Farm out....
Hi Fred, This video from Dr John Mulhall of MSKCC at a patient conference a few years ago might be of interest to you in managing "expectations" following various initial treatment options....
The LUM 015 agent had been studied in mice with colon cancer cells a few years ago to see if the chemical could make the cells that they wanted to detect with sufficient accuracy and reliability...
Beth, how did the 1st leukapheresis procedure go? Did he experience any symptoms of "citrate toxicity" during the approx. 3 hour procedure while his blood cells were collected by the machine? The...
This video from MSKCC's Dr. John Mulhall was orignally presented at a conference in L.A. in 2014, but a whole lot of it still applies in terms of managing "expectations"....
MSKCC has a handy set of Prostate Cancer Nomograms for beginning patients who are thinking about their initial treatment options and general odds afterwards....
Happy to hear he is having a good initial PSA response and relief from pain. Do leave room for some hope. I was in a similar situation 6 years and 2 months ago. I had some really bad lower back pain,...
You might find some things of interest in this 59 minute presentation from an expert at MSKCC. https://www.youtube.com/watch?v=4ELsojPFNV8 Charles...
A few years ago the Prostate Cancer Foundation put out a Health & Wellness Guide created by several co-authors from UCSF and Harvard which mentions several things about foods and supplements. I've...
Welcome, Bob! Sounds like you are on a good path. Remember to spend lots of time in the present moment, Living and Loving all the good things in your life, too. Charles...
Good advice from InTheShop. A lot of good energy can be sucked out of the rest of your life if there's too much worrying about the smallest details of test results. "Don't sweat the small stuff." (I...
"Que Sera Sera" - As sung by Doris Day. (Whom I seem to be feeling more and more like after 5 1/2 years on Lupron! Ha. Ha.) (Although I do also feel a lot like a 205 pound Peter Pan on some other...
In the Character's own words (as provided by the writers).... https://www.youtube.com/watch?v=FaqxAEx46Zk Charles...
Welcome. Here's another good thing to watch, regardless of what procedure you might choose. Dr. John Mulhall of Memorial Sloan Kettering Cancer Center, as presented to the 2104 Prostate Cancer...
Makes me wonder if there may be a new HBO series in the works..... "Game of Prostates"....
Howdy, Cyclone. Thanks! You are still getting a pretty good response to your treatments, too. I admire how you are such an optimistic bundle of enthusiasm. (Of course, you have about 17 years on me,...
Thanks, Sr Sailor. I'm pushing 5 1/2 years of survival since starting out in a pretty serious place. I'm Lucky and Grateful. Life is good. Charles...
Hi Guys. I've been off this forum for a while. I'm still riding the Xtandi horse, with pretty good results. My main side effect is fatigue and low energy/peak strength. Highlights are in my Profile...
I have attended 4 each regularly scheduled monthly Prostate Cancer Support Groups in my regional area for about 4 years since my original diagnosis as very metastatic a little over 5 years ago. The...
This month I am a 5 year survivor at age 70 after my initial very metastatic diagnosis at age 65 with a PSA of 5,006. WooHoo!! And many thanks to all those in local and on-line Prostate Cancer...
For those men who may be near San Francisco, and especially interested in this topic. http://events.r20.constantcontact.com/register/event?oeidk=a07efk8acyadba081a0&llr=igozl6qab Charles...
Yesterday, Rick Davis of Answer Cancer also had this to say about Rob's recent death and life of service to others with prostate cancer: "I have a very heavy heart! Late Friday afternoon, Rob...
Also reminds me of the Summer of 1967. "Live for Today", by the Grass Roots. https://www.youtube.com/watch?v=ySjxZDT_5SA Charles...
Wings, thank you for sharing this story about the recent loss of your friend. My condolences to you as you continue to experience all your different emotions and grief. I was diagnosed as Very...
Sometimes local Support Group members can share experiences about different types of local specialists and regional experts with advanced prostate cancer expertise that they have found. For those...
In those days I was a combat crew member in the Strategic Air Command, but internally felt I had much in common with those who were activists for Peace, in all its many forms....
As you consider your options for either Xtandi or Provenge vs. your existing Medicare and any Secondary Insurance Coverage, these links might possibly be helpful....
Just a thought...... does your Father have an independent Social Worker assigned to coordinate and evaluate his physical/mental/emotional abilities to make a successful transition back into the home...
I have felt like an on-going Survivor ever since my original Stage IV diagnosis. (See Signature info) In a face-to-face support group recently, the discussion turned to the very many things that one...
All the men here whose first diagnosis was incurable Stage IV metastatic prostate cancer have a lot of empathy for those who have days when they cannot seem to stop dwelling on "cancer thoughts", and...
Here's what MSKCC says about it, with references. There is zero Clinical Trials evidence demonstrating its efficacy for Prostate Cancer in humans....
Thank you for your Service. This territory is sometimes a different kind of training camp, a different kind of combat zone, and a different kind of behind-the-front-lines recovery station, and a...
WOOHOO!! Charles...
As NKenney so very well stated, in advanced prostate cancer, sometime the PSA number is not so important as the actual progress and location of the disease, and its evolutionary biology. When I was...
Personally counseled? Formally, no, but informally, definitely Yes. I have actively participated each month in 4 different Prostate Cancer Support Groups in my local region over the past 4 years...
Some may disagree, but this seemed to me to be a pretty cogent article on the past, present, and potential future of legislation of this type....
As a Sample Size of 1, my anecdotal history is that I had a normal DRE and PSA test at age 52, when I was with a large HMO. Thereafter, the topic of screening or testing for prostate cancer never...
Hi DebbieMH, Glad to hear that round of Provenge went very well. Hope it all works out for any up-coming Zytiga, and costs. Did I see a confirmed BRCA 2 mutation listed in his history? If so, you...
Sorry to hear that your Dad is having these other issues that are preventing his treatment for the cancer, itself. I'd guess it is difficult for anybody - even doctors - to predict just how long...
I would like to see the spirit of Memorial Day return to its original roots in the solemn remembrance of soldiers who died in war, and the Decoration Day adorning of their graves with simple...
Perhaps these might be of some help for family viewing and as discussion starters? https://www.pbs.org/wgbh/frontline/film/being-mortal/ http://passing-on.org/ Perhaps followed by a review/update of...
After you get your scan results in early June, please do share the results with us, and any questions you may have about them. Remember that you can ask for a copy of your scans for your own records,...
Erleada (apalutamide) was recently approved for non-metastatic CRPC....
In Physics the perceived force of gravity, whether large or small, is infinite in range, and cannot be resisted by anything. But with small masses or large masses at large distances, the force can be...
Having a port can make the leukapheresis process easier, compared to having larger bore needles in each arm during the minimum 3 hour process. Being hands free and not squeezing a little rubber...
I've known several people on the lower end of the spectrum with lower back pain who have been referred to Physical Therapy for evaluation and lower back and "core" strengthening and stretching...
Instead of riding the lava flow on a tipsy heat-shielded kayak, in Hawaii the obvious choice would be an outrigger canoe. Logos could also hang a properly wrapped pig over the side, and have a luau...
Extensive commentary and references related to post-treatment ED are also available as additional "food for thought" at (Tall Allen's) Prostate Cancer News, Reviews & Views....
Per his Profile, Notyet's location may be Longmont, CO. About an hour north of Denver. He may or may not have already been treated or received a second opinion from someplace such as:...
If you are in Belgium, this Support Group possibility might be explored. Brussels Prostate cancer patients 1000 BRUSSELS - Jules Bordet Institute: post-treatment supportive interventions for prostate...