Thank you, Cyclone, Matten, and 6oMichael, I agree the low-dose Abiraterone regimen seems to be working for me. That 2018 study was small, so I'm hoping it's replicated. It's so great to have this...
Due to cost, my doc put me on 1/4 normal dose of Abiraterone(Zytiga) and Prednisone with a low fat breakfast, plus of course quarterly Lupron shots. Any opinions on this reduced regimen and long-term...
OMG! I'll try that one, too. Thanks, Djin!...
Thanks, Mumbo. I will switch my drug plans on part d in the fall. Also, I'll try to find out where I am on the co-pays on Medicare. it's ridiculous how the only option top doc's have is to put you on...
PSA up to 8 in Nov,2022. Had been around 1.0 or less for the last 2-3 years. Started on Lupron shots and Abiraterone in Nov, 2022. My insurance found me an "exceptional" rate for the first three...
Great news, Mike! I am also approaching 5 years in the journey, am a t3B, but have recent met's to lymph nodes and a slow rise in Doubling time and PSA. On the good side for me are low PSA and no ADT...
Right on, Andrew! Jim...
Hey Cigafred or anyone else, One RO says he can radiate my peri-aortic nodes as well as Ext Iliac. He also said my PC may still be considered local as opposed to systemic. Never had ADT, probably a...
Fair wind, my doubling time is about 5 months. But since my PSA is so low, my doctor said my increase in PSA may be mathematic (from .4 to.45 to .62) as opposed to logarithmic. Still thinking about...
Are these mets considered distant to my prostate(which is long gone) and thus changing my grade from t3b to 4? Thanks in advance, Jim...
Sorry about Robb, Todd. Way too young! Jim...
Kathy, I'm sorry about your Dad. But his pain is over. What a wonderful daughter he has! Jim...
Right on, Andrew!...
Tennis and Roger- I'm also in/near Seattle and am now seeing the doc's at SCCA. Have had RALP, RT and will have a PetScan next week at the SCCA. I am apparently in relapse territory.Tennis, you will...
Way to go, Kbota! Inspiring to us all!...
Go get him, Fairwind! Slay the dragon! Hoping the side effects are tolerable... Jim...
Awesome feedback, guys! It's amazing how the recent studies that are coming out seem to contradict some that are 4 years old....Thank you, TA... Your recall is amazing...My only concern about the...
TA--Here is one article that relates. . https://doi.org/10.1093/jnci/dju278, However, this study may not apply to those at high risk. My MO offers me a PET scan when and if my PSA rises to 0.50....
Hi, Dennie You came to the right place. Others will be offering you ideas soon. It's hard at first, but try to relax a little. You may not even have PCA, and most prostate cancers are very slow...
Thanks, TA. I see my MO specialist tomorrow. My URO says that ADT is a toss up FOR ME (with low PSA, 3-6 mo DT, PSA-only reoccurrence) and probably not worth the SE's. I will forward you the studies...
Four years into the battle, the PC seemed under control with only side effects from the treatments . Now my PSA is rising with doubling times of 3 to 6 months, depending on which of the two labs I go...
Thanks for the update, Mbock. Tomorrow I will probably get an opinion to start Firmagon, which will be my first ADT. But maybe not, if the PSA dice roll low numbers. Good luck with your hubby's new...
Good luck! Should be a slam dunk!...
Thanks, Rob. I will probably land on the hormone highway in March or April unless PSA goes back down. Your numbers are really close to mine. Jim...
Just calculated my probable doubling time as +- 8 months. Had RALP, ART around 2 years ago. Now I appear to be a candidate for ADT. Have heard from my URO that even 1 shot of "Intermittent" hormones...
Thanks, TA...seems like the best one I've seen Jim...
Just got my latest PSA check, seems to be a slow or not-so-slow rise. Anybody know a good DT online calculator after RALP and ART?...
Todd You are an awesome example for myself, newer to this journey with only 3+ years of bad news, good news, hopes..... Keep on living life to the fullest! Jim...
Island Time--Awesome! I get mine checked in about 3 hours--Was a bad result 3 months ago, so I am apprehensive this time Glad yours was good Jim...
Be logged in(click on Join HealingWell, then log in). Type your screen name into the Google custom search box, then your posts will come up....
Thanks Andrew and TA! Jim...
A quickie: I am most likely going on ADT for the first time soon and wonder who administers? My URO, my RO, or an MO? Thanks Jim...
Scar--Welcome but sorry you and your husband have to join our club. The advice here from TA and Break60 and others is invaluable. Wish I had found it earlier in my journey. Good luck! Jim...
Write on, Andrew!...
Above post Should have been addressed to Pratoman...
Wilderness- My Uro tested <0.04 and then 0.08 in Jan 2017 and Aug 17 My large lab around the corner tested 0.08 and 0.16 ON THE SAME DAYS as above. This doubling concerned me. They will probably bill...
Cool, I'll try, thanks TA...
Thanks Tall Allen, Bohemid, and all. I will try to get in to see Dr Evan Yu in Seattle for MO help. Is the current belief that initially, intermittent ADT is the way to go? Does that usually mean 6...
Thanks, Andrew The latest PSA(last line of my sig) should read .16, not .12...
a little bit concerned at this point, PSA going from <.04 in 3 months to .08 now in my Uro's office, while a separate lab(PacLab) clocked .08 in Jan 2017 to .16 now(August). Due to my "advanced...
Congrats, Andrew! Party on!...
Way to go, Tigerfan!...
I have also been helped by Tall Allen several times as well as by many other members in my journey to beat this disease. I only wish I had found the forum a little earlier in my journey. Many thanks...
Jay, sorry you have to join our Gl 8 club, but be strong... I had surgery almost 2 years ago and am "stabilized " with only minor side effects for the last year or so, and am feeling positive and...
Thanks, Allen. I think my RO did mention docetaxel. I'm going to wait on "hitting it hard" with another treatment until -if ever-there is evidence of a recurrence....
Jack H and Tall Allen and other compatriots: Thanks for the lead on Fred Hutch and Dr Evan Yu. He was very reassuring. My RO is "suggesting" chemotherapy as the next step instead of hormones to hit...
I'll drink to that, Don! I am staying in the zero club, I believe. My latest reading(Friday) was undetectable. Doc said I had stabilized after undetectable readings for a year since ART....
Thanks, Tim....
Many thanks, Allen and Jack! I have booked an appt with Fred Hutch Center and am feeling good about this...