Good advice from JNF. I'll add (or agree with) the fact that a higher-precision scan (Axumin, Ga68) could help determine the type of SRT you receive - prostate bed only or whole pelvis. The test...
One Clemson grad here....
I can relate. I'm 18 months past a 6 month Lupron course and my last T level was 147. Six months earlier it was 149. My T level prior to surgery was on the low side at 298. The Mulhall video is...
I met someone receiving SRT at the same time as me that was G6, PSA of 0.5, and had positive margins. The RO explained that someone with his pathology had a low chance of becoming metastatic (due to...
Your surgeon is recommending radiation therapy due to your bladder neck invasion, SVI, and positive margins. He did not expect this (his comment on 5% chance), thus the request to have scans and...
Correction to note/typo above: T3a – Penetration of prostate capsule on one or both sides T3b – Invasion into the seminal vesicle The NCCN guidelines may provide some guidance for treatment options....
My RO originally planned 66 Gy for SRT. I asked him to increase the dose based on this info, which links to a paper: https://pcnrv.blogspot.com/search?q=SRT+gy The RO had 25 years of experience but...
It will be interesting to see what level of T is needed for the hot flashes to stop. My hot flashes returned this summer with a vengeance after subsiding somewhat this past winter. It's been 22...
Is your RO planning prostate bed SRT, or whole pelvis SRT? A scan could help make that decision and is useful since you're still seeking a curative response. I chose a prostate bed only SRT based on...
I've participated in 2 clinical trials. In the first, all expenses were covered, and I even received a minor payment for travel. In the second, all treatment that was considered part of standard care...
Seeking advice/opinions on when to start HT after salvage radiation therapy (SRT) failure. I've read opinions that vary widely. I realize post-SRT treatment options can depend on PSADT, life...
Thanks for the reply. I am grateful that my PSA is finally undetectable, but know I need to continuing monitoring. HT really wiped me out, and I feel like I lost part of this year due to fatigue and...
I am 9 months post SRT and 6 months post HT. Testosterone is still lagging (140 yesterday), but PSA level is holding at <0.01. Ready to change my focus away from PCa - it's been too easy to be...
Try GoodRx. It shows you where you can get a prescription filled locally, without insurance. The cost can be low for some prescriptions. It's free to use. Post Edit - GoodRx is not a good deal for...
I'm a fan of the ultra-sensitive test post surgery, but agree that post SRT it could cause unnecessary anxiety, and the results aren't actionable in any case. I'm in the same boat, and am not...
I also received PROSTVAC-V/F through a clinical trial in 2016 (study NCT02772562). The nurse that administered my injections had been part of an early PROSTVAC-V/F trial, of which several patients...
I had similar concerns as you, and chose 1 month ADT shots so I could discontinue treatment if the side affects were not tolerable. You should also consider the time it takes for your PSA to recover...
I participated in Movember a few years back. My facial hair grows fast, and I was very proud of my new mustache. In December when I shaved, my daughter and her friends were relieved, and told me my...
Still working full time, 7 or 8 years to go. I have to really give it to the guys who work full time and are on HT. Working while on Lupron has been very challenging due to fatigue and brain fog. All...
The article pasayten referenced contains good information about the presence of Terchiary 5 cells for G7 patients, and matches what my surgeon/MO/RO have told me....
It's really just to satisfy my curiosity....
My initial biopsy listed tumor grade and Gleason score for each of 12 cores tested. My post-surgery pathology only listed an overall Gleason score (3 + 4 + Terchiary 5). I had SVI and EPE, and am...
SBRT at Duke: https://radonc.duke.edu/patient-care/treating-your-cancer/treatment-options/stereotatic-treatments-0...
Larry, Yes, it did feel great to ring it. Although I was fortunate not to have SEs during treatment, SRT was still an endurance test of sorts. Now if I can only get through ADT. Thanks for all of the...
Rang the bell on SRT today. Feeling very fortunate that the experience was a non-event for me....
Currently 29 SRT treatments down, 6 to go. Relatively free of side effects except for fatigue from ADT, but another SE has been an issue lately. We've had several warm spells lately, and I have hot...
I have serious Lupron brain fog, so forgive me if I'm repeating something from previous posts... If the biopsy is performed at Duke I'd suggest visiting their multi-disciplinary clinic. You get to...
I've seen comments in the past questioning the accuracy (and consistency) of uPSA testing. I had my PSA tested 12 times in 2016, due to being in a clinical trial. I also had it tested every 3 months...
Regarding Lupron, the first month was not bad. The second month saw increasing fatigue. The third (current) month the fatigue has gotten worse and brain fog is increasing. Weekends are fine, since I...
Eaton for Urology/Surgery at the Duke Raleigh campus. I started out there and have stayed there. In hindsight, I may have picked somewhere else....
I too live in Cary, and been treated at DUMC for the past 2 years....
Add me to the list too. First radiation treatment this morning. Started Lupron 8 weeks ago....
Good to hear other's experience with Lupron. I'm only on my second month but have experienced a high level of fatigue. It's a real struggle to make it through a day at work....