Oh wow, sad news! He was here for me when I joined in 2011 and was always a great comfort. I had the opportunity to meet him and San Carlos for lunch near his home in S Carolina back in 2012. It was...
Thanks Cyclone! Nothing new to report. Hot flashes and fatigue are the norm now. Continuing to search for cooler/dryer areas with a good Onco. Since I live in a motor coach, finding rv resorts has...
Thanks Vince. Yep, they used to leave a slot open for emergencies, but evidently not anymore. Now they depend on cancellations instead...sigh. Montana sounds awesome, but no way I could handle the...
Over the last 18 months here in Central Florida, getting an appointment with my PCP and Specialist has been increasingly infuriating. 4 to 6 weeks wait time. I'm told if I can't wait, go to a walk in...
Congratulations Wings and to the others. I just had my port removed last week, so hope continues....
Djin, surgeon recommended low dose SRT. RO demanded full dose sweep. At that point, after much research on SRT, I threw my hands in the air and declined. 0 club for 35 months. PSA rose slowly up to...
Hey everyone! First, I would like to apologize for not responding and thanking yall for your input. I thought I had. 60Michael, that would be great! Cyclone, thanks for asking. My MO did not return...
It was an honor to represent GFMPH and Healingwell at Sonny's funeral today. The world was a better place with him here and he will be missed. Here is a link of his funeral....
Another congrats from me and thanks for your participation on the forum!...
Well written Clocknut, glad to see you're well....
Congratulations Dan. Stay the course and keep posting your inspiring journey....
Brief history- 8/2011 psa 47, G9, open RP. 0 club until 7/2014. Fast forward to 5/2022- no further treatments, psa 57, 5 involved inquinal lymph nodes swollen, mass extending to hip with bone...
IT, I just want to see a pic of your Ferrari!...
Hey David! Another OG here glad to hear from you. Others have posted my thoughts, but let me reiterate. You are an inspiration! We need you to continue. I'm about to post my update, please respond....
That is exactly right Stephen. As long as I was feeling good and able to enjoy life, I ignored my cancer. I continued to do psa's and scans to monitor the progression. I have a clear understanding...
Hello Djin, yes the Dr.s wanted to throw everything at it. But, my research at the time showed a very low percentage of a chance it would work. I was willing to do low dose SRT, but the RO would only...
Hello all, it's good to see some familiar members are still here helping others navigate this terrible disease. I've been ignoring my progression as I accepted that I am incurable. Trying to live...
Just a couple of months ago, I was bragging on FB about Goodlifes cooking at the GFMPHs. He saw it and invited me to come visit again. You see, when I first joined, he was instrumental getting me...
One of the moderators recommended I look in to Revatio (Generic sildenafil 20mg) that is actually prescribed for cardio reasons. Luckily, my PCP understands my situation and prescribes it. Current...
Lighting a candle now while remembering the GFMPH times with 142....
Macaroni and cheese with sliced green olives and pimentos, but yeah...cool....
Great post Jeff! Thanks much to you, Canjun Jeff and Waterguy for everything ya'll have been doing for 142. It truly shows the reason GFMPH exists. I also learned a lesson when my younger brother...
I met him at my first GFMPH and we really hit it off. He was very interesting about a lot of subjects and I will miss him. Godspeed 142...
Hey 142, you are on my mind and i'm sending positive vibes your way. Eat your vegetables, lol....
I just don't think I have all the words. 142 and I have met several times at the GFMPH meets, but we used to communicate privately a lot early on. And that continued after he became a moderator. I...
Same for me GoBucks! And that video was worse than the man jumping after his first Trimix injection. Whoa!...
Reply to 142. My Walmart was unable to honor a Goodrx price for one of my scripts. I called Goodrx at 855.268.2822 (7 days 8am to 7pm CST) and they called the pharmacy number and then they were able...
I did a google search with his full name and phone no. I guess no news is good news....
Thanks for posting Larry and sorry for your lost. I lost my Dad to bladder cancer when I was 18. It was a horrendous 3 year fight back in the 70's and I am using the lessons the way my dad handled it...
Hey Jazzy, I just saw this and wanted to send a quick hello and best wishes for your upcoming appointments. I did the Axumin scan last August and they found 2 positive lymph nodes. PSA was 5.72. The...
Hey Rockstar, one of the GFMPH guys posted a link on FB. I also found renewed hope and inspiration! Now I'm really regretting missing the GFMPH 2013 cruise. 60ft. jump? Just wow!!! Keep on keeping on...
This is just my opinion. He is healthy and active at 75, low Gleason and a very slow doubling time. I don't think the promise of SRT is worth the risk of life changing side effects....
Good advice Fairwind and all. Just to update, I never heard from the Rad Dpt. Mgr.. So I left a few messages to no avail. I then called the billing dpt. back and got what seems to be a sympathetic...
Thanks for all of the info and support. The thing that burns me, is I was considering a free trial for the same scan in DC. Travel and a room all covered. I could've made a mini vacation out of it,...
:yeah:...
I'm on original medicare only. All I have, is a voicemail, nothing in writing. I don't have the eob yet, but the statement shows the numbers. Supposedly, the rad dpt mgr is going to call me. That's...
I was quoted by the Rad dpt $290 for my portion of the cost for an f18 scan. I am on original medicare. I paid my $290 at the time of my scan. 6 weeks later, I get a bill for $850. They didn't even...
I cheerfully recommend that everyone consider going. I have been 3 times, and can honestly say that it was the highlight of those years. The comrodery and friendships will last a lifetime! It's an...
I agree with Sr sailor. The German Lu-177 may be his best chance. It appears he has become castrate resistant and question him continuing Lupron. Some questions to ask the doctors. Best wishes....
Thanks fellas. Redwing, I found the same results about Tamoxifin. The additional info I found was that when it stops working, that it can actually reverse, and cause rapid PSA rises. That's when it's...
Wait, what?! Tamoxifin is a cancer causing drug? This is the first I have heard of this! I was going to research the drug but have been busy searching for a MO. Pca is friggin maze!...
Thanks Jim, best wishes for success for you....
Great pic Peter!...
Todd, I think we are all screaming with you. Know his and yours are in my thoughts....
Jim, did your RO suggest Tamoxifin for breast issues or maybe he just considered the short time of Casodex? Also why Firmagon vs. Lupron? Thanks...
Thank you all for responding. Prato, I have been following your journey and think you have had plenty of good advice. I of course wish you the best forward and congrats/thanks for becoming a...
Hello everyone. It's great to see some of the established members here and welcome to all the new one's though I am still sorry any of us have reason to be here. I've have continued to lurk all along...
Way to go Kbota!...
Hey Gary, did you have to do the required biopsy afterwards? If so, how did that go? Thanks....
I will, thank you Carl...