Enzalutamide monotherapy tripled my testosterone and brought me up to a normalized level of 570 as body tries to compensate for the AR antagonist....
Wow, 8 months that is good news and must indicate cancer cell death! I look forward to seeing the next 3-month trial evaluation. After one week off of enzalutamide only trial arm I am feeling...
Update, 9 months into EMBARK trial and no significant side effects from Enzalutamide only trial arm. Some fatigue, lost 10 lbs., increased anxiety and slightly reduced ability to concentrate but...
I have been on Enzalutamide monotherapy for 4 months and my testosterone has increased from 180 to 580. PSA fell from 8.6 to 0.4 at month 2 and was 0.2 at month 3. I am age 51 and had some mild side...
I'm considering orchiectomy. I am also applying for the Enzalutamide EMBARK trial this week. Also considering paying for another Axumin PET scan and just maybe something could be found that can be...
Anyone willing to share their opinion about me paying for another Axumin scan now that my PSA is 3x what is was when I had a scan in December 2017? I have the standard CT and bone scans scheduled for...
Thanks Billy. I found considerable termite damage at my home 3 weeks ago and have been working feverishly on weekends and took a week of vacation to repair before I go on Lupron and/or XTandi if I...
A generic Zytiga may be coming to market this fall as the Johnson & Johnson patent has been challenged. This might make delaying systemic disease by 3 more years affordable!...
For those considering applying for entry into the EMBARK study NCT02319837 Enazalutamide (XTandi) and you are located in Alabama, the University of Alabama (UAB) at Birmingham's clinical trial...
RandyJoe, thanks for your reply to me on another thread about Embark and I have read this thread. I've read about the clinic trial and it says assignment to groups was random. When joining the trial...
I had a very stressful confrontation with a coworker in late February and my PSA nearly doubled from 4 to 7.3 in 4 weeks where it had been stable the previous 4 weeks. Not saying that stress and...
Update. In February the NCCN recommended the Axumin PET agent as a standard of care for suspected recurrent prostate cancer....
Tall Allen, I wasn't accusing you of really laughing but I think you know what I meant. PCa is no laughing matter. Having the last laugh. Don't make me laugh . . . It is truly amazing how many...
I'm not arguing -- just wondering why then you are so intent on getting another scan? If it doesn't make a difference in your treatment, what's the point?[/quote] I know you are probably laughing...
I'm not arguing -- just wondering why then you are so intent on getting another scan? If it doesn't make a difference in your treatment, what's the point?[/quote] I am still hoping for chance at...
Thank you for sharing this important research study and I highly recommend that anyone with BCR and/or castration resistant prostate cancer after ADT take 20 minutes to read. I see that one theory...
Holy smokes PSA 4 this week!...
60%+/- detectability at PSA of 1.5. My PSA should have been close to 2 at time of scan....
Finally received PET scan results today. Only possible adverse finding was "low-level uptake of tracer noted in groin lymph nodes ... meaure up to 1.56 SUV and does not appear to be pathologic...
Scheduled for Axumin tracer PET scan next week, $4,500 on the credit card. Oh well, I've had excellent healthcare paid for by Blue Cross Blue Shield over the years and I guess its my turn....
Update. Bone and CT scans clear this week after BCR earlier this year and PSADT of 2.6 months. Have a 4 mm kidney stone in left ureter though and the radiologist said my mid-left ureter was "lit up"...
Allen thank you for this and all of your thoughtful responses. After watching my father go through ADT and now my father in law I have a very poor impression of it and it's accompanying side...
Will anyone please share their experience and results if they have had the fluciclovine injection tracer for a PET scan after BCR? At age 50 I have just recently had BCR at PSA of 1.5 and a rapid...
Mary, Bless you and your family and take comfort in knowing that your father will receive excellent care and treatments. One thing that was difficult for me to understand after discussing the biopsy...
Dave, sounds like you are rounding the bend and things will get better from here - - and they will. Thank you for sharing and I am pulling for you. Rust...
