2019Guy, I saw some familiar names in your posts and wanted to add my comments, for what they might be worth to you going forward. Klope is a contract urologist that Kaiser (Ventura) uses. I saw him...
Just an update at 3 1/2 years since my treatment. I haven't posted much, just been living life as Andrew suggested. I'm in the SBRT clinical trial at UCLA and latest labs are in my signature, no...
I suggest you look at Plan F, it's the most comprehensive supplement plan, no co-pays or deductibles. I have yet to pay anything out of pocket on my PC journey, even 2nd opinions from Epstein were...
My RO said the following, and my LN were not treated: "Whether or not to treat the nodes is an area of controversy, with no definitive evidence that it is useful. Since it can add significant...
This looks like a promising development. Article says it's being tested on prostate cancer cells:...
My doctor gave me the option of SBRT with or without ADT. He felt that adding ADT would increase efficacy of the treatment from 80% to 85%. I choose the nine months of Lupron....
Best way for all searches here is Google Advanced Search: https://www.google.com/advanced_search?hl=en&fg=1 For "site or domain:" use "http://www.healingwell.com/community/default.aspx?f=35"...
You should ask Dr King, but I believe he would offer you SBRT as a monotherapy with your numbers. I was scheduled for SBRT monotherapy as a G(3+4) when a confirmatory biopsy upgraded me to G(4+5)....
I'm another patient of Dr King's. My five SBRT sessions were over nine days with the last two on consecutive days. I did an hour of aerobics before each session and was instructed to drink a liter of...
Prior to the Lupron I had no joint issues at all. Then just at the end (9 months) I developed joint stiffness in most of my fingers almost overnight. It was a "trigger finger" effect where the joints...
I too am a patient of Dr King, and couldn't be happier with my treatment. Although I don't require office visits right now Dr King has always answered emails within hours and made referrals within...
Just wanted to post an update as it's now two years since my SBRT treatment at UCLA. In summary, no news is good news, so far. PSA remains low, testosterone has completely recovered, and I have no...
I made the mistake of getting a bone scan even though my RO advised against it as being unnecessary. When the scan came back as inconclusive I had to delay my treatment for weeks while getting a 2nd...
My RO told me to start Casodex/Lupron together. The actual injections were done by my MO. The Casodex was a cheap fill at the pharmacy. You might consider Part D, it runs as low as $17/mo. Not...
I replied to you earlier in this thread about Casodex and Sildenafil. You need to ask your RO....
Maybe I'm not understanding, but I thought Medicare would fully cover your Lupron. I had Medicare with a supplement (plan F) and was fully covered for the nine months of Lupron, no co-pay. I believe...
I had radiation, 3" longer now. :)...
Sounds good, that's what I choose. I had four months of Casodex (50mg/day?) beginning with the Lupron. You might want to ask your RO about the pros and cons of that. I was also prescribed a daily...
Interesting that with a goodrx coupon increasing the quantity from 90 to 100 tabs raises the price by $10. Looks like 90 is the sweet spot for cost per tab....
I had the same decision to make with my treatment. Dr King gave me a choice of SBRT as a monotherapy or adding 9 months of ADT. He felt that adjuvant ADT could increase the efficacy of the treatment...
Go to goodrx.com , enter "sildenafil" in the search window, select quantity, and print the coupon. Somewhere you also have to enter your zipcode, but you don't need to register or join to get the...
Sildenafil 20mg $55/100 at grocery store pharmacy with goodrx.com coupon....
You need to add an email address to your profile so people can contact you....
From my experience I was able to see both Dr's Demanes and King on the same day. Demanes is at the Westwood campus and King is in Santa Monica. UCLA is really good about scheduling visits quickly...
Thanks Perry, you and me both are hoping! I guess our situation is reversed from radiation as a monotherapy since our PSA starts low and then rises due to the Lupron expiring. I wonder if there will...
