Nccajun - thanks for the Emory recommendation. I consulted with Emory for HDR treatment for my PC, before deciding to use a more experienced center that specialized in HDR. I have friends that have...
JNF - thanks for your feedback, he is in the Atlanta area. Can you confirm you meant Indiana University Medical Center? Also wanted to thank you again for your help back in 2018. Regards Mike...
Nccajun - thanks for the information- regards Mike...
Cyclone - I spent the first four years of my life in Ames, my father was a graduate of Iowa State. Thanks for the advice and the information on your doctor. Congratulations on your 10 years of...
Nccajun ~ wow that is a great story! Congratulations on being your own advocates and getting a second opinion. What MD Anderson location did you use? Thanks Mike...
Thanks, for the quick responses. He was unaware he had Prostate Cancer and had no previous treatment for PC. He was originally diagnosed last week with STAGE 4 Bladder Cancer that spread to the...
I have a friend who was recently diagnosed with aggressive prostate cancer that has spread to the bladder. I was wondering if anyone on the forum had experience with this diagnosis and could...
I have been taking a break from the forum for the last three months. After 8 months focused on research and then treatment, I needed a break. I looked at the time between the end of my treatments and...
I recently completed 2 HDR treatments combined with 28 IMRT treatments. My HDR treatments were completed one week apart midway through the IMRT treatments. I spent 5 months learning about the...
Randyd - I live in Atlanta and I am just finishing up my treatment for prostate cancer. After doing my research, I chose a combination of external radiation (IMRT) and internal radiation (HDR...
Jack - I agree with your point about the Foley catheter. Based on a previous comment from you, I asked Carolyn about a different lubricant for my second treatment. After discussing, we just decided...
It has been two weeks since my last update. I have now completed 20 of my 28 IMRT treatments and both of my HDR brachytherapy treatments. I thought I would share some information on my HDR treatments...
Denis - great news, keep up the good work - regards MJ...
Jack - just watched your interview online. It is on the Fox5ATLANTA website. Nice job with the interview -regards Mike...
I have now completed 12 of my 28 IMRT treatments. The daily routine that I put together based on your feedback has worked well. I walk every morning for one hour, come home and drink 32oz of water...
First treatment today was uneventful. I was in and out in 20 minutes. Thanks to all for helping me develop a solid plan for my treatments. - MJ...
Thanks again for all the thoughts and advise. Tomorrow is a dry run at the radiation center and treatments start Tuesday. I am planning on making a list of questions for tomorrow based on the...
All - thanks for sharing your thoughts and experiences, I am taking notes.... I will clarify the empty colon question during my practice run on Monday. Dbell and JNF - both of you guys mentioned...
I am starting my 28 treatments of IMRT on Monday and I am looking for some advice from those who have already completed. I understand they want full bladder and empty colon everyday. I am not so...
All - thanks for the encouragement and best wishes Santa Ian - what treatment did you decide on?...
EJC61 - I would say that both the urologist and RO seemed surprised by the change over a short period of time. The other ironic thing was that the one positive core area in the initial biopsy was...
After a six month process of learning, listening and researching, I have made my treatment decision today and have the permanent tats to prove it. I want to thank the many forum members that have...
Kit49 - thanks for the information. I have a lot to learn in the next few days about the HT options before my meeting with Dr. McCord. regards MJ...
F8 and James - thanks for the feedback and encouragement. I plan to do some more research on HT over the next few days and try to finalize a treatmen plan with my RO on Friday. - regards MJ...
Thanks for the update, have been following your journey closely. I am in final stages of planning my treatment with Dr. McCord. My latest biopsy results are very similar to Dans. I am curious about...
JNF - thanks for the information, I just sent you a personal email with a few questions. thanks MJ...
Michael T - thanks again for your thoughtful feedback. I spent the last 5 months doing my due diligence based on a certain set of data and getting comfortable with my plan forward. Now the data has...
Just received the results of my fusion biopsy. Not only was the PIRAD 4 lesion on the left side of my prostate Gleason 7 (4+3) but the six other cores from the left side of my prostate showed varying...
Thanks Denis, Andrew and Michael T for your support and feedback. - regards Mike...
Michael T - did you have the triple play instead of monotherapy because of the G9? - MJ...
In July, I made my final decision to have HDR Monotherapy to treat my Gleason 7 (3+4) cancer found in one core of my 12 core biopsy back in February. In preparation for the treatment, we agreed to...
None of the three surgeons I spoke with brought the loss of length up before I specifically asked. When, I asked the question, they admitted it could happen. One surgeon did tell me that the larger...
Mary - thanks for the response, it is encouraging to hear all of the positive feedback around the HDR brachy monotherapy. I am very close to making my final decision to move forward with HDR option....
During my consult this week at Emory, I heard two items that I have not heard at any other consults and wanted to get feedback: 1) Surgeon said that 1 in 12 people who choose radiation treatment have...
Hitchhiker - thanks for your suggestion on AS. I was not eligible for the AS program at Johns Hopkins because of being higher than G6 and because of my prostate density. I have a consultation with...
Sub Dennis - thanks for the offer to talk. I did not see your email in your profile. If you can email me your phone number and a good time to talk, I will give you a call. My email address should be...
Hitchhiker - thanks for sharing your experience with HDR. The positive feedback from you and fellow board members is confirming my belief that HDR would be an excellent choice for my treatment....
Works Out - thanks for the feedback, happy to hear your thoughts about 2 fractions vs 1 fraction per day. The local HDR guy in Atlanta recommended by a fellow board member is 2 days 2 fractions per...
Tall Allen - thanks for sharing your decision making process and the other feedback. Truly appreciate your support. In your opinion do you believe that Dr. Freeman could provide a similar result to...
Garyi - thanks for the feedback on Doctor Freeman - regards MJ...
Works Out - thanks for the feedback. Can you share the protocol used ( was it 2 days and 2 fractions per day) and who did your procedure? Were Gleason 7 (3+4) also? thanks MJ...
Tall Allen - how would you decide between HDR Monotherapy and SBRT? Also did you recommend Dr Freeman in Tampa for SBRT to another board member? Seem to remember seeing that but can’t find the thread...
I have spent the last three months researching options for treating my specific Prostate Cancer case (see below). I have met with two surgeons (one with 600 robotic surgeries and one with 3,000 open...
Subdenis - thanks for sharing your experience. Where did you get your treatment and how many treatments did you receive? - regards MJ...
EJC61 - thanks for the feedback on Sanda. Hershatter is one of two options for RO that I will see during my visit. Yes, looks like we are the same age. Regards MJ...
EJC61 - I see you are part of the Emory AS program. I have my initial visit to Emory next week and was wondering if you have a recommendation on who to see during my visit? I am currently scheduled...
Samster - thanks for the incite. I see you had open surgery. What were your thoughts on picking open versus robotic? Or did you pick the open because of your confidence in the doctor?...
Thanks Island Time! Good to hear from someone that has actual experience with Dr. Song. I did find him to be as you mentioned but was still impressed with what he did say....
Jack - I just sent you a personal email, look forward to talking with you - MJ...
Jack - what is the forum protocol for setting up a personal conversation? - MJ...