You asked about what other medications may be of help. In my case, my urologist put me on Avoderm which helped for about two years (between 2010 and 2012), and is a one-a-day pill that helps greatly...
Have been in one clinical trial (UCLA Gallium-68 scan), but would like to get into more, but not sure (1) how to get information on what's being tested here in northern California, and (2) is it...
Once PSA goes over 4.9 - 5.9 it is time to start ADP in my view. Time to get that PSA back down before it can spread to bones or organs. I wouldn't wait for it to get to the bones, if one can prevent...
Good luck. With confidence in your decision, lots of backup study on options on your part and the wise choice of a great facility with great staff, I expect nothing but a positive outlook for you....
Your original comment makes no sense as Stanford advertises on their website https://stanfordhealthcare.org/medical-clinics/radiation-oncology.html that they perform Cyberknife surgery and are among...
Believe that asking only about decisional regret for past 4 weeks is odd. I have been through many treatments. Some I regretted some I didn't. Some where I was uninformed, some where I started doing...
Well, Tall Allen, as I said, both Dr. Eugene Kwon at the Mayo and Dr. Lam at Prostate Oncology Specialists agreed with your assessment, and both suggested ADT and the UCLA scan--which resulted in the...
Congratulations to you John. Sounds like you are doing everything fantastically well--following your numbers, getting good advice, changing up your treatment to match results (I think the firmagon...
One final note: I am still extremely happy with the prescribed course of action I took. My chemo, using cold cap therapy (penguin caps, though dignicap or paradox or artic caps were also considered)...
Following up on my original message here and the replies provided by many people: I returned to Mayo in January 2017 and then again in May 2017 and had C-11 scans which showed that all I had left was...
The other reason doctors like to wait is that they want to keep "more bullets in the chamber". That is, they want to have more therapies to offer over time. As my oncologist said to me the first time...
Feel terrible having left John Hopkins Hospital off this list (especially since I used to live in Baltimore). My mistake....now corrected....
I would start with downloading this report from Harvard on prostate diseases. It costs $25 to download, but it has about 130 pages, and it is updated every single year with the latest research on new...
Bone/joint building may help. Simple daily doses of Glucosamine plus MSM would be my suggestion (make sure you avoid Chondroitin as that promotes cancer growth) along with flossing and regular visits...
Here is some positive news for you and your father. I have a cousin who was Gleason 10, PSA = 72, very fast doubling time (< 10 weeks) and who has undergone all of the treatments (chemo, RP, hormone,...
If you are eligible the best test is the 68Ga test, open currently only via clinical trial. Did this last week (July 3, 2017) at UCLA (referred by Dr. Richard Lam from the PCRI) and it showed cancer...
Compiler, I had 26-30 lymph nodes removed in my iliac region during my surgery in June 2015. 4 were cancerous (3 on right side, 1 on left side) Since the PSA is back up, I don't know where the cancer...
One other thing I failed to point out--the doctors at Mayo do not prescribe only scans and surgery. In many cases, they prescribe that ADT be started or that radiation be pursued as alternatives. I...
Tall Allen, Thanks for the link. It is very useful, and the UCLA option (Ga-68-PSMA-scan) might be preferable to the C-11 scan, because of cost and because it is effective for people like myself...
Well, I'm back, and the reason for my continued PSA tests will now be clear. As I stated in my previous post, my PSA count following the surgery was < 0.015 (cancer insignificant) in August, 2015....
My situation is that I had prostate enlargement symptoms starting in March 2007 (PSA 3.72) and was started on Avodart at that time. In August 2011, my PSA jumped to 9.65 and my urologist suggested...
As usual, it makes no sense from a "cure" perspective for the insurance companies to deny your request for a C-11 PET Scan if one considers that it is, by far, the most accurate predictor and locator...