Hi Everyone, I haven't been on this forum for a while, but thought I would pop in to share my husband's PSA chart for those of you who may be going through some bounces. It has been a super bouncy...
Thank you so much for the replies. I really do appreciate it. I've learned to live with the bounces, so this is reassuring! Again, thanks for taking the time to respond. :)...
Happy New Years to All! I don't post too much on the forum these days, as my husband was treated with HDR brachy mono in 2015. Here is a graph of his PSA over the years (my signature doesn't list...
Hi Frostypro, My husband had hdr at UCLA, and it has been a really bouncy ride (see signature below). I understand the anxiety, for sure, but it really can be a bounce. Have you talked with Dr. King...
Fantastic news!!!...
Thanks all! Feeling really grateful. My best to everyone who has or who is getting ready to embark on this journey. Thanks TA! Yours, Mary...
Thanks all! Feeling happy today! Jack, you asked about the side effects. They have been pretty minimal. Of course, I say this as a partner, not the person treated. But from the partner's perspective,...
Dear Forum, Today we got the read for my partner's PSA post 3-hears HDR. The lowest yet!! It's been quite a bumpy ride here (as the signature shows), but I'm feeling so happy I had to share. I also...
Hello All, I'm sorry to be late in posting to the forum -- traveling these days. My husband had HDR mono at UCLA. The procedure itself was okay -- not really too many side-effects to speak of. Now,...
Nice!!!...
Hi Stray, I'm sorry you didn't the numbers that you wanted, but these are some stats that are really treatable! My husband had some numbers very similar to your numbers. He ended up going with HDR...
Hi All, It's so great to read this thread, and great news vision10! My partner has been bounding around quite a bit since he was treated almost 3 years ago, but never at nadir+2 (though really close...
Hi Allen! Actually, I'm feeling pretty damn good about it. :) I was steeling myself for another looong bounce, so seeing it come down some is a great feeling! Eyes on the prize and in it for the long...
Hello All, I'm just posting the bouncy journey of my partner who had HDR mono (UCLA) in 2015 (June). I'm putting this out there for any comments/insights and for those who might be bouncing and are...
Dear Jim, You just answered my query! Perfect! Happy holidays to you and all! My best, mbo...
Hello Everyone, A little off topic, but I'm wondering if folks here can chime in with names of good organizations that deal with PC for charitable contributions? A focus on patient help, research,...
Thanks so much for these encouraging responses. I really do appreciate it so much. I'm keeping the faith! He has a phone conversation scheduled with UCLA on Monday. I'll post what we learn in case it...
Hi TA, Thanks for your response! I would love to go forth with something like this just for peace of mind. John hasn't yet talked with Demanes. He's rather difficult to reach sometimes. Any...
Sorry -- to add -- he was 3+4 in two cores, total of 8/20 cores positive. The rest were 3+3....
Hi All, Just reaching out for some reassurance -- again! Here are my partner's PSAs after having HDR mono at UCLA. Pretreatment around the 6-7 range. Treatment 6/2015 9/22/15 - 1.96 12/30/15 - 2.19...
Fantastic!...
Fantastic Dewayne. Really happy to see those numbers. Mary...
That is terrific GDS! Congratulations on your positive report!...
That's wonderful news! Congratulations! -Partner to an HDR guy, Mary...
Thanks so much everyone. You're all the best. Although I'm typically pretty quiet on the forum, I listen and learn from you all every day. Thank you so much. And TA, thank you so so much for...
Hi All, I'm a regular here, though mainly a reader and a learner. Just had to share some super good news. My husband had HDR monotherapy in June 2015. We were getting seriously concerned about his...
So very sorry to learn of this. I have always appreciate his wisdom and spirit of sharing. My thoughts for peace are with his family and all who knew him. Mary...
Hey TA., I think I'm thinking of an OR on the basis of what people are suggesting on this thread. It seems so helpless to just sit around and do nothing, but I guess that's what we signed up for. In...
