Tebozo Not knowing your pathology, I can’t comment on your proposed treatments. If you’re being urged to have ADT with radiation it implies that you’re not low risk. What was your Psa, PCa volume and...
Tebozo The potential side effects of ADT can be seen on the internet. Every guy experiences it differently. I’m on it for the fourth time. I’ve never stayed on it for more than 13 months at a time....
Naples I was told it takes one month for each month on ADT for SEs to be gone. Bob...
I’ve read elsewhere that taking a lower dose of Zytiga with food is effective . Any comments? Bob...
Tamsulosin ( generic Flomax) has no impact on your ability to exercise from what I’ve seen. Bob...
I was not advised to have an empty colon. That makes no sense and would require an enema every day. But in order to avoid gas don’t eat foods that cause gas because it impacts location of the...
Don’t come here much anymore. Surprised to hear TA is leaving but happy he spends time on inspire and health unlocked....
Thanks guys for all your inputs. Jerry: very informative chart! Dr Joseph does have great bio and he’s only about a 2 1/2 drive from me in Hilton Head. In your opinion is he fully conversant with all...
Jerry Yes I meant east coast of US. How often do you need to go to Baltimore? I’m assuming he works with local MOs for injections, etc.? Bob...
Has any one had experience with Dr Richard W Joseph at Mayo Clinic Jacksonville FL? If not , any good MOs for PCA you can recommend? Preferably on east coast? Thanks Bob...
My two cents is that it really pays to have your RT done by someone who really knows prostate cancer and the surrounding anatomy. The only problems I had were related to SRT at a community hospital...
Kathy As you can see there are many of us here by your side and praying for you and learning from you but feeling helpless to add any comments. God Bless You! Bob...
I have traditional Medicare planG and Mutual of Omaha medigap which a broker sold me on. I’ve had hundreds of thousands of $ of medical expenses and have no complaints . The only out of pocket...
As I understand it, for those who have tried all available "standard of care" treatments without success, Clinical trials are used to try out unproven and as yet unapproved treatments. One can also...
TA Gotcha. You’d think someone would have tried to test his theory since it sounds eloquent and well thought out. He spent years writing the book ... all for nought? Are there any trials underway? Bob...
TA I hear you. What do you think of Dr Friedman’s theory about what causes PCa I.e estradiol not Testosterone and that trt with AI is the best approach ? Bob...
Halbert The reason this zombie thread sprung to life is that I did a Friedman search here and this thread popped up. It’s a sad commentary that such comprehensive research has not initiated more...
Raif I read this book a while back and again yesterday and find it fascinating . Since my original post I’ve been through a lot as shown in my signature. I have bcr again and have booked a 68 Ga PSMA...
Keep up the annual posts. Congrats! Bob...
In that case he’s very lucky to have you and your background could be very helpful! 🤗...
Really difficult situation. Your relationship is very new and likely to be based to a large degree on infatuation and sexual attraction like any new relationship. Your guy guy will lose his libido...
GoBucks Go to https://www.cancer.gov/CTS.Print/Display?printid=6b159828-5379-e811-814a-0050568e168e and you'll find clinical trials for GA PSMA 68 scans. UCSF and MSKCC have trials for recurrent PCa...
My psa doubled to .33 from .16 in two months. I’m going off HT after 12 months and waiting for Psa to get to 2.0 for another axumin scan . My RO recommends xtandi and xofigo if bone mets are found...
Been here since 2013🤕!...
From another “former” Marine (65-71)and Gleason niner “ Semper Fi” brother ! Bob...
TA Why is that?...
Another thing I noted about using the rapid arc linac for SBRT was the incredible increase in cost per fraction compared to using that same machine for low dose IMRT and the fact that Medicare...
Not sure where you live but I know an RO who only treats Prostate cancer and has done it for decades to guys worldwide. Let me know if you’re interested. Bob...
Cyber knife is a type of SBRT. IMRT can also be given in high doses . I had SBRT to femur using the same machine which treats patients with low doses of IMRT. The RO told me the location of the tumor...
If the 2nd opinion agrees that you’re gl6 you have very low risk PCa and Active Surveillance is a real option for you. Don’t opt for unnecessary treatment ! Bob...
Lou I was told that it took ten years for my Gleason 9 to manifest itself in the form of doubling PSA in one year which precipitated a biopsy. So you don’t need to rush to make a decision. Best to...
Why isn’t the triple blockade prescribed? LGRH Agonist(lupron etc.) , antagonist (casodex) and AR5 receptor (avodart) Bob...
Sciatica can be extremely debilitating. It starts from lower back and runs down to ankle. It put me in a wheelchair. I had cortisone shot in spine which relieved it, and went through rehab to get...
Sons, grandkids, golf, Philadelphia Eagles, music, reading , watching Trump kick ass, staying out of my wife’s hair. Bob...
I’m no doc but if you google it you’ll find comparisons of 3dcrt with IMRT for sbrt to lungs. Obviously your RO should tell you his opinion. Bob...
Estradiol patches changed twice weekly do the trick! Bob...
I’ve been on Medicare plan G for part B and have Medicare part D through Silverscript. My plan B supplement is with Mutual of Omaha. I’ve had lots of treatments for PCa , the major ones listed below...
Or wine! Lol...
TA I get blood tests every six weeks while on ADT to monitor impact of ADT and supplements. Bob...
I had sbrt to femur met by Dr John Pablo at Lewis Cancer Center in Savannah GA . Mine was via IMRT but he also runs the cyber knife facility which is also used for high dose radiation. In addition, I...
TA I assume there’s no problem taking Vitamin D3 and calcium while on ADT particularly when fighting bone mets?...
I’m just another victim but I see no reason why propecia can’t be continued. Personally I’ve been on its cousin avodart as an adjunct to ADT ever since failed RP . I find your pathology curious in...
I had tenesmus toward the end of SRT by IMRT and addressed the bleeding with radio frequency ablation . Four years later I still have occasional bleeding . I use prescription strength hydrocortisone...
Five years after RP and other tx since then I still take three stool softeners each evening! Easy way to fix the problem. Bob...
You’re concern about the impact of ADT on your sex life is well founded. But the impact on cognition is very minor at least it’s been for me. But I’m retired and don’t manage anyone anymore. I’ve...
Last three PSA readings while on ADT3 and xgeva: Oct 17 <.1 ( not ultra sensitive) Jan 18 .175 April 18 .162 Not sure what to make of it but happy it stopped rising. I know it’s too low for a CT pet...
Explorer One positive is that your PCa volume appears to be low. I had the same situation; low volume has a better long term prognosis. RT is tedious and nine weeks implies a high total dosage. Just...
I had SBRT to metastatis in femur and Medicare picked up 100%. Bob...
Estradiol patches changed twice weekly control hot flashes. Ask your URO!! Bob...
Gator 76 Go back to living life and enjoy!! Bob...