why there is no activity here. The loss of Rockyfords has taken its emotional toll on the group. There are still people looking for advice and support. I’m...
I’m still feeling fatigued. It almost seems worse now than it did while on ADT. I gained a substantial amount of weight and my MO mentioned with T level going up, I should be able to drop some of...
My final lupron injection was July 2018. Had T and PSA done yesterday. T level still in the basement. It went from 156 at last check to 160 yesterday. I need to talk to my MO next week about it....
Wow. Almost 3 months and no activity in here at all. Maybe that’s a good thing. Figured I’d bump it up a little in the page count. Just had my PSA and T levels checked. My last actual injection of...
David, May God bless you and ease your pain. Prayers to you....
TJ123, Damn straight brother. Did you get the shot after having shingles or before? Since shingles can come back, I have to wait a while before I can get it. Everyone else, If anything, get the...
I’m in the middle of my war on shingles right now. Been going on for 3 weeks and still as painful today as it was 3 weeks ago. Mine is centered around my shoulder. Even the lightest touch from a...
Andrew, Any contribution to this forum, and lord knows you’ve made a lot, is welcomed and may be just what a poster was looking for. Whether it’s advice, a boost to the spirit, or even a doughnut,...
Beth, Thank you for being your brothers voice at this time. Sending prayers his way and also to your family....
Our dog, Max, was diagnosed with prostate cancer a few months after me. I was 63 at the time and he was 63 in dog years. We tried chemo and radiation to save him. Prostate cancer in dogs progresses...
All mine were hip. No issues at all...
My ex wife, who has a recurrence of breast cancer had the hardest time finding any worthwhile forums on the subject. You would think that some of the bigger names in the treatment or research of...
True that you must be on SSDI for 2 years before being put on Medicare. Cancer should qualify you for SSDI I believe....
[list]* Unfortunately, yes. You know those times when you would complain to the wife about shaving her legs? I realized my body hair was coming back when my legs starting getting itchy and had a 5...
Oceanfisher58, Sorry about your numbers changing in that direction. My dx was close to Michael T above. I can’t discuss surgery options, but I would look into an oncologist (surgical or radiation)...
Schoolpsych, great news for another G9er. I’m a couple months behind you. Here’s hoping we all crush our numbers....
I better not notice as I will be under general anesthesia. LOL No one here has had the spacer??????? Mentor, I had the SpaceOAR installed during my brachytherapy and fidicual placememt. They are...
Just a bump. I hate having to go look for this page....
2019.......eh. Sorry I got you in hot water with the powers that be. My apologies. Still don’t think it was that off color of a joke. Guess I grew up in a different neighborhood. 🙂 We gave it a...
🙁 well that put the kibosh on Friday Funny. Btw......great grandpa, in one of his cerebral moments, thought it was funny. And the 13 year olds were doing what 13 year olds do....not paying attention...
😧😳😂 so much less offensive than a DRE 😖. And I never laughed during them...feel free to carry on...🙂...
Mentor, If you are being seen by an RO at MSK, ask them to run whatever test you are concerned about. I saw my MO a few weeks ago and had basically the same question. I told her I was getting fed up...
CH...I don’t have an answer for you, but hopefully, one of the mods can pull your post out of here and start a new one for you. Yours may get lost in here. Always better to start your own....
Sometimes you just have to roll the dice and get on with it. As a GS9, highly aggressive cancer, with CAD, and a double bypass, clearance by my cardiologist was necessary for my treatment plan. To be...
Peter, just an fyi. Had 3 month shots. My last shot was in July 2018 and would have worn off in October 2018....
Like Prato said. There is no set timeframe for T. Some guys are struggling and using T replacement to get their levels up. MO said she would be happy seeing triple digits at this point. Any progress...
Thanks guys. Hoping the trend continues....
I got my last lupron shot a year ago and had my one year blood draw today. Liking the results so far. PSA <.05 T= 156 😃...
I got my last lupron shot a year ago and had my one year blood draw today. Liking the results so far. PSA <.05 T= 156...
Grendel, Be wary of Uro’s recommending surgery. Remember, that is all they do. I am familiar with NJU, formerly DVU. They recommended surgery with Dr. Butani, 5 minutes after they gave me my dx. Take...