Shellkat - you are an outstanding advocate for your husband. I live in the Boston area and have a couple of friends who are on staff at Dana Farber - that is where you need to be right now. Dr....
Good news Rob! Mine isn't so good - noticed blood in the urine a few weeks ago - did a GoogleMeet with Uro - he said, most likely just changes from radiation (almost exactly 2 years out), but that we...
There is also this thread about blood in the urine that has some member's experiences with HBOT - it looks like a good solution without any real downside......
Thanks F8 - I was quite surprised, and a little concerned. The blood appeared to be fresh - but just some streaks at the end of urination - no cherry red urine with clots like post surgery....
Hi Guys; I had my RARP just about three years ago - followed by persistent PSA, 39 fractions of radiation and 1 1/2 years of Lupron. Radiation ended in May 2018, and last 3 month Lupron injection was...
Mileage varies widely on Lupron effects - some guys are fine, then there is me and Skypilot. I was on it from December 2017 through July 2018. Side effects are still with me, but somewhat less...
My Uro renews the scrip. They did the research and I get it through HealthWarehouse.com $57 for 90 20mg pills delivered. Maybe not the best price, but not bad....
Wut he ^^^ said - we're here to share our experiences - which vary quite a bit. Rob...
I saw a statistic yesterday that about 50% of the sailors on the Roosevelt were positive, and asymptomatic. This also lines up with the NY state and NYC statistics that found 14% of state population...
8 - four were positive for PCa. I asked my doc if it mattered which were positive - maybe showing movement of the cancer cells through my system. He said he didn't know what order they were studied....
I'm with ya Bobby Mac. Last Lupron shot was April 2019 - three month shot, so theoretically on recovery since July 2019 - 9 months into recovery and last T was 20. Rob...
I'm still here - most recent testosterone was 20, PSA undetectable. It seems the Lupron side effects are getting somewhat better - the fog is subsiding, and I can remember things again, arthritis in...
Hoping for the best IT This is what we all dread....
Good to hear from you David - Like Saipan Paradise, I've been wondering / worrying about you. Yes to the voice recognition software - my wife basically lost the use of her hands twice in the past few...
Did your RO do a baseline testosterone level? My MO didn't - didn't know enough to ask for it initially. I was on Lupron for 18 months - last 3 month shot in April - still have lots of side effects,...
Hello all! I didn't know about this little - well not so little - club. It was last active as I was just beginning to skip down the PCa yellow brick road. I had my last Lupron 3 month shot in April,...
68.4Gy in 39 treatments 1.75Gy/treatment. I had my share of side effects - fatigue, a lovely radiation sun burn, and best of all radiation proctitis at the end - that was a real treat. Best of luck...
My Lupron sentence is ending - last 3 month shot was yesterday! Now we wait, and wait and wait some more. Maybe some relief in 6 months, maybe a year - nobody knows. It still feels good to get to the...
There is a very long list of Lupron side effects. TrailGuy had an interesting post recently about what, specifically, Lupron (and all the others) do, and why it has such a large impact on us. I get...
Great Outcome and Great News! Congratulations Rob...
That's great news Micah! I'm in exactly the same boat. I had my second to last Lupron shot last week - last one scheduled for April. Then I wait. Your experience is very encouraging for me - and I'm...
HI RandyJo; I get sub-q lupron injections every three months - they give me mine in my hips. There is a lump as that is the time release of the lupron over the 3 months. They alternate hips on my...
Prato - I'm right there with you. With low T, my chest and back hair has all disappeared. Additionally, my beard grows at less than half the rate it used to - which is fine with me, I never liked...
Prato; I've had neuralgia in both hands and feet as a SE of Lupron (feels like I have tight rubber bands wrapped around them right behind the knuckle). Not common, but a known side effect. I also...
Good Luck Pratoman It all depends on how fast your body fills your bladder after you drink a bunch of water. Some guys it's 30 minutes - for me it was more like 90 minutes - everyone is different....
Nice BobbyMac - zero is zero any way you can get it. Rob...
Ye wait a bit Tom. My surgeon said he used to test at 6 weeks earlier in his career and "the biochemist in me KNEW that the PSA would clear the system by then - it only led to a lot of retesting and...
Hey RR; I had surgery last 8/24/17, and started radiation on 3/14/18 - so just about six months to recover from surgery. I was mostly continent fairly quickly at about 3 months post surgery, just a...
Outstanding News Fiddlecanoe! Sounds like an Italian Red from '07 is a perfect choice for that kind of good news. Enjoy!...
It will get better Stan. I had radiation proctitis - significant pain, multiple bowel movements every day, diarrhea several times a day, blood in the stool etc. That all stared about half way through...
Separate question for Y'all, and maybe for Tall Allen specifically. Is there a nomogram out there for the ADT / SRT journey. Our situation - for those of us that had persistent PSA immediately after...
Noggin and Skypilot; My hand pain has been constant since the first Lupron shot in December. It feels like tight rubber bands are around my hands right by the knuckle. Same with my feet. SO far it...
Great news TA - best of luck to you Rob...
Best of luck Pratoman. For me it was the last two weeks, and the first two weeks after radiation was done that were the hardest. Involuntary naps, difficulty focusing and radiation proctitis. But...
Agreed TA, but if that is the case for DJBearGuy, why would they be talking about a "cone down"?...
There is a recent paper posted here that compared the outcome of 36 months of ADT vs. 18 months, and found that 18 months works as well as 36. 18 months seems to be the standard these days, but there...
My understanding was that they started treating the broadest area - pelvic floor / lymph nodes, and as the treatments progressed, they shifted the focus to just the prostate bed. I know they can and...
Hi Dennis; Sorry you are in the same boat as a bunch of us. There is a series of threads on the ADT SRT Journey that several of us are on - if you go back 4 pages or so, you will find the third...
Here's to an uneventful surgery, a quick and complete recovery and a one and done with no further treatment needed. The surgery takes between 3 and 4 hours. Encourage him to walk even while still in...
I think Redwing has it right. In my case (positive pelvic nodes) they initially irradiated the entire pelvic floor (44.5Gy), then "coned down" to focus the remaining energy on the prostate bed...
Outstanding Rob - NO MORE LUPRON!!! :) Rob...
Same for me - I've had tingling / tightness / pain in my hands and feet - just behind the knuckle from about two weeks after my first Lupron shot. Neuropathy of the hands and feet is a documented, if...
I had my SRT on a Varian True-Beam - it is the current state of the art technology, and about three years old. My process was the RO set targets, and the physicist, RO and lead technicians all...
Best of luck to the guys starting SRT. I didn't have any intestinal problems until about two weeks in, then it progressed to radiation proctitis, which didn't really resolve itself until about six...
Fantastic news John Go celebrate! Rob...
Best of luck Pratoman. It is a slog, but you will get through the SRT. SP is right (again), 40 treatments at 1.8Gy / treatment - with the first one a simulation - same process, no radiation = 70.2...
Larry - I had / have radiation proctitis - no fun. Lots of rectal pain with a BM - 3 & 4 BM's a day, great familiarity with diarrhea. I finished radiation on May 7, and since then the pain has...
Hoping for good numbers for you John. Sorry to hear about you brother in law - my understanding of pancreatic cancer is about the same as yours. Rob...
As a food scientist who has worked in the food industry for more than 30 years, the government entirely sold us a bill of goods based on Ike's heart attack. If you want to have some fun, and yell at...
Welcome Todokomo! I'm sorry you've been through this shock - I was there myself a little more than a year ago (see my signature). Read the long sticky at the top for the newly diagnosed - there is...