There is no question that getting a reading of your slides from Hopkins is a useful thing in general. My slides are there right now for a third, post RPP, reading. (NYU gave me a 4+5, Memorial Sloan...
6 weeks is too early for your first PSA. Get it retested in a month, chances are it will be undetectable. Your path report is good....
Not to be contrary, but I don't see the point in getting a second opinion on the slides. You're going to need treatment. I suppose you can avoid the HT if the Gleason is downgraded to a 4+3, but I do...
"I know for a fact that my urine chemistry has changed. I have collected in bottles for ten years now," Does this mean what I think it means?...
I had an MRI before the biopsy. It can help the urologist figure out where to take the cores from. An MRI can show ECE and lymph node involvement, but not always so. It's really a question of size....
75 percent of the money they raise goes to funding men's health programs. I guess that could me a lot of different things to different people, but I don't see the conflict with this site....
Hey Tiger, Everything sounds pretty normal and you're doing well. If you want to know how dry you are, go without a pad on a day that you're not going to leave the house. I have been completely dry...
"I believe all the 'slow growing' part and 'active surveilence' part happened before my PSA started to rise." I think you hit the nail on the head. Time for treatment. Either surgery or radiation...
Very sad. My consolations....
What kind of surgery did he have at 86?...
Congratulations! That's a great result. Now you can breath easy for a few months....
I think you can expect a diagnosis of something other than prostate cancer. I hope it turns out to be a big nothing!...
Your next step should be with a radiation oncologist, not a medical oncologist. Too early to throw in the towel on a cure....
"Just saying, all is not gloom with RP." Amen to that. 4 months post RP and I'm now completely dry. ED still an issue, but it's manageable, and there are signs of life down there. I find orgasms...
"In addition, note in the table further down that page, that while it is estmated that in 2017 161,360 people will be diagnosed with the disease, 26,730 will die from it. Think about what this means:...
What I took away was that Dr. Mychalczak said was that all of MSK had only performed 800 SBRTs. Far be it from me to tell anyone what to do, and I'm not one to dissuade anybody from surgery, but Dr....
To answer your question, first year, every three months, 5 years every six months, annually after that. But I'm curious, your surgery was 4.5 years ago. Why is this an issue now?...
An MRI might spare you the biopsy....
Worrykid, I would say that you father's situation is far from hopeless. There are lots of treatment options. I wouldn't presume to tell you what to do. Your doctors have several advantages to us...
I don't know if there is an anti-surgery bias, but it does seem to me that the pro radiation people are more anti surgery than the pro surgery people are anti RT. Maybe it's because us surgery people...
I'm real new here, and I'm trying to understand why the "radiation vs surgery" thread was locked. I found other posts that say "ask the moderator who locked it" but I can't figure out who that was. I...
Glad to hear you're doing so well, but do your Kegels and walk as much as you can. My surgery was late May, and I reached dry this week. Well, five or six days without a leak and counting. You leak...
Well put Halbert. According to the RO's I've consulted (3), the incidence of fecal incontinence with SRT is very, very low, almost non-existent. Obviously, those numbers mean nothing if you start the...
Hi Gary, I don't know anything about persistent psa, but I think a .32 psa after surgery with a good pathology report means that something is still down there. The chances are that it's still in the...
Interesting thread. Here's a few thoughts and comments in no particular order. NY Post article is a big nothing to me. The Post generally aims to shock its readers rather than inform. I'm not...
I think Adagio's Gleason score is an 8, not a 10. Have you had an MRI or any imagining done of your prostate? You might want to get a couple more opinions. If you go for surgery, which seems your...
I chose surgery. I never gave much thought to radiation. What I was told is that the cure rates are the same and the side effects are the same. I had a major surgery a few years ago with the DaVinci,...
Don't drive yourself nuts trying to predict the future. Probabilities don't mean squat for your unique situation. There is nothing in your path report that should cause you anxiety....
Good luck, my guess is you won't be back here for another 35 years, and hopefully never....
I'm holding off until I actually "read" the audiobook. I know enough about the issue to have a half baked opinion. I'll share my fully baked opinion when it gets out of the oven. And for anybody who...
Hey there O'Rourke . . . Your husband's focus right now should be on his recovery from surgery. My incontinence wasn't as bad as his, so I don't have any helpful experience to share. But the odds are...
"I need to catch some good luck and avoid bad luck." Seems to me that you've had nothing but good luck so far. Relax and enjoy it. You might want to go back to that less sensitive test....
Hi McCloud, Even if this signals BCR (and I agree, it's just as likely to be lab error), the fact that it took 7 years would seem to signal that it is a very, very slow cancer, and there's a good...
Getting back to your original question, I really like Zelefsky. I've now seen three here in NYC: NYU, Weill Cornell and MSK. He's the best of the lot. I can give you the other two names privately if...
Mine came out after a week, maybe the 8th day. They did a test to make sure that the connection was healed. They filled my bladder up with water (via the catheter) and looked at what was going on via...
Hey Tiger! Every day you're going to feel a little better. You may plateau once in a while, and if so, don't be discouraged. For me, the catheter was no big deal, but I was discharged with a drain...
The majority of my work is representing employees in employment disputes, including lots of disability discrimination. Unfortunately, not all employers are as understanding as some of those mentioned...
Jeff, Quit worrying. Your scores all look great to me. All the research and reading and statistics won't tell you a thing about where your psa is going. Live one day at a time....
My advice is to find the very best practitioners you can, surgeons and ROs, and make your decision based solely on what you learn from them about YOUR particular cancer and situation. This forum is...
The general thinking is that the erectile tissue in the penis atrophies without a sufficient and regular supply of blood. That's why, before prostrate surgery, nature provided us with several...
I hear that Michael Zelefsky at MSK is very good. I happen to have an appointment with him this afternoon. I'll let you know what I think....
You can add me to the Gleason 9 gang (4+5)....
The pump brings blood into the spongey tissues, which is important to keep them healthy. Don't stop using it. I haven't tried injections, not ready for that yet. Without nerves, I don't think you'll...
Hi Vmost, I don't think I can add much to what has already been said. I'm in a similar situation, RP with good results, but high Gleason and EPE. My surgeon says I can get adjuvant or wait to see if...
Hi Ron, I don't think you will regret your decision. I'm pretty much in the same boat as you. Underwent robotic RP in May, and two months later I felt like my old self again, except my psa was...