It's been many years and it's time to reach out again to those in the know. Early on this site was a life saver and I'm forever grateful for all the wisdom and compassion that I received 16 years...
I'm planning to go to England and France in 6 weeks and I'm concerned about my stress incontinence. I use one pad a day but the absolute worse thing I can do is walk on hard surfaces for any length...
After surgery 12 years ago it was discovered I had a positive margin so radiation was strongly suggested. After the RP I had to wear 2 or 3 pads a day for a couple of months, down to 1 pad for 3...
11/3/06 I don't visit the site that often anymore but for the first five years I would check in 3 or 4 times a day. This site was a life-saver for me, someone was always here who knew exactly what I...
Great article on positive margins, here's the link if you like to look at images. http://www.harvardprostateknowledge.org/positive-surgical-margins-following-radical-prostatectomy...
I've been donating for a couple of decades and like a few here I was told 1 year after successful treatment I could donate again which I have been doing for the past 7 years. My take on this is that...
The beginning of the month was 7 years since my RRP, had ART 6 1/2 years ago. For years my PSA was 0.02, switched labs this year now PSA is less than 0.01. Was progressing nicely concerning ED and...
Ed, great shots as usual. Love seeing your work....
I drank 20 oz. of water 30 min. before my appointment time and I always brought a bottle of water with me. Quite often they were running late and I'd do the same thing 81GyGuy did, use the bathroom...
Chrissy, sorry for your loss....
I can't offer any information on the ED issues but the stool issue, I had the same problem. As I recall it lasted a few years. I did mention it to a couple of my doctors at the time and I don't...
54 29, 33...
I'm also a G6 with a positive margin. Had RP about 6 years ago and IMRT 5 months later. Maybe jumped the gun on having radiation (PSA was creeping up ever so slightly) but I've been 0.02 for the last...
Pax, I had hemorrhoids and loose BMs half way through and my stress incontinence returned. I never experienced any fatigue and worked throughout all my treatments. I treated myself to a new bike and...
Is it possible to incorporate some confetti at climax while the music changes over to the 1812 Overture....
I'm self employed so I didn't have that whole workplace issue to deal with. I told family first and then I sent an email out to my close friends, I kept the email very light and positive. From that...
I was a G6 with a positive margin and opted for adjuvant IMRT and I always wondered could my G6 have become a G7, G8...? Could my positive margin have metastasized? Until it can be conclusively...
MArc30, As others have said 0.004 is an excellent number, every single guy on this forum would be thrilled to have such a low PSA. These numbers constantly fluctuate, my PSA has been bouncing around...
David, Happy birthday, I'm right behind you, in three weeks I hit the big 60. Everybody tells me I look much younger, they think I'm in my 40s but my body reminds me every morning how old I am. A...
Sad day in NE, congrats Giants on the win. Maybe one of these years we'll get a defense that can prevent this from keep happening. We knew the game was over 4 minutes before it ended, it's been a...
Dogbot, Do an internet search for Cowper's gland. The urine spurt was probably preventing you from noticing the pre-ejaculate. What you're experiencing is quite normal. Ken...
Stacey, If your husband has not done so already, he should have his PSA checked regardless of his age. He has the dreaded family history working against him now. Ken...
This subject has come up several times over the past five years and it appears to be quite common. My experience was like Sheldon's, the only difference was I didn't feel any pain until about week...
HD, My doctors were being aggressive because of the positive margin. My PSA 6 weeks after surgery was 0.01 before it rose they ordered a cat-scan and discovered a tumor on my kidney (unrelated to...
I, like your husband, had a gleason 6 with a focally positive margin, meaning it the was smaller then 3 mm. As Alf suggested get the pathology report and go over it with his doctor. My surgeon and my...
A great voice of reason has been lost....
CJD, I live about 20 minutes away from the rad center and I would down a 24 oz. bottle of water before I left the house. I usually waited 10 or 15 minutes before getting on the table. A few times I...
Well today marks my five year anniversary of losing the old walnut. It was a slightly bumpy ride at the beginning but things have smoothed out somewhat - still have stress incontinence and ED. I may...
Tony, My sentiments exactly. Glad to hear you're doing so well. I'm right behind you, in two weeks it will be five years for me also. Ken...
About a year after my RP I discovered that we had a bracelet so I bought a bag of ten. A few weeks later was Thanksgiving and my family asked what the bracelet represented and I told them and offered...
I'm was deeply saddened to hear this news and for the past couple of days I've been trying to formulate a response. I regret not getting to know Les and reach out to him. I've always felt a certain...
Proscapt, My PSA's have been bouncing around between .01 and .04 for almost 5 years. This past year .02. I did have IMRT 5 months after my RP because of a positive margin so that may have had some...
aerie, Nothing to worry about, check out the link, the Cowper's gland is not removed during prostatectomy. http://www.urologicvacation.com/treatments/pre-ejaculatory-fluid-gland-(cowper)/ Ken...
Terry, A big thank you for making this journey, that nobody wants to make, a lot less bumpy. Ken...
Casey, Sorry for your loss. It seems she lived a very happy and fulfilling life albeit way too short. Ken...
David, I've had no problems at all with the "good" feeling. That's the only thing that hasn't changed through this whole ordeal. I can achieve about an 85% erection without any aids but it requires...
142, I'm with you. My journey has been pretty much the same as yours (surgery, radiation) and like you wearing at least one pad a day. When I see any of my doctors and tell them I'm still wearing one...
Bill, I had RRP followed by IMRT five months later and my PSA's fluctuated as follows; .01 a month after surgery, .02 before radiation, .04 after radiation, .03 the year after, .01 the next year, .02...
I couldn't find anywhere to unsubscribe so I updated my profile and left the email box blank....
p_e I never had the pain that you mention but I did have an odd feeling when I emptied my bladder. For a couple of years after surgery, when I would void, I could feel my bladder empty. I would get...
Jim, Sounds like you've got everything under control. Isn't it amazing how much the anxiety diminishes with knowledge. My oncologist, radiologist and several other doctors had a similar conference...
I had RRP and adjuvant IMRT. Now 4 1/2 years later - stress incontinence (one pad a day) and ED (80% erect without any aids). These side effects have been very consistent since one month after...
I've been coming to this site almost everyday for 4 1/2 years and I cannot state strong enough what this site has meant to me. I talk to family and friends, but it's just not the same. The depth of...
Mel, I think age may play a role, I was 54 (almost 55) when I had IMRT and I never experienced any fatigue at all. Ken...
John, It seems I misspoke, I went back and looked in my journal and my PSA was not rising when I started IMRT. I was tested one month after my RP and my PSA was .01. My uro suggested I see an...
JF, You may not get your old life back as you knew it, but it'll be pretty darn close. You'll adapt and have a new normal life. Other than you having nerves removed, I had exactly the same pathology...
kak, Know that you're not alone, although I did get some support from family and friends, I thought maybe I could have received a bit more. My sister and sister-in-law both said to me, separately and...
Same as James, no measurements, doc said he was going to do 66 gys...
Bob, I also have a usable erection without any aids. As Alf mentioned, I was told that whatever function (both ED and continence) I had before IMRT that I would have that for the rest of my life....
Four years ago today, at this time, I was in lala land having my walnut removed. This is the place I turned to, and the support I received was second to none. I'd like to thank each and everyone of...