Perry, my RO said PSA would rise to 0.2 - 0.5 and hopefully be stable....
Hi Jim, Sounds like a good report. I'm also a patient of Dr King's and 18 months out now. http://www.healingwell.com/community/default.aspx?f=35&m=3773329 My guess is your SE's will all be resolved...
Is there value to this test if the bx sample submitted is unknowingly not the highest Gleason? In my case the bx sample submitted for test was G(3+4) before we even know about the G(4+5). Is the test...
My test was offered at no cost under a clinical trial....
Hi Bob, yeah the Lupron isn't much fun. From my experience the side effects began to disappear within six months of the last shot expiring. The two most disturbing effects were cardiac arrhythmia,...
Boone, I was in a situation similar to yours. I was on AS as a G(3+4), monitoring with MRI guided biopsies. I made the decision to go with SBRT as a monotherapy and actually scheduled an appointment...
Jim, although my T has recovered my libido has not; libido is much less than pre-treatment. I feel like there is a delay between testosterone rising or falling in the blood and the libido sensation....
I've been away from the forum for a few months, had to take a timeout from researching and ruminating about PC. I found myself sinking into a fatalistic apathy, but I'm doing better now and hope to...
While on AS I had both Prolaris and OncotypeDx tests without any charges. Apparently the vendors were offering their tests for free in order to gather more patient data, at least that's what my...
Jim, good report. I'm about nine months ahead of you, my SBRT was late June 2015 with Dr King, I had nine months ADT. Yes, we are probably looking at 18 months to two years to get a real read on the...
Rosewood, is that the Westlake Village group that meets on Hampshire Rd? Several of us here attend that group. As a new person I would recommend that you go to their big meeting on the 3rd Saturday...
There's this from Tall Allen's sig: https://prostatecancerinfolink.net/2016/01/06/nine-year-outcomes-after-treatment-with-sbrt ...
I'm 1 yr post-SBRT, and 1 yr since my last 6 month Lupron shot, had 9 months of Lupron in total. I have no side effects of the treatment except reduction in ejaculate. These are the last three blood...
I haven't been posting for awhile, but I can't pass up the opportunity to express my thanks to Tall Allen. I first met TA at the 2014 PCRI conference, and again by chance at UCLA. That plus several...
Good catch. I first heard of Dr DeVita on NPR, http://www.npr.org/2015/10/28/452395967/oncologist-discusses-advancements-in-treatment-and-the-ongoing-war-on-cancer Then found that my local public...
I bumped it a year ago on 11/4/ 2014 . I don't understand why the header says "Posted Yesterday 1:38 PM (GMT -8)"....
I'm not sure a post-radiation PSA is meaningful until long after the Lupron has left the system. My RO said expect 18-24 months after the Lupron before the PSA is useful. Earlier than that the PSA is...
Amazon (I hope it's okay to disclose that. Otherwise mods please delete)...
Interesting interview on NPR with PC survivor Dr Vincent DeVita. He's also written a book about to come out, "The Death of Cancer"....
I like to hear good news like this. Thanks for the update....
I was recently exactly where you are. I had been on AS, got a G(3+4) on targeted biopsy, and decided on SBRT mono therapy, and my doctors agreed that I was good to go. As a final "sanity check"...
I had my 3 month post treatment visit with my RO last week, and he asked about side effects so far. The only uro or GI side effect is that I've had to get up and pee during the night, usually twice,...
http://urologytimes.modernmedicine.com/urology-times/content/tags/andrew-vickers/single-psa-test-45-may-predict-aggressive-pca?page=full "The big take-home message is that a single PSA test at age...
That sounds revolutionary, first I've heard of it. Is it at the point where a self-insured US citizen could be treated at one of the centers or is it for their citizens only? Any idea on the cost of...
CaliJR, If you are seeing Dr Marks, you should ask him about the advisability of getting a bone scan for mets. At our PSA levels bone scans are considered unnecessary but do cause false positives...