Alephnull, my dad died from that about 16 years ago. I don't know about now, but when he was being treated, the treatment for it had not changed in over 20 years. The news was certainly not...
So happy for you!...
Randy was 55 at diagnosis and is still kicking at 63. It's not bee easy, but here we are. Anybody else gaining comfort from the number of men on here who've been around for so many years past...
Hot flashes in our house are worse at night. We bought a "Chili-pad" and it's helped with night sweats tremendously. It's like a mattress pad, but runs chilled water through tiny tubes imbedded in...
I'm so sorry. Please know that you and your family are in our prayers. Donna....
Hey, Sparky, After my husband's surgery, at his post-op appointment, we were told that his life-expectancy was about 3 years. It was such a horrifying thought, that we just never mentioned it to our...
Hey, Sparky, My husband's PSA at 7 weeks post surgery was 10.0. At 11 weeks post surgery it had risen to 14.2. In March of 2016 his PSA was <.05, but by June of 2016 it started rising and in...
Donna here. I just went to my first visit with a new GP. I really liked her. As part of the initial visit, she asked about my family and lifestyle, job, etc. I told her about Randy's PCA journey....
Hey, Stephanie, I'm so sorry. Healthcare is the US is a $#!+show. Have you looked into COBRA. It's bound to be expensive, but maybe will buy you some time? We'll be praying for you. Donna....
To answer a lot of questions: -Randy is on the blinded arm and either is on Xtandi or a Placebo along with Lupron. We're not 100% sure. A couple of things make us think he's on the Xtandi arm. He's...
Yesterday was Randy's Quarterly doctor's appointment. As we near the end of the EMBARK Trial, I have been worried about how we will manage to get Xtandi after the trial concludes. He's not old enough...
Hey, Cyclone, You'll often see me crocheting while waiting with Randy. Especially in late summer and early fall, as our cancer center has a family area where folks undergoing chemo can pick up free...
Girlie and F8, I'm not sure. At first I didn't think so, but that fact that they let him hang around afterwards seems odd. Donna....
Hey, 60Michael, Were you, by chance, at Emory? HGTV is on every single TV in every single lobby at Emory....
Hi, JNF, I would have expected him to take his cue from me. If the joke was at my expense, then he should look to me. I most likely would have told him to let it go. My husband knows me well enough...
I don't see where another woman has chimed in here, so I will. I would have been MORTIFIED had my husband behaved that way. Nothing anyone could have said about me would have been as embarrassing as...
Thanks, guys. I fully intend to become a nuisance to anybody and everybody that I need to. I just really hate that I may need to. So far, anybody I've approached has told me that they really can't...
Hello, everybody, it's been a while since I've posted. I've been lurking around and keeping up with the goings on, but haven't really had anything to add. Last October marks 5 years since Randy...
In general, I would say yes to any communicable diseases that are running rampant at any given time. I'm not sure how I feel about doctors turning away the anti-vax crowd. I'm of the opinion that...
Out of six fully vaccinated folks in my house (5 adults, one 12 year old), 3 developed covid. Randy, myself and our daughter all had symptoms and tested positive. My mother (78), our son-in law and...
Hey, Duck, I get what you're saying, but even "failed" research, brings us a step closer. The more we know, the closer we get....
My son in law is a Nurse-Practitioner in the local ER. He is extremely knowledgeable and compassionate. He's also well aware of his limitations and doesn't hesitate to call in the MD if a situation...
This might be slightly off topic, since I don't think it's currently being used for PCa. I thought this was interesting, though. https://www.wbur.org/hereandnow/2021/06/14/cancer-blood-test-ctdna...
Randy is on Xtandi (or isn't?...clinical trial) It's been almost 5 years with no change/progression. Donna....
Djintonic - Thanks! That helps. The original paperwork we have shows that date as October of 2020. I guess it's been revised (?). I've been stressing about how we might pay for Enzalutamide should...
I have a question for some of the clinical trial guys. Randy has been on the EMBARK trial since October of 2016. Right now he's on Lupron and either Enzalutamide or a placebo. Since it's a...
David! It's so good to hear from you. You, sir, have more perseverance than any other person I know of. Donna...
All adults in our house are fully vaccinated, which is a relief, since son-in-law works in the ER. We're still masking up in public places, but have returned to in-person church (yay!). We have plans...
Congratulations!...
81, I'm so very sorry for you loss. There are no words. I'm praying for peace for you and your family. Donna....
We live in an older neighborhood where most of our neighbors are elderly widows/widowers. Navigating the websites was more than most could manage. We took all their information so we could help them...
Howard, I'm going to join in with JNF and encourage you to question this loudly and forcefully. First, there is absolutely no reason for a 6 month Lupron shot to cost that much. None. It's either a...
Butt Paste works wonders. You can get it in the baby isle....
I've had one and am scheduled for the 2nd. Randy has also had the first and will get the 2nd on 2/14. My mom just had her 2nd dose yesterday....
Glad I missed it. I am so. very. tired. of politics and division. I appreciate you guys for a doing a very tough and often thankless job. Donna....
Son-in-Law, mom and husband have all had the first dose (son-in-law has also had the 2nd). Nobody had side effects from the first dose. Son-in-law felt crappy and had a low grade fever for about 10...
Thanks, all. I had an appointment for Sunday at our local Publix. I gave it to an elderly lady on our street (age 81) who has been trying to schedule an appointment for a while, but had no luck. I am...
Thanks guys. I just can't get the image of a young healthy Senator (Covid denier), jumping to the front of the line. I also find it odd that cancer patients are so far down the list....
The Covid vaccine guidelines in Georgia states that if you are the caretaker of someone over 65 you are in group 1(a) to receive the vaccine (first group). Randy, is in group 1(c). My 78 year old mom...
For the itching, try Butt-Paste. It's for diaper rash, but Randy says it works. Donna....
BillyBob, I don't know how much the person who died was taking. It was a cousin who lives several states away, who was 40 years old and otherwise healthy. I only know he was taking supplements...
I can answer affirmatively to more than one of those statements. 1) I know at least 1 person who did nothing and died from covid. 2) I know at least 1 person taking Vitamin C and D who died from...
Alephnull, of course you love your kids very much. I'm sure they feel exactly the same way. Once upon a time, it seems that we all could agree to disagree. People who didn't agree with our political...
Alephnull, Prayers for you and your family. This stinks out loud. Donna....
Son in Law is a Nurse Practitioner in the local ER. He says the incidence of flu/strep infections is down. He credits masks/distancing. Unfortunately, the number of folks being hospitalized for covid...
One of my favorites is "Can't Always Get What You Want". We used to sing it to our kids when they were teenagers. They DID NOT appreciate the Rolling Stones...or at least that particular song....
Hey, Melaine, My husband's post surgery pathology showed positive margins (Gleason 9). His PSA ever went below 10, so there was never any questions as to whether he'd have radiation. He did have ADT,...
Our school district moved to an "all online" model for the first 4 1/2 weeks. Unfortunately, this model doesn't account, at all, for children with IEPs who need additional instruction. (Our middle...
Hello, Shellkat. Persistent PSA is scary. My husband had an initial PSA of 26. His post-op PSA was 10, which climbed to 14 seven weeks later. Randy's Gleason was upgraded from 7 (4+3) prior to...
Thanks, Sparky. That's encouraging. The plan is to push for it sooner rather than later....