Thanks, Sai Pan - I do not have an MO at this time....I asked my URO as well as my GP who is also following my situation and both opined I did not need an MO anytime soon..... Funny you should say...
Thanks for all the replies. They are very helpful. Yes, I have mets. 3 yrs after RP, PSA started going up again and went SRT/ADT. SRT is over, ADT for another 15 months (Firmagon). Mets were shown in...
Hi fellas, Been awhile since I posted, but have been keeping up. Since my last post, I finished by SRT and am currently getting a Firmagon shot every month. Have about another 15 to go before I'm...
Well, on my way in a few mins for SRT No. 6. Yesterday, got two Firmagon shots in the gut....not too bad but this morning have two welts about the size of golf balls on either side of my belly button...
Agh!!! I hate it when I get the days mixed up ! My first shot is Jan 3 - my bad. Can you imagine me with “Firmagon Haze”???? Thanks for the info on Firmagon versus Lupron - you guys are much...
You know I’m not sure about the number of machines but one would think more than one given this is a new hospital I’m going to. I’ll find out tho - I don’t like the idea of sitting on my thumbs...
Well, got off to a blazing start and then...…….. Started SRT Wednesday of this week and when I walked in Friday morning was told the machine was broke and everyone would be rescheduled as soon as it...
Thanks for all the support fellas! I'm ready to get started so it can be done with. I remember getting Da Vinci during the holiday period 2016 and darned if now I'm doing SRT/ADT during the holiday...
Hey fellas - got my tattoo's last week and begin SRT Dec 26th. 37 treatments ending on Feb 18. I also am scheduled for a Firmagon shot Jan 3 (might already have said that can't remember). I'm a...
Thanks for the info....have the first shot scheduled for Jan 3d. The person giving it is my URO's PA - I've dealt with her before and she seems very knowledgeable and experienced. That being said,...
Hello Guys - I know it's been awhile since my last post, but I've been going through all the drills. Had my PET scan - slight light up in a node on my right side, pelvic area, near bowel. My RO...
Thanks, Sky - appreciate your thoughts. Sorry to hear about the incontinence - I know all about that!. I have not been completely dry since my RP in Jan 2016......still have to wear a daily pad for...
Hooray - just got appt with Emory for November 27 PET Scan.....Keeping my fingers crossed and praying cancer has not spread outside pelvic region........
Thanks so much for the words of encouragement guys! I really thought I was through with all this but I should have known better....I mean I have the WORST luck of anyone I know....my wife won't even...
Hi fellas, Been awhile since I've been on here, but as a result of PSA rising again I am back. Some of you will remember that post radical surgery my PSA started rising after about 24 months. When it...
Thanks everyone for all the insight. Am anxiously awaiting call back from Emory RO....
Thanks so much for the information. I just sent in an online request for an appt with the RO. Will keep you posted on results....
Thanks for the advice fellas - I'm going to go ahead and see if I can get a consult with the RO I've researched. Pratoman, you mentioned the slides...I'm assuming you mean the slides pathology looked...
Diagnosed 12/15 after three PSA's of 7.4 Preop biopsy - 12 cores: 2=90% 1=35% 1=10% 1=30% 1=20% Remainder benign All cores rated Gleason 6 (3+3) except 1 90% core which was Gleason 7 (4+3) Post Op...
Hello All - have not been posting on the forum for a few months but have kept up. For the past six months or so, I have been having my routine PSA tests and it appears my PSA is once again rising. It...
Hey Fellas, Haven't been able to provide any follow up on this as I've been fighting the system for weeks. Long story short, I insisted my Uro give me another PSA and that it be sent to Lab Corps...
Understood. My problem is that it was always <.1 but now is .1 (the "less than" symbol not present in the lab test results). Discussed with my URO last night and he advises he no longer requests uPSA...
Checked with the lab - kind of a lame response from them. When I asked why all of my post op PSA tests had been run by Labcorp (Roche) and now all of a sudden I have one run by Quest (Beckman...
Thank you everyone for your valuable input! I really appreciate it! Lovit - you have kind of described the situation I'm in. Post Op, I had five PSA tests (non ultra sensitive) through my URO and GP...
It's been about two years since I posted, but have been on and reading. It seems now I'm back given recent developments. I've tried to put all pertinent info in my signature but if something's...
Well, made some decisions that last couple of days. URO advises with the upgraded biopsy results from Bostwick, he can no longer recommend AS. So, after much thought/research/conversations with both...
Well, everyone's advice on sending the slides in for a second opinion is exactly right!!! Listen to this horror story........ If you look back a couple of posts you'll see the results of my biopsy...
Thanks everyone! I met with my URO for three hours yesterday. He has diagnosed T1c as the stage of the cancer and places me in the low risk category. He told me if I wanted to try AS, he would work...
Paul, thanks so much for the advice. I just completed inquiries into both Dr. Epstein and Bostwick Labs on how to start the process of securing a second opinion. I did not realize it was so...
Hello All - Well, I've got the biopsy results and am inserting them at the bottom of this post. I have an appt this afternoon to sit down with the URO and "discuss options". He will make no...
Hello again my friends! Has been awhile since I posted; however, have been monitoring the site and waiting for my biopsy appt. It is this coming Monday so I should know some results shortly...
Sorry about that Tudpock - still getting used to the way it works. Thanks for the help!...
Thanks, everyone - you have made me much less anxious about the whole deal. Gotta laugh about the proponol tho - Michael Jackson would disagree with you! The wheel is rolling - ultrasound tomorrow...
Hi Suz! Yes, I'm having an ultrasound tomorrow afternoon. According to doctor, they hope to see areas of the prostate that they will be able to key in on during upcoming biopsy. I bet an MRI is...
Thanks again, everyone for your thoughts and advice. I just returned from the URO and already a bit of misinformation was given to me by the doctor, but I think it just may have been a typo in the e...
Thanks so much for the replies - my PSA actually was 11.1 on the first test, but went down to 7.5 on the second, third and fourth tests. Then, of course, the free PSA test results of 11% were not...
Hello All, Found this site several weeks ago after learning my PSA was 7.5 (after three blood tests about six weeks apart it never went any lower). I am 62 years old and in good health as far as I...