The fear and anxiety that comes along with an illness and cancer are real and in my own personal experience have affected my life greatly and I did not realize how much after diagnosis and...
At age 73 I would watch PSA for a year or longer and then consider ADT in the future and skip radiation therapy altogether. My 2 cents....
They should give you a relaxant before the procedure. I brought an ice pack and sat on it on the way home. It actually is not that bad. Just kind of well - - different and not as bad (to me at least)...
I agree with Andrew and PSA darn sure good for Gleason 9 disease although PSA is not to be relied on 100% of the time. PSA test results over the next 12 months will tell more and establish a trend....
You need to call and ask for another decimal place....
Has anyone had their PSA jump significantly when they have begun a high intensity weight training or aerobic exercise regimen? After having low testosterone in the 175+/- range I began a high...
Bob, I would assume that there would be a burden on the liver and kidneys and other unknown metabolic changes when using a drug therapy. It also makes sense to me that the earlier after BCR that you...
I would like to invite you to share your experiences with Orchiectomy as a treatment option if you have had it or seriously considered it. I am a 50 year old considering Orchiectomy and am 5 years...
Just before diagnosis I had several PSA tests over a 3-week period of time. One PSA was 18 (blood drawn right after a DRE), one around 12 and then the next week it was around 10. Go figure. I think I...
Update for those following this thread. After continuing to build the intensity of my fitness routine of weightlifting and stationary bicycling for 4 hours per week I have gained great muscle mass...
Robert, Thank you for your thoughtful replies and they have certainly boosted my hope for continued good health and especially the empathy shown so I know that other families are facing the same...
I think anything is possible when it comes to small changes in uPSA. Don't sweat it. My PSA has begun climbing 4 years post-treatment after having been on TRT for 11 months but it also seems to have...
Update, I ended TRT in June after being on it for 11 months and a PSA increase from 0.03 to 0.58 over 11 months which indicates BCR. I have now begin taking 1/2 aspirin (130mg) daily in hopes that it...
Jeff, Thank you for taking the time to post on this thread. Yes our PCa case profiles and treatments are very similar. It has helped me put my situation in perspective and to know that at least...
Bobbesian, I believe my PSA has increased greatly because of the intense physical training program I underwent in June. I went from girly man to hulk in just 4 weeks and I am interested to see what...
OK, time for an update after being on TRT for 11 months and a rise in PSA from 0.18 in March to 0.53 yesterday over a 15-week period. I have been in an intensive fitness training program for 4 weeks...
Robert, Are you saying that you went off TRT in March this year because your PSA rose to 0.025 and not 0.25? I mean isn't 0.025 even with the ultra-sensitive test still below the detection limit?...
Jazzman1, Thanks for posting about your TRT. I have been on TRT for 11 months after 30 months post-SRT and 42 months post-RP. My PSA has crept up from 0.03 to 0.18 after TRT and my next urologist...
I am providing an update on PSA progression after being on TRT for 8 months for others who are either on TRT or considering TRT after surgery and/or radiation therapy. After a recent modest rise in...
Like Ted I opted for the IGRT based on a rise in post-RP PSA. My post surgery PSA never reached 0 with the ultra-sensitive test but had risen to 0.12 at its highest reading. The latest research said...
Jack, Congratulations on getting past your surgery and please take some time to feel that you've made significant progress in your treatment. Perhaps they wish for your tissue to heal and get some...
Jon, Regarding the ADT part, you didn't mention what your Testosterone level is. I campaigned with me RO for the least amount of radiation and completed 64.8 Gy with few side affects and they did not...
Has anyone that has had RP and SRT had a slight rise in their PSA after beginning TRT? My PSA has increased from 0.02 where it has been for 2.5 years to 0.05 after being on Androgel TRT for 4 months....
Lovif, Going through the PC treatment process the past 18 months has been a time of much change in our life. My wife, a cancer survivor also, has certainly been patient and it has allowed us to grow...
Research for a while to understand your current evaluation and/or treatment options and then take a break. PC is very treatable and we have access to excellent healthcare in America. I started 2 new...