Since my last update: In May-June 2015 I had 33 treatments IMRT. Starting in September I had a severe reaction to the IMRT and felt like I 'aged 10 years in one week'. I was put on Zolodex injections...
Thank you, Cyclone. I'm glad the Zolodex is working better for you....
I hav been on ADT for a while now. Seeing my PSA at 0 for 2.5 years is a very nice feeling. The ADT has not been so bad for me, and I'll probably continue it. Good luck to you, whatever you decide...
A PSA of 0 is always a great sign! Just relax and enjoy life, one day at a time....
Congratulations. That's great. I'm at 2.5 yrs undetectable, but still on Zolodex. I have a decision to make with my doctor next month about continuing it. Blood test first. Are you testing every 6...
I started Zolodex in July 2014, and have had PSA of "0" for 2 years now. I was getting a stable 2-3 hot flashes per day. Recently, in the last 2 months I have been getting many more per day, perhaps...
Yes, I am still here, still coping poorly with the loss of my young friend. My prostate cancer treatment is succeeding, but side issues have kept me down (run over by a van on my bike). I am feeling...
JNF, Thank you. Good luck to you. It's nice to see you are so active in your approach. Mutation is almost always fatal to cells. Other mutations are benign. It is rare that mutation produce...
Hello all I was originally diagnosed with locally advanced prostate cancer in late 2012. Originally, the biopsy showed Gleason 5+4 in all 12 cores taken, later downgraded to 4+3. I was put onto...
Dear Houstonhopeful & Straydog Sadly, none of my friends nor I have heard from our young friend in almost a year now. We are very, very worried for her. We can only surmise that her new life with...
I have a young female colleague who is only 26. Her PN started about 2 years ago (2014), after she moved from Texas to Rhode Island. It steadily got worse, and she was repeatedly tested, with a...
Wow, very interesting. And yes, the hip pain started after the IMRT 33 treatments. The docs said the radiation would not cause the hip pain, but I am not convinced....
Wow, great feedback Gearloose. The docs ask me about the worst symptoms; it's always the Insomnia, although my hips ache in bed at night pretty bad now. I will try your methods and see what happens....
Yes. Same effects you see. Arthtitis-like pain in most joints, especially hips. Fatigue, hot flashes, short term memory impairment. Insomnia is brutal. Only zopiclone works and you need more and more...
First of all, good luck. Second, out of the blue, I have read that Casodex Bicalutamide eventually fails, but can work again when combined with Chloroquin (in vitro) which is very common and safely...
What I want to know is how I poop more than I eat, eat half as much as before cancer, and still gain weight?...
I had 33 IMRT at Royal Marsden in Sutton during May-June 2015. It did not seem too bad. However, in late September to October 2015, I began to feel like I had been hit by a truck. I feel I aged 10...
InTheShop Thank you.. The advice here is great. Yes, the naproxen is working well. I also have sold my "man's" electric bike and bought a "step through" so I can avoid swinging my leg over the saddle...
Alf, thanks. The naproxen recommended by Tall Allen is working mostly, except when I twist my body around without thinking sometimes....
Sorry? You are saying that hip joints are immune to x-rays?...
Ah, Thank you for the Naproxen recommendation. I will start it....
Yes, they help but I don't want to become dependent on them, especially NSAIDs or morphine-based....
The radiotherapist consultant told me that because my X-ray treatments went through left and right hips into prostate bed, that this can cause inflammation in the joints. My GP did not know, so I...
.... And 3-4 months later my hip joints are aching more everyday. Anyone have any experience with this?...
It's Saturday morning here, and I have less nausea now... Some tenderness. I have been walking a lot more, but the ADT makes me very tired. Thanks for your support!...
Thank you all. Very helpful. We will see what happens. I will be walking more....
Yes, I go one hour early, pee, then drink 2 glasses of water....
Browntrout, wow. I had trouble walking to and from the bus today. Thanks though, and I will start walking Friday....
I told them today. They said it was unusual until after the second week. They will watch it. We will see Friday morning when I wake up if it is worse :(...
I had my first IMRT on Wednesday (of 33 planned). I felt mostly fine until I woke up Thursday morning with some nausea and weakness. Mild nausea continues tonight (Thursday evening). I am told this...
Thanks, I will remember that. Two hours per day of sitting on a moving bus worries me a lot....
Thanks. I see in another forum that they can use Fentanyl patches... Not sure how many of you had that need......
I will start IMRT x 33 treatments, 5 days a week at end of March 2015 I am worried as the bus trip is about one hour each way. Advice please?...
Thanks Luv! I really appreciate it....
The TMPRSS2 protease promotes prostate cancer metastasis Very technical, but interesting....
Maybe the copper-boosted path will lead to something good....
Thanks. Maybe the copper-boosted treatment will work....
Copper May Be Prostate Cancer’s Fatal Flaw ...
No fibro, but I do have cataracts. Is there a sub-forum where I should be posting?...
I am getting Goserelin injections once every 28 days, and take 150mg of irbesartan for blood pressure every day. Since starting the Goserelin 4 months ago, I have had serious insomnia, and one of my...
Thanks My current is Zolodex....
Thanks JNF. Doing research here before I speak with him. Nice to know "what to ask" first....
Goserelin: 1-month versus 3-month injections I am on the monthly injections now. Right now my side-effects are: 1. fatigue 2. headaches sometimes 3. sometimes aching joints 4. sleeplessness 5. loss...
You might want to keep an eye on Chloroquine with Bicalutamide. Experimental so far, but worth watching. Nature.com ScienceDaily.com 1 ScienceDaily.com 2 NIH.gov Good luck...
here ...
I have had lots of bladder & urethra problems, and continence is down again. Doc wants me to get better bladder control back, plus I think August is silly season for vacations etc. I will be getting...
Being started on Goserelin 3.6mg or Leuprorelin 3.75mg injections; Radiation delayed 6 months Advice please!...
kSargent Thanks, and good luck to you!...
Thanks, Peter. I was on Casodex for 7 months and found almost no side effects for me at all. Some breast growth, but in an overweight, 60 year-old man, it's hard to tell, honestly....
Not keen on losing libido, bone mass, hot flashes, etc I had DaVinci surgery Nov 2013, PSA Feb 2014 = 0.24, then April = 0.33 Advice please....