Thanks I looked over all my notes from Virginia Mason and dr Corman notes too. My CT and MRI plus pet scan all were negative for any spreading. I forgot I had access to them. I meet with dr Hsi in...
Thanks Andrew and Peter. Have a great day! BrianTinsley.com...
I got this reply from a very prestigious doctor, https://www.firstdaytoncyberknife.com/dr-hughes/ I was always under the impression that BCR was 0.02, but according to the other sources it seems to...
Roche ECLIA Methodology: According to AUS, the serum PS should decrease and remain undetectable after a RP. The AUA defines biochemical recurrence as an initial value PSA Value of 0.200 ng/mL or...
Update with me. I believe in God period. With that said, as many if you know I have been freaking out about my two year psa test coming back at 0.014. My plan was to see dr Yu at SCCA and then gr...
not sure, but just got this link: https://prostatecancerinfolink.net/2018/08/20/early-data-from-the-props-imaging-trial-prior-to-srt/ Brian...
Is this the Tall Allen from the HealthUnlocked? If so, high again! Yah.. sounds like the CyberKnife is not the route in my case, rather IMRT per several renowned doctors. But.. hoping I don't need it...
I cancelled my dr Lu. I did correspond with him on email and he looked at my pathology report and said “ pretty decent “ and nothing until 0.03. Keep in touch [email protected] thx...
I was not thinking of going to Dayton Ohio, rather I was just searching Google on the CyberKnife technology. I stumbled across this doctor/site and emailed them my situation. The doctor was kind of...
I ended up thinking that the "CyberKnife" might be a good route if needed. So, I reached out to one of the experts and sent him my pathology report as well as my psa history: I am really relieved...
Hi I live in Everett Washington and work for Comcast. I am married 24 years and have a daughter (UW) who is 24 and my son who is 19 and a COUG and is in his 2nd year at WSU. On 8/22 it will be 15...
I have decided to go back to my surgeons recommendation (James Porter at Swedish) and that is to Jim's advice to basically chill out and come back in 2 months for another PSA. And I also think I...
Fiddle cano I had negative margins not on test showed anything getting out here f Prostate or seminal or in the 24 lymph nodes God Bless Brian Ps I am going to stick with Swedish and dr porter and dr...
Hi Three 5's and a Jack.... I was referred to Swedish Stephen M. Eulau, M.D. I believe and know he works with Dr. Meier. I know that Dr. Porter spoke highly of him and that's why Dr. Porter referred...
Thanks Pratoman.. very good advice, that is my plan. My gut is telling me to get under the wings of Virginia Mason' care and then go to a monthly PSA regimen until told to get further treatment or to...
Thanks Jim... all the best to you as well. Best! Brian...
I have decided that based on my last PSA score of: ID Date PSA Score Location of Test Comments 1 10/12/2016 Thoughts? Best!...
I got a voicemail from the Swedish Cancer Care Radiation Oncology department. They want me to schedule and appointment because basically my Urologist wanted to get me out of his hair as I was raising...
https://prostatecancerinfolink.net/2018/08/16/salvage-radiation-dose-decision-making-under-uncertainty/ Interesting article. Brian...
You guys are great.. Here's my question. I got my pathology report and I had my RP, plus lymph node dissection (12) each side, plus left nerve spared. All reports showed nothing in the lymph nodes,...
I signed up for LabCorp to see my test results. If what this says IS true, my PSA is still very low: PSA, Ultrasensitive W/O Serial PSA, Ultrasensitive 0.014 ng/mL 0.000 - 4.000 01 Roche ECLIA...
Thanks Andrew... I like the line :Swing your head forward and watch the road in front of you. It makes a lot of sense. My question is if I do require some type of radiation, I am curious if Proton...
Gosh....... I hate the internet! Now I stumbled across this site, https://prostatecancerfree.org/prostate-cancer-patients/ and from the results of this site, I think I made the wrong choice with...
Hi has anyone looked at Proton therapy after their psa started creeping up after a RP? I am curious why you chose it? Thx...
