I'd say it's well past experimental and in the realm of proven treatments. It showed clear benefit in a gold standard ph 3 study. My doctors at Dana Farber / Harvard Med are seeing great results and...
Steve I really appreciate your updates. It made me more confident going through my first round of Pluvicto this year (PSA 57 to 5), and continues to give me hope that another round (next year?) will...
I am planning to be there... See you soon!...
Reese and Will I see you are getting great support from Cyclone et al, and are making good progress with early taxotere and soon abiraterone. That's great to see those treatments getting used early...
I seem to remember that a weak man in Germany was called a "Sitzpinkler" but now they all do it?...
Congrats my friend... And thank you for all of the support over the years....
Just wanted to check in and celebrate a little bit with friends. It's been a little over 10 years since I was diagnosed, and everyday is a bonus day. I've been so thankful throughout this journey for...
Also a Boston brother. My MO is Bubley and RO is Kaplan at Beth Israel / Dana Farber both specialize in PCa at a high level. They've been very helpful and coordinate well together. DM me if you need...
I looked at it closely and talked to a couple of doctors about it. I felt that it carried a higher risk for male plumbing problems versus unclear rewards. In retrospect I made a good decision for my...
Sonny was a big force in the early days of GFMPH... He'll be missed. May the road rise to meet you and GFMPH brothers great you on the other side. Peace and love. Ray...
I can't tell you what to do... That depends on your personal situation. I am a strong believer in having a great team in your corner when you're fighting this battle. There are different approaches...
Um... Novartis is a Swiss company that developed this breakthrough drug and patented it. They have a large presence in the USA which is their biggest market and they manufacture here and elsewhere...
It appears that the plant is back in production for Pluvicto (Lu-177)... My doctor told me that they were getting product for trials starting a couple of weeks ago. Of course it will take a bit of...
Oh yeah. This is on my calendar. Looking forward to seeing you all....
I'm pretty upset to lose Gunner. Although we only met briefly at a GFMPH, we were clearly brothers in arms and have kept in contact. He was younger than me, and so brave and true. Live long and...
Jerry: It's been an interesting 8 years for sure. Glad to have shared the journey with you ... and hoping for many more....
Hi ... incurable/curable isn't really a useful construct. As JNF and Djin kindly have pointed out there are always specifics to each of our circumstances and paths to choose. As you are just...
I'm encouraged by Gunner's post to provide mine as well. My path is a mere speed bump compared to his, but I know these stories helped me 8 1/2 years ago. My signature has most of the back history...
Gunner! Great to hear that you overcame the hills and speed bumps of this past year once again! I llok forward to catching up when we can. SteelGuy...
Dick was always welcoming with a booming voice, a quick smile, and a bear hug. I'm lucky to have known him. And I wish him well on the final journey home... RIP...
Amen. He was a great one...
Good to hear from you; miss you sir. Still hanging in here as well... Keeping an eye out for the next newest shiny treatment while I keep bobbing and weaving on the lupron/zytiga dance....
Mack Roach is one of the best IMHO. I had one consult with him and it dramatically improved my treatment plan and life......
Jeff and WG Thanks so much for reaching out to 142 and letting us know. I'm going to tip a glass of scotch to go with the prayers...
Great to hear from you Bryan! Always impressed with your attitude and determination. So glad you get to enjoy your life with family. Talk to you soon....
Jeff: I'll be there Friday & Saturday ... flying solo this time. Regards!...
Count me in... I miss y'all...
Talk to my guy, Irving Kaplan at Beth Israel he's one of the top radiation guys in town and can give you all the options from that vantage point. It's best to get the point of view from each...
Sonny: Good to hear about your journey and I'll second everything JNF said instead of trying to come up with other ways to say it ... You continue to be an inspiration by just doing what you do and...
Gunner ... I'm with you ... This is a tough hike we're on and now and then it really hits home. We lose someone to the disease and get a 'glimpse over the edge' that's completely unsettling, then...
Scott... Please hear me clearly. Any doctor that's telling you that you are a rare case is full of fear and hasn't seen much of the world. When my PSA gets rolling it doubles every three weeks......
Great news Jerry ... keep on keeping on!...
Scott: Welcome youngster to the club. As you'll see in my signature I was in a similar spot when I was 49, 6 years ago. I was introduced to this assortment of characters and have made many friends...
Jeff ... Thanks for letting us know. I befriended Jim over the 4 GFMPH events I made it to. Always happy and chatting; and we spent a good deal of time eating and drinking together as well. I trust...
Gunner ... Hey, glad to hear your progress through the most recent hurdles are showing benefit. I think of you often; I know we missed each other on the phone this summer and you weren't able to...
Thommy: This is a great group, and we'll support you however you need. Many of us remember the shock of similar discussions with doctors. Know that in your case, it'll probably take more than one...
@ISU Thank you always ... without any T I'm hardly the commanding general type; I can't even get my kids to listen to me! But yes, I am getting a plan and hiring good people to put in into play. And...
Well they found a couple of enemy holdouts: First, there are two small spots on my ribs that look like they started at hairline fracture points. (Forward Operating Bases) Second, there is...
I'm working through some of the same issues now, maybe a few weeks ahead of you. Recently had a C11-Acetate scan and an NaF18 scan done in Arizona. Dr A found two issues: a couple of small spots on...
thanks all ISU: I agree plenty of tools, once we find out what we're dealing with. Dr Sholz told me not to get ahead of the facts and start working up a sweat and sharpening a specific one yet though...
rf ... Correct, I didn't do surgery, so I still have a prostate. So yes, some of the PSA i'm seeing is the 'normal' PSA since my walnut is still present for duty. My dr however put a PSA limit of 1.0...
Haven't been around for a bit, but keep an eye out on how y'all are doing. I've been on a vacation from HT since last August; but it appears that's ending shortly. I'm off to AZ to get PET scans...
Great, I have to follow ISU http://www.healingwell.com/community/emoticons/cool.gif I too have been on the path for a while (four years now). Lots of life to enjoy and I chose to find the best care I...
Gunner: Awesome! I smiled all day when I read this on my phone yesterday ... Wife and I will break open a good bottle of red and toast you tonight! Ray...
Welcome to the forum ... I see you've gotten a lot of good advice from our group, so I won't repeat it. One thing that helped me get through the 3rd year of Lupron/ADT was a cocktail my psychiatrist...
Sonny: Good luck and blessings on this round in the cage match that is our lives ... I'm over a year out and I've blocked out a lot of what it was like ... and everyone has covered it quite well. A...
Jerry!! Awesome to hear that ... looking forward to many other good reports. Ray PS You'd asked me a question once on the forum, and I emailed you, but it didn't go through ... shoot me an email if...
Great to see good friends and all posting good numbers ... This month is a big test for me ... I came off of Lupron last August (I'm not calling it a 'vacation'), and we're getting to see how the...
Tall Allen ... Thanks for the update ... good to see the advances being made Ray...
Worried... vent away. We understand living with Lupron really messes with our 'brain chemisty' and mood ... There's lots to do, which i'm sure you're researching. If you need to know more from one...