Hi Allen, Thank you. Dr. King was reassuring, and we are still waiting to hear back from Demanes at UCLA regarding his take on this. In the meantime, I've been looking around at oncologists we might...
Hello All, For those of you interested in this thread, I thought I would share a note I got from Christopher King (UCLA). Throughout this process he has been incredibly helpful and informative, and...
Hello All, Thank you for your input. Yea, disconcerting it is. In looking for optimism here, I see that many people talk about bounces that last for 9 months. I'm not sure what that would mean...
Hello All, and Happy New year! I'm writing to see what you would suggest in this situation. My husband (age 58) had HDR-mono about 18 months ago at UCLA with Kumrava. He was a 3+4, with his PSA...
:) You are awesome, as everyone knows. From all the way across the country, the news of the fires there sound scary. Please take care, Allen. Yours, mbo...
Hi Allen, Thanks!! Yea, it has been a drop, thank god. Can you tell me, does the fact that it has come down at least some speak against recurrence? In other words, would recurrence not be a steady...
Hi Everyone, I posted before asking folks their thoughts about a bounce. We got the latest PSA, and it is down from the last time. Here's the history: HDR mono at UCLA in June. PSA 3 months: 1.98 PSA...
Thanks All, Allen, I don't think he had a history of prostititis, but I don't know for sure. I'm not going to let myself getting sucked into obsessing though (Allen, I'm sure that makes you laugh!)....
Hi JNF, Yea, this worries me, of course. But I'll paste this abstract below that is giving me some comfort. I know tons of people have weathered through bounces. Send good vibes, please. Yours, Mary...
Hi All, I don't post much on here, but follow along often. Advice would be appreciated. The long and short. My husband was 3+4, about 40% cores positive, two at G7. Variable PSA pre-treatment,...
Hi All, Dcd, you asked about J's follow-up. Really, it's been almost nothing so far. He had a phone consult with Kamrava about a week after we returned home. He will see a local urologist and get a...
Hi Allen, Honestly, Kamrava didn't give a rationale, and we didn't know enough to ask him that question. The main question that we asked him was whether he should have the 6-fraction protocol or the...
Hi All, Hi Alan! J just had two fractions, each at 13.5 Gy (pretty sure about that Gy). We asked Kamrava about more fractions, and he said they're able to get similar outcomes with this (as compared...
Hi dcd and everyone, Just popping in here with a quick note, as my partner just had HDR with Kamrava in June -- two fractions a week apart. Here is his thread if you're interested. I'm sure he would...
Hi Suz, Honestly, doing the HDR over SBRT was more of a gut thing than anything else. It was an extremely close call. We did see a person at Georgetown about SBRT, and we liked him very much. There...
Hi Suz, I totally understand trying to weigh all the options. It can be overwhelming, can't it? My husband had HDR at UCLA in June. This was after reading tons and tons of research and consulting...
Hi all, Sometimes I see folks bring up the idea of diet here, so I thought I would throw this out there in case anyone is interested. It's about sulforaphane -- a chemical found in cruciferous...
Hi Dieselman, My partner told me that he responded, so I hope it's helpful. If you (or anyone else, really) ever want to talk, though, drop me a note and I'm happy to. It was such a stressful thing,...
Hello All, As John's partner, I send my deep thanks to all of you. And especially you, Allen. You are awesome, and it's great to have the chance to get to know you. Thank you. I wish everyone all the...
Hi There, TY! I noticed this, too. My husband's yet-to-be-treated PCa is here, with treatment looming. His mom had breast cancer, as did her mother. How many other guys on here have breast and/or...
You guys are awesome. Did you know that? I hope so! There's one very worried wife here who is deeply indebted. Again, you are the most awesome. TY! Yours, mbo...
Hi Bigmac, Thank you for your response. With suspicion for ece, I'm just so scared!!!!! Warmly, Mary...