KM, I see that you have no response yet to your post. I believe that’s a tough question to answer so probably why there’s no response. You can tell by my sig that I’m not there at this point however,...
Had my bloodwork and appointment today. Good numbers... but I also have some blood in my urine. 3 years out from radiation. Getting a scope from my urologist soon. That sounds intrusive...oh well,...
Breaking news: Yes... too much weight curtails your life expectancy. Always. Losing weight will help you from dying of something besides cancer. Maybe a heart attack, diabetes, or something related....
Rob, Some families get an unfair allocation of health issues. As we all know, your son is battling during a time of the best cancer treatments in history. Hang in there and blessings to your son and...
Well... I spoke to my oncologist yesterday, even after I decided not to go to Seattle on my own and with reports from my son. Here’s what she said, “Your immune system is not considered a risk due to...
Everything that I hear about the at risk population says, over 60 and with underlying health issues. I’m undetectable currently but G9. I’m 65 but feel great. I was supposed to travel (fly) to...
Got it...
Yes. I had a G7 pre surgery. I actually had a 5+4 after pathology which surprised my Uro....
3 nodes removed, all 3 positive. 4+5 =9. RT on all nodes in pelvic area. Some issues with circulation in my legs causes occasional swelling. Walking helps....
Andrew, Congrats on 8 years. That’s terrific. Everyone’s retirement plan is different. Those of us with an advanced cancer situation have good reason to consider quitting work early. I quit at 60,...
Larry, Pharmacy benefits can vary between providers and payers. Lupron is indeed a pharmaceutical yet billed either in the medical benefit side or pharmacy benefit depending on your doctor decision....
This is a very interesting topic and well suited for this forum. Personally I don’t believe that many physicians are deliberately untruthful. I do believe that many Urologist are stretched beyond...
Pratoman, No bad thoughts on financial planners. I know many people use them. I’m a German. We do cash business and pile it up. You know...save for that rainy day. I guess it was a good idea. My...
This topic has come up a few times in the past few years. There have been very good responses and posts. I like to say that I’ve had the worst 3 years of my life, and the best 3 years of my...
Low PSA is clearly a measure that is positive. As we all know the rate of doubling is more of an indicator of aggression in the cells. Having said this, I did my homework on Urologist vs Oncologist....
Grillmaster, There are many guys on this site that would tell you to ditch the Urologist and find a good Medical Oncologist. I’m another one. Good Luck!...
I came across this string and had to join the discussion. For starters... I am retired from one of the largest PBMs after 37 years. I was an officer of the company. Yes... I did very well because the...
Obviously no doctor can predict life expectancies without more information. Having said this, my Urologist said, “don’t worry” when my PSA reached 4.5 and my biopsy indicated G7. After removing my...
It seems to me that some people like to say, “I beat cancer” as a motivator to move mentally beyond as much as stop others from asking about our problems. I get that. Personally I believe that PCA is...
School... I have the exact same story and dates of diagnosis. I’m a little older than you but feeling good about the future. Congratulations. I really do believe that the advanced treatment plans are...
Sunshine, My experience with my Urologist was unforgettable and because of his opinions, I have recommended to others to avoid continuing care without a medical oncologist. This issue seems to be...
Michigan man [email protected] aka Naples...
Gord, The guys that have responded have given you some good information. I am T3b and 5+4. I’m 3 years into the journey. I read about everything that I can. The best advice that I received was from...
One of the best things about this forum are posts like this. Writeblock, you are inspiration for guys 20 years younger. “I intend to go the distance” should be the phrase heard, and used around the...
Thank you for sharing this article. I have had some concerns about this. My memory has definitely slipped. I retired 3 years ago and was thinking that my life has been too easy and without mental...
Blackjack, My MO is Dr Maha Hussain. She’s an excellent example of what it means to be both a scientist and a person who understands what her patients are dealing with, and spends the time on both....
So good to have support from guys who know what this is. Many Thanks...
My follow up visit with my MO yesterday provided some good news. Although I’m not feeling like running a marathon anytime soon, my fatigue is fading. Hot flashes have diminished and Lupron fog is...
I’m now 6 months since my last Lupron treatment. T is still very low. What I have noticed is an increase in joint pain. It’s not in a consistent area, just all over. Every morning I feel like I’ve...
Geez... I’ve been working hard to lose weight post ADT...and its been working. I’ll keep working at it. We’re all just hoping this turns out. Not something we can control. On we go......
Hey Subdenis, I love the thought of vision 54. I’ve done this in a different way. I tape score cards inside my locker door with every hole that I birdied at least once. I was stuck on 15 for quite...
I retired immediately upon diagnosis. I had quit corporate 8 years prior and was doing consulting work therefore, I didn’t give up a big job. I’m glad I did retire to enjoy my time. My reasoning was...
As warned in reading the internet I have some issue with my once firm chest. Old an sagging is one thing. In need of a bra is another. WTF...how do I get rid of this flabby chest post Lupron? No...
Todd, I just read your story in Men’s Health. You’re an impressive guy to have endured all of those challenges. I hope to have some of your grit as my situation changes. The body seems to follow the...
Well guys... we all have the same challenges in different numbers and sequences. What gives me hope is that there are plenty of guys living with this and hanging tough. I’m going to try and put this...
Carl, I just had a follow up visit today. My PSA is still undetectable. 0.0 My T is another issue. I’m still under 20. It’s clearer now where the fatigue is coming from. Thanks for your response....
RedWing, Thank you for your detailed response and attached chronological story. Your numbers are nearly identical. I'm just a few years older but still considered young in the fight. I see Dr. Maha...
Mr. Bill, Yes, I walked 3 miles every day to try and fight Lupron weight gain. I had joint pain in my knees so I wear elastic knee braces that I purchased in a local pharmacy. I also wear an ankle...
Hello brothers and an early Happy Holidays to you all. I have recently completed my Lupron journey. There has been other posts about this milestone but I'd like to start a new one for the most up to...
Pharmaceutical companies will support you if your income is low. Otherwise forgettabout it....
Compiler, I am retired from the pharmacy benefit industry. I think you have correctly identified the complexity of pharmacy insurance. There are many different policies as well as unique plan...
This is a tough decision depending on all the variables. I chose to retire immediately upon diagnosis at 61. Not because I could not work, but because I did not know how long I could live. In...
Kitty, We are all a little scared. The good news is the research keeps developing new drugs and the Oncologists continue to use their skills to help us. Based on the millions of us that are being...
I've been asked to post my ADT, SRT journey by one of our G9 colleagues. Here goes: After diagnosis, then radical surgery, I went immediately into Casodex and Lupron. Then 2 months later 39...
Yes...Lupron is evil in many ways but very effective. I have had two years of Lupron and will stop now and see what happens....
Shueswim, I thought that I posted a response. Looks like it didn't take. Anyway... I split time between Naples and Chicago. I decided to go to Northwestern in Chicago. My MO is Dr. Maha Hussain. She...
Shueswin, My MO is in Chicago at Northwestern. Dr. Maha Hussain. Google her. Lots to read. World class....
Excellent news on the 8 year report. I had my last injection of Lupron yesterday. My numbers are very good. My oncologist believes that I will start feeling better in about 6 months. I hope my ED...
John16, I asked the same question 2 years ago. I received many thoughtful responses as you have. Because you asked, I'll share my thoughts. You have already identified the important points of...