Exactly and confirmed by one of Seattle's Top Oncologist: "I never recommend radiation at a level that low because our lowest limit of detection is 0.03. This may well be nothing to worry about. "...
https://www.dana-farber.org/newsroom/news-releases/2018/non-coding-dna-reveals-a-route-by-which-advanced-prostate-cancer-resists-treatment/ I found this article very interesting as it kind of...
I put all my results together since my surgery 2 years ago come 8/27/16: ID Date PSA Score Location of Test Comments 1 10/12/2016 <0.015 Dr. Porters Office Lab Corp 2 2/2/2018 0.009 Dr. Porters...
Ok I will chill out and try to come at this more even keel...
Part of me is angry that my first two tests showed the <0.015 and then my next one at 0.008 and my last at 0.014. I signed up for the Lab Corp website and the first 2 tests show in the grey area...
I have an appointment with Dr. Yu at the SSCA here in Seattle on the 28th of Aug. I just want another set of eyes watching over me and a second opinion. :) Brian...
Thanks for comments. I appreciate it! I TRULY do! I am going to wait the 3 months as well as get a second opinion from the gal at SCCA. I am not going to panic. I am used to living in 6 month...
I think I am going to take matters into my own hands, been doing a lot of research and I think I am going to the SCCA and see : https://www.seattlecca.org/physicians/celestia-s-higano as she seems to...
After freaking out since my last result of 0.014, from what I read, this is the lowest detectable amount of PSA the machines can detect. At 2 years, from a Gleason 9 and 3 of my 12 cores testing...
Thanks Halbert.... I am already coming up on my 15 year anniversary from surviving my aortic dissection, it will be 15 years.(8/22) It's a miracle that I have made it this far especially surviving...
Thanks Halbert. It's 2 years on 8/27 since my RP and lymph node dissection and left nerve spared. My question is my original reading: PSA, Ultrasensitive <0.015 ng/mL 0.000-4.000 vPSA, Ultrasensitive...
Update to my 2 PSA tests after my first one after surgery and just before the one yesterday: Hi Brian, PSA is stable 0.008. This is again very low and stable from 0.009 last time. Take care, Michi...
I just had my appointment with Dr. James Porter's assistant Mitchi (sp) and originally it was to try an injection of one of the trimix , started with an A I believe. I got the shot and a slight, ever...
Well, the good news is that I just go my PSA results. It will be 2 years come 8/25/18 and this is my 4th PSA test results: Hi Brian, PSA is stable 0.008. This is again very low and stable from 0.009...
I am curious, perhaps in another section? The P Shot and now the Gainswave techniques? I am curious if those two options would actually work for someone with only one side of his nerves left after my...
I got a new one off ebay for $100.00 OSBON ESTEEM ERECAID SYSTEM BATTERY MODEL VACUUM PENIS PUMP Going to see what happens LOL :)...
Thanks Old Beek.. Appreciate it. Brian...
I think I am going to try the Vac Pump... after reading and reading, granted it's been 1.5 years, I still am hopeful. Also, I only have 1 side of nerves spared. Thanks to all :)...
Thanks for the comments.. At this time, I am really trying to see if this P shot might be the answer vs Viagra or pumps. But....open to something that might work. With only one nerve, seems like it...
Thanks for the reply. Looking at the Osbon Erecaid Esteem Manual Vacuum on ebay for a try. :) The P Shot... Is that applicable to RP patients? Thanks!...
Now I got someone wanting me to try the Obson Esteem manual device for $250.00! Yikes!...
Hi Friends, I have a question, I have given up on Viagra and generic Viagra, I am 2 years now after my RP surgery and sparing my left nerve w/lymph node dissection. I can NOT have a full erection yet...
Hi.. I got a call from my Urologist and they said the same thing that the LabCorp changed the way that they are now reporting their numbers. So, I was a little re leaved and feel better. But this...
I am 18 months post surgery. After reading this post and just having my PSA checked for the 3rd time post RP w./lymph node dissection, my latest test came back at: After reading this I though the lab...
Thanks Forum Moderator, much appreciated. Very much. Good Day to all. BST...
Thanks to all the responding folks. I TRULY appreciate it. I am 55 years of age and already have to deal with my AorticDissection issues, got a CT/Angio on 2/14 and hoping my aorta has stayed the...