Hi Mumbo, I’m facing similar decision and am now biochemical recurrent, although my PSA doubling time is shorter at 3-6 months (latest PSA 0.67) and I previously completed adjuvant ADT and EBRT...
Larry, Terrific news. Very happy for you and the encouraging results. Hoping to join the ADT retirement club myself down the road. I've now finished half my planned 3-month injections, with 3 more to...
Hi Big John, Sorry to hear your situation but there is lots of support and good input in this forum. Disappointing when the surgery doesn’t work. It’s kind of a double punch after going through...
It’s been a while so I wanted to share an update. As of last week I finished 35 days of EBRT. I have now been on ADT+zytiga since November, and it’s been six months since the RALP. In short a...
Hi AJMan, Thanks for the update and lots of good feedback in the comments above. Persistent PSA is a bummer and I don't have much to add, other than good wishes. Secondary (or adjuvant as my doctors...
Good luck! I’m just finishing EBRT (29 down and 6 to go) and ADT+Zytiga. Last test had my T<2 and PSA undetectable. Felt good to finally see progress in this battle. Another test today so hoping to...
All - Many thanks for the insightful perspective. All of it is very helpful and I'm most grateful. As we all know, it's no easy feat to learn everything useful about this disease. Will take this all...
Hi All, Hope this isn't a rookie question but I couldn't find an answer in the old posts. My question is whether I should ask for a more precise PSA test than undetectable <0.05. My MO at Stanford...
Good advice above - definitely talk with a RO to get both perspectives and take advantage of any second opinions (and any advanced scans you can get). My original diagnosis was similar to yours and I...
Just finished meeting with my MO after starting Zytiga+Prednisone (while also halfway through 7 weeks of radiation). The ADT+Zytiga seems to be working as my PSA is now <0.05 and my T<2. Liver...
Too young to retire, but how about semi-retired? I'm still going at 70% of my former routine since PCa knocked on my door. May keep it this way for another 10 years, but probably no big changes from...
Guess I'll take this as a small win in this battle that started just a few months ago. Just need to watch the Zytiga side effects as my liver enzymes (ALT) doubled over the past 6 weeks. Still, it...
Congrats! Great to hear. Good luck with the Tesla....
GoBucks - thanks for the comment on your doctor's advice upon the elevated liver enzymes. I just had my first undetectable PSA test (PSA<.01). 2 months after Lupron and 1 month after starting Zytiga...
Great story! Thanks for sharing....
Pratoman, Something to watch for sure but probably good news and reward for the swimming. Are you tracking weight same time each day? I started ADT in November and I've been tracking my weight since....
Hi Motown - We're on similar schedules. I started Lupron in November and began EBRT at the end of December, also to the whole pelvic bed and lymph nodes. I didn't notice many side effects from the...
Thanks for the post. Great to hear the encouraging results....
Ah, the joys of this disease...With only 7 of 35 treatments under my belt I haven't experienced any side effects yet, but this wasn't one I was looking forward to. Glad to hear the recovery after RT...
I’ve been on Lupron since 11/7. No side effects the first few weeks and then only minor hot sweats and loss of sexual interest. Added Zytiga 12/19 and definitely feeling the same effects, but more...
Hi Mumbo, I completed RALP on August 2nd. The first month included typical aches and pains. Other than catheter issues no pain in the groin/penis. Some aches in the abdomen during the first 2 months,...
Received mine in a similar envelope - the packaging sure grabbed my wife's attention. As far as I can tell I don't think it is technically chemo either. Anyway, from what I was told it just warrants...
Had my first PSA test today 5 weeks after first shot of Lupron. PSA dropped from 4.5 to 0.37. I’m wondering good result? Or bad? Too early? Of course hoping to see it under .05. Regardless, EBRT...
Sorry to hear - it certainly doesn’t sound like good care was provided. Still, looking ahead you should definitely get an advanced scan to see what you are up against. Perhaps local treatments are...
Congrats on the milestone! Way to go. I'm at the other end of this business and starting RT Dec 26. Good luck ahead....
Congratulations and thank you! I've referred back to many old threads as I've been coming up to speed and more often than not I'll see your posts. They have been consistently insightful. Well done!...
Gents - Thanks for the posts. I’m starting RT in a week and hadn’t deeply considered the risks of supplements while undergoing treatment. I hadn’t heard any warnings yet either from my RO. I’ve been...
Sorry to hear you’re having to deal with this. I’m a newbie, but in my case standard CT and bone scans didn’t show anything, but a post-RP Axumin scan was able to identify hot lymph nodes. My PSA was...
Hi Depov - Your mileage may vary, but I completed RALP on August 2nd and it wasn't too bad. The first month was mostly home bound with some incontinence. I had been told not to worry about...
Wow! Fantastic news. Breathe it in and enjoy....
Only two weeks since my first shot. I'm scheduled for 18 months - so 2 down and way too long to go. So far no symptoms, but thanks to everyone for sharing their own stories. I cut out sugars a few...
Hi, I'm new to the Lupron and not familiar with the types of shots, but my first one was in the hip. It didn't hurt much at first, but did cause a little soreness the following 2 days....
Hi Mayor, Not much to add given all the good advice provided by others. It also sounds like you have a good plan -- and now you know what you're up against. I'm also 52, had no symptoms, and my whole...
Hi Jerry, Enjoy the well-deserved break and thank you for sharing your story....
Good to hear. I'm starting RT on Dec 20 and was told I would also have Xmas and New Years Day as "days off". I was wondering about this too....
Hi There, Time to join this thread. Thanks to all who have shared their experiences. It’s really helpful to hear from others on similar paths. Further review of my own pre-surgery “clear” PSMA/PET...
Hi, not sure but the doubling time would make me think its time to get going. My (limited) understanding is that earlier treatment for recurrence yields better outcomes....
Hi Motown, I'm a little nervous too -- my first Lupron injection is also tomorrow. Looks like you have a shorter journey though. Plan is for 18 months + Zytiga and radiation. What fun....
Interesting. I surfed about 5 days a week the past few years and have never felt healthier despite my PCa (although we'll see after the RT + Lupron + Zytiga weigh in). Hoping I'll be able to carry...
Good luck, MG. I haven't been through IGRT/IMRT yet so can't offer any tips other than to breathe and still find the positive in each day....
Hi JNF - yes, the plan is to radiate the pelvic lymph nodes since it is the only area of cancer detected in the PET/PSMA and Auximin scans. Hoping it’s all coming from this one spot, but like you say...
Thanks InTheShop. I received a helpful call from my team last night. Upon second review of the pre-surgery trial galladium PSMA/PET MRI they did see some uptake in a pelvic lymph node(s), confirming...
Hi fighting62semperfi, I'm also a newbie to this forum. Good tips above. In the past 3 months I went straight from feeling healthier than ever to diagnosis of intermediate risk cancer -- to surgery...
Hi All, Wanted to share an