My SE was fatigue, improved when I started exercising more halfway through. Nothing after until two and a half years later when blood appeared in urine a few times then went away. Urologist found a...
Second dose Feb 18, returning to indoor tennis Feb 26. Our retirement community of 200 people got everyone vaccinated and is reopening the restaurant, exercise classes, and activities on March 1,...
Good on you and prayers for continuing....
Congratulations Halbert. Good explanation for new guys, and thanks for all your help to us over the years....
All the best to you. Glad the biomarker tests and CT were OK and hope you can get the cytoscopy. As the supportive veteran guys have said, stay strong! Had 4 brief episodes of hematuria around...
Turns out I have a UTI so on to antibiotic. Hope that’s all I have....
I get a psa when I see my GP locally, then message the result to MSKCC. As long as it stays undetectable, they are happy and so am I....
As with Wooglin and Italanat8, my hematuria resolved itself after (maybe because of?) increased water intake. Urologist confirmed with urinalysis but will follow up with blood test,CT, cytoscopy...
Thanks for your replies! After a bad time with a lazy doc at Bassett in Cooperstown I went to MSKCC for surgery and then salvage radiation. Prefer not to drive to Westchester now though. Because I...
Sending supportive wishes Fairwind’s way....
Anyone have experience to share with a urologist at St. Peters?...
Me too. Visible hematuria on Dec 18, returned Dec 22, returned Dec 24 and (Merry Christmas!) Dec 25. Seems to occur half the time I urinate. Contacted RO to see what they suggest. Hoping, based on...
Boris Mychalczak did my salvage radiation at MSKCC in Westchester. At the time he was also setting up the new office in Basking Ridge so he may still be practicing there. Before my surgery he...
Djin, Psa was .10 six weeks after surgery. Surgeon said nothing about salvage — one of the reviews of him said he didn’t deal well with “failure.” Very experienced — more than 2500 prostatectomies —...
Just to add one more experience, Model T, local RO said do nothing when post RP psa rose to .14 at twelve weeks; Boris Mychalczak at MSKCC said jump on it early, so 6-month Lupron shot and 40...
Good plan SP. Like Pratoman, I get the MSKCC protocol down to .05. Happy with that because at my age 77+) not clear I would treat a recurrence anyway....
Lots of good advice here. For me, working my way alphabetically through composers (or performers or time periods) created conversations with the techs. It never got easier but did get routine after...
Grateful to all of you who helped me so much through the journey of prostatectomy, persistent psa, ADT, and SRT and also to the doctors and techs at MSKCC. Like crazyick, my testosterone is higher...
What Prato said. Although I’m sure everyone’s story is different, I didn’t feel the fatigue or other side effects from Lupron until 6 weeks after the three-month depot. Sorry you’re in this situation...
DJ, Sorry for your loss. Nothing clever to add, just reinforce what the posts say about not second-guessing....
And more congratulations, Maldugs, gives all of us hope....
Glad to see all these posts from those of you who preceded me and were so helpful through ADT/SRT. If there’s no test that will detect PC because there’s too little testosterone to feed it, then as...
Great news. Hope you’re enjoying the moments....
Amen to that, InTheShop, and if we wish the time away to get to the next test we’ve wasted all those months. So as you say above, breathe in, breathe out, enjoy the moment....
Good for you. Wishing you a continuing recovery....
Halbert, good to hear. My thanks also for your insightful posts....
Good for you, Gear!...
Garyi, no, started sildenafil after surgery then stopped because of SEs. Normal, pre-ADT testosterone was 450. RO did say it mght never recover to that level. The 3 month Lupron depot would have...
Saw RO on January 14, a week ago. Psa remains <.05, testosterone beginning to recover but still very low at 22. Up from 8 on July 30 though, when I got the hopefully last 3-month Lupron shot. Next...
good for you Bob, great news to start the new year....
You go Wings, and thanks for sharing the other inspiring story as well....
Tee, go well — humor helps, and the techs will become your BFFs. Most of their day is same old, so injecting life into the process makes it fun for them too. Prato, RobLee,Crazyick, I got off my...
Puts my dealing only with PCa into perspective. Admire your strength and courage...
Also late but equally happy for you. I wonder if some of the fluctuations that look like increases are actually normal, not worrisome, variances in the ambient psa. Enjoy the holidays and hopng for...
Good to see all these results. Now 4 months out from the end of 40-treatment SRT, and 5 months out from last 3-month Lupron injection. Not as strong as before RP/HT/SRT, measured as part of an old...
Todd, wishing you the best. Your story continues to inspire. As a former college president, i can say we’d take you on strength of character and courage, and then hope to help you fill the barren...
Larry, thanks for re-starting this thread. Three months after SRT ended, and also a month after the end of the 6-month Lupron regimen, I feel good physically, mentally, emotionally. Playing good...
Me too. Stiff hip and weakness on side where the needle went in and placed the depot. Felt like pulled quad and glute. Good news is that one month after the six months on Lupron ended, all is back to...
Good for you, Charles! Thanks for the inspirational post. Wishing you many more....
Glad you’re OK and will look for a way to support....
Today, 88 days from my last Lupron shot, the worst SE — pain and weakness in my left thigh and knee, the side where the depot went in, is gone. Found it difficult to run but kept playing tennis;...
Stay dry and beered. Still remember Camille on the Mississippi Gulf Coast 50 years ago, so lots of empathy. Those are strong winds you’re facing....
In my case, with negative lymph nodes but persistent psa, MSKCC did 6 months of ADT, 25 radiation treatments to full pelvis, and then 15 radiation treatments to prostate bed only. Hope my results...
Thanks for these thoughts, p34, roblee, skypilot, pratoman. Helpful: significant others, exercise, diversions (hobbies, books, work, volunteering), travel, planning for the short- and long-term...
Prat, for my brief diarrhea the RO said immodium, which worked. Also said to take it only to treat an occurrence, not to prevent a possible occurrence....
Check out Karim Touijer at MSKCC in New York. His profile claims salvage prostatectomy as an area of expertise. He’s done >2500 prostatectomies, including mine, but not sure how many were salvage....
Airplane for me too, driving NY to CA in summer of 1967. Lived in Sacramento two years, only a 90-minute drive from SF. USAF restricted my participation somewhat. Remember a good cover band for JA in...
Prato, sounds as if the RT is not too bad for you. I found, as others have said, that keeping moving was better than sitting, although I did nap occasionally. Almost five weeks from the end, no...
Prato, here’s my MSKCC experience: Treatments varied also to accommodate my travel schedule, generally 1 pm Monday and 9 am other days, but they moved around an hour or so also Eating before...
Ja, ja, vielleicht ein paar bieren!...