I took the genetic test for Keytruda - nothing. Just as well, it would price out at $23000/month, and I don't have that. I spent a couple of months in a Corvus CPI trial. It accomplished nothing but...
And on top of that, WalMart is no longer honoring GoodRx for discount prices. I'll have my own issues Monday with my oncology clinic pharmacy. I've been warned...
Zytiga knocked down my PSA but also had negative liver impact, so stopped that and went on xtandi. It worked well for over a year. I don't have any prednisone feedback. It was prescribed and I took...
It will take a week of so for the port incision to heal up, but other than bumping the seat belt (until I got a spacer pad), I've had no issues with it bothering sleep or motion. Mine has been in...
Taxotere every 2 weeks 10/17 - 01/19, 31 sessions Things learned early- -GET A PORT. After a massive fail to find a decent vein at session 2, I insisted. And we are still using it in my experimental...
I'm going to write a chemo comment in an editor so I don't lose it mid-process. As to the signature, the limit is 400 characters. Be brutal and abbreviate to the extreme. A lot of what seem like...
Advantage plans can be very, extremely limited in providers. There are a couple in the DFW area that hype "8 hospitals". Here we tend to think Baylor = dozens of facilities scattered over hundreds of...
The manufacturer co-pay assistance plans normally exclude patients on Medicare, Tricare, or other government supported plans. In moving to 2020's part D, my monthly cost is going up a lot, but there...
The desired use of the signature (per our site owner), because they occupy real server space as any post content, is to include the sig only in the first post in a thread. You'll see that if you...
I was a 4+4 from the biopsy, and a 4+5 from post op path. I'll echo what others have said - it hasn't made a treatment decision difference to me over just under 10 years fighting the beast, so I'll...
My Aetna part D "covers" the gel as a tier 4 with a 100 or 300 gram limit per 30 days (depending on the strength). That tier is expensive until you hit catastrophic. It also requires a set of...
I didn't notice any taste change while on Zytiga or Xtandi. Taxotere was a whole different story. I always take prednisone just before I eat, swallowed fast with a lot of water. It has not changed my...
JNF is correct in that "cancer" does not qualify you for SSDI. PCa does, when there are relapses (I think 3 is the starting point), and you are no longer able to work. I applied, since I went through...
I've done three sets of 15 radiation sessions for T12, L3, L4, L5, and nodes around my heart. It's just another day in paradise. Hang in there. My PSA fell over 50% after hitting the L vertebrae. It...
Todd, Hang in there bud! We have to keep fighting. I started a clinical trial yesterday (Corvus CPI-006). They bumped me from the arm I was told I'd be in, but something is better than being refused...
I had similar issues, and finally went back to do hyperbaric oxygen treatments, which resolved both rectal and urinary tract issues....
I suffered gout attacks frequently before PCa (pre-2009), and started taking 40mg of uloric per day. Has not been back, even with years of Lupron in the mix....
One of the guys in my support group did both. He lamented the recovery time, but had nothing else negative to say. I was surprised that they did both at the same time....
Also consider insurance. I've seen insurance companies treat PSA tests from a GP as covered once a year, while when from a uro, more often was covered. Also, I'm staying active with my uro. It is too...
There is also something to be said for the fact that my cousin went to another town / state, carried the child to birth, then put him up for adoption. There were other options that would have left...
If the legal relationship between parent and child has been broken, the child should not have the right to data. I have a same situation in my distant family. A do-gooder judge opened records, and an...
Often on the insurance Rx schemes, things can be convoluted. Example - My Medicare Part D charges MORE for the "generic" epipen than for the brand name. Why? Well, the generic came out after the...
If there had been a total prostate removal, yes, the PSA would over time come down in the best cases to virtually zero. But a TURP only removes enough tissue to allow proper urine flow. The prostate...
A bit of a late Welcome, but I've been away a bit. My PSA was just 7 with a biopsied G4+4, but a post op G4+5, so a very similar situation. As with everything else, there are genetic variants, and...
You mentioned that the pre-TURP PSA was 21, now it is 10 but it didn't come down? I am confused. Perhaps you mean it did not come down as much as you hoped? A TURP clears the urethra. It likely...
That would require cable to see. Don't have cable, so doesn't matter ;)...
It is very easy to test for tobacco use, just a type of swab that will pick up cotines from days before. At my place there was a dramatic difference in insurance payments. They did random "show up at...
I've used TriMix for some years. Never an issue once I learned to be more than precise in the dose. And yes, nerves are gone....
Halbert is correct. We don't "rate" physicians here, as there are certain liability potentials if ugly or negative comments are posted. We delete those. And yes, I'll say good things about my surgeon....
I'm a G4+5, and was told by Dr. Walsh that I might get three years if I was really lucky. This week will be TEN from diagnosis. My docs have no idea how I'm still here, other than doing every...
He left of his own volition. He's gone. Get over it....
Zytiga lowered my PSA, but hosed my liver, so I was off of it QUICK. I went to Xtandi, which worked well for over a year....
I cancelled my yearly subscription (Sundays) when the idiot delivery guy missed two weeks in a row, and the CS refused to send another one because it was "after 10AM" Hated to do it, as I really like...
The FMLA discussion is very valid. I did not do that, since I had good managers and could work from home. Being the only person who did what I did, there were guarantees that I would be replaced....
Humor is OK, just stay away from the sexual context and seriously "adult" stuff....
Guideline #11 11. Keep posts family friendly. If it shouldn't be viewed by minors, then it shouldn't be posted to the forums....
There was a link in the abstract to a full article, which requires a subscription or payment per article. We don't put full articles on HW lest we violate copyright rules. If this article appears of...
As long as you'd be comfortable telling a joke at Thanksgiving Dinner table with the 13 year olds and Great Grandpa listening, you can tell it here. I don't think the Nuns qualify....
JNF covered the disability pretty well. He does know his stuff. I qualified and had payments start in 6 months under the compassionate allowance, rather than the two years wait normally required.....
WO- I've been referred to a specialty clinic to see if there is anything in clinical trials that I could participate in. Because a lot of trials currently are oriented to genetic research, I was...
I did not lose significant hair until the taxotere came into play. I've been on Lupron for years....
i just got through with a 15 session RT on L3, 4, & 5. It has cleared some numbness and lower torso pain, but it also has allowed pain on nerves that were earlier badly constricted. So now, instead...
I get my Lupron shot in the right hip every 6 months. I've never had any more than a few hours soreness....
Check the Abbreviations post in the stickies at the top of the forum. That will help a bit. Also keep in mind that there is a 400 character limit (includes spaces, returns, etc), so we suggest you...
I'm doing some aggressive treatment plans. The oncologists and Cardiologist all explain that I should consider death from PCa, coronary, or stroke to all be the potential outcome with all the meds...
My chemo center has a bell, and everyone there is happy to hear it ring. My first RT lab had one, and gave you a framed certificate and a group pic. Current RT lab is a very small space, so no bell,...
Union98 has a good point. Generics are qualified by the active ingredient. Everything else (coating, binders, pill size) can be very different. I've had problems with "generics" in the past. Pity is...
Dads tend to take care of their little girls, no matter how old. The sons are expected to sort it out and move on. I can almost agree with the oncologist's comment. Living with advanced PCa can be...
I had the Guardant360 test early this year. It was done through a Texas Oncology regional center, so you might check with an affiliated oncologist. I got a basically "nothing to tell" result, so it...
I had an Axumin pet scan a few weeks back. I was sick at my stomach on and off for several days, but nothing like you describe. Side effects to the contrasts they use are possible and known to...