New to this thread - not here too often these days. JC, you treatment choice is excellent. My brief story is DRE by new primary at age 63 recommended seeing urologist. Urologist recommends biopsy....
Right there with you in taking one Tamsulosin a day. I've tried a couple of times to see if I could try working towards stopping this pill, but after one day my body tells me that I want to keep...
For prostate cancer, in full remission is my view and not cured. I'm thrilled where I am post 2018 treatment for my G9, but will absolutely continue testing. I assume your RO will see it differently....
Not sure whether to ask for feedback here or post a new thread - but I'll start here. I'm moving to Medicare July 1 (retiring July 8). Decided to go with an Advantage PPO plan (I'm in San Diego area...
Hi CandyKing - I haven't been on here for some time, so just seeing your posts now. You've got excellent advice and support from many here on the PCA front, but I just want to chime in some on the...
I haven't been here in some time, and not posted in a longer time, but these last few comments have made my day. While I've been off Lupron for two years now, and T recovered, and holding in there at...
I don't know about you all, but I feel fine ;)...
I met with my medical oncologist last four days ago and he indeed helped nudge up the 99% feeling to 99.x% (lol, still working on deciding what the x is). In any event, he said I can stay at 6 month...
I don't want to derail this thread, but I thought radiation as primary treatment the threshold was nadir + 2.0 (not 0.20)...
Thanks for the comment and question. I was wondering a bit about the quietness here compared to my time spent here posting and trying to decide which way to go treatment wise. For my journey,...
Yes, it's 390 (the units I guess everyone else uses -- the lab results come back in ng/ml which is the 3.90 figure). I edited the post to put ng/ml number in parenthesis....
First post in a little over 15 months. Recap of treatment was Lupron starting in April 2018 (18 months). IMRT Aug/Sept 2018. LDR Brachy Oct 2018. Completed 18 months of Lupron with last 6 month shot...
David, relative new comer here. Wishing you only the best as you keep up the fight....
Good news on your bone scan. Hopefully, the MRI shows the tumor seems confined to the prostrate. As to deciding to not take a surgery route, no one on my team (UR + RO + MO) pushed one approach over...
G9 here, 11 months has passed since my diagnosis -- here to offer my words of encouragement and share a bit of my journey. I had 3 months of ADT before radiation (will be 18 months ADT total), then...
A great story and testament to you, Mandy, and your team of doctors in this fight against this foe. Agree with others, the heck with 30 years -- make it 60!...
Happy New Year? Everyone should make the best decision that's right for them. All of these new studies only really have value as another data point to those who have yet to make a treatment decision....
Some of it is attitude and a choice of words. I've got many things I wish I've done differently -- some that bug me more than others. But I'm able to put them in the past as they are either not that...
Merry Christmas to all. Heck of a year for me, but thankful for nothing but sunshine ahead here in Southern California ;)...
Congrats with your decision. I know once I finally decided, that was a big load off of my mind. Keep us posted with how it all goes. As Larry would say Git-R-Done ;)...
Fixed link (it's an issue as to the way the "[ url ]" tag deals with %20 in the link, need to replace with ' ' [an actual space]). http://www.ustoo.org/PDFs/HotSheets/Us TOO HotSHEET November 2018c w...
I've been a member here for ten months now and have always wondered what GFMPH stood for, and given your afaik definition, I'm still left wondering what this means beyond an in person get together of...
Have a great time on the cruise -- it's totally doable. FYI, I got my G8 diagnose (later changed to G9 by JHU 2nd opinion) the night before my wife and my flight for a six day trip to the UK for...
It's only my opinion, but given your worry level about delay, AS is likely out for you particularly as the three doctors that frowned on AS have also influenced your opinion on AS. But as Michael and...
You are doing a good job with your research. Yep, you're going to get conflicting advice. Most UR will indeed push RP. King is great -- I went to see him for a consult as well. Recognize the while...
Today was my four week set of appointments following my LDR seed implants (approx 70 seeds of-125). It was my first time talking to my RO post procedure (the day of LDR, my RO talked to my wife for...
Sorry to hear of the bump in the road. I think you got some good advise in seeing what ADT does in terms of shrinking the prostate. I'm not sure it will reduce it in size enough to get to LDR, but...
I went with what I believed was the best treatment for me, but once I made my choice, I'm done with the studies. The way I look at it, it's a binary value for all of us. Either we stay metastatic...
Hi from a fellow G9. It is frustrating, but sounds like the state of affairs these days. You do have to keep after them, but the process is slow. I was treated at a major cancer center, and I had my...
You're in my prayers....
Sorry you're here. I can't add to the advice you've received except to say that I would ask both the urologist (that gave the DX) and RO that you have an appointment with about starting ADT right...
The volume study was the worst for me (biopsy, Lupron, IMRT, volume study, LDR). Your day before LDR is similar to what I had found when I searched before my procedure. However, at UCSD it was simply...
Thankfully I have insurance coverage (but not like days of lore as it's a high deductible plan backed up with a self funded HSA), but is anyone else shocked by the amounts billed and paid for...
I have to be honest in that my anxiety level rose to that which I rarely if ever reach these past few days -- especially with some of the threads this week with other LDR experience. I'm typing this...
Yikes. I hope things get better for you as time goes on. I've got my LDR in 2 days. I think 70 or so seeds....
5 dogs here. Youngest 15 week old puppy my wife went to Belgium to bring back. Oldest, 15 year old (45 lb) from our own breeding....
I don't know about others, but I had problems with the link. Here's a better link:...
My first post IMRT / pre LDR test result is back. Summary: 03/26/2018 7.26 Before Lupron 04/26/2018 Start Lupron 06/20/2018 1.73 07/18/2018 1.38 08/14/2018 First IMRT (1 of 23) 09/14/2018 Last IMRT...
It's called a multi leaf collimator. The xray beam is constantly shaped as the head goes around the treatment area.Think of it as painting the desired dosage to an irregular shaped target object....
Done....
Everyone is going to react differently. I hit 6 months of Lupron in two weeks. I had (based on what others have reported) mild hot flashes (would last 5 to 10 minutes, not really sweating) about...
Still working full time. Current plan is to work full time until at least 66, but probably just short of 68 so my wife can get to her full retirement age. We bought land last year and are building a...
Also, if you still don't pass flow wise, with your Gleason I'd be less concerned if it's only IMRT. Plus, G7, you've definitely have time to see if any medication improves flow/retention. But, as you...
Don't give up! You need to push back and at least try Flomax. I had some flow issues, and retention too -- they were concerned that LDR may not be a good idea. Flomax immediately improved the...
I had a consult with Dr King as well -- too far of a drive from San Diego or I may have selected him for my treatment. As it is, I decided to treat with UCSD doctors. It took me just short of four...
Hi from a fellow G9 in SoCal (San Diego area). I don't wish to talk you out of surgery if that is your choice, but you should search for and read the Ascende study. There are several of, myself...
Do doctors at the major university health care systems really have this incentive? Aren't they salaried and not getting more incremental $ from more treatments? Sure, indirectly more revenue to the...
Thanks or the info. How are the treatments going? I also noticed in your sig about LDR, are you doing brachy after? Thx[/quote] Sorry for the slow reply. Treatments have been going well, at least...
I'm at 19 down, 4 to go. 46 Gy total. No skin irritation or change for me....
Thanks for letting me have a good laugh. I had a different procedure this week (prostate volume study for upcoming LDR), and had a similar stirrup experience. I survived, just barely as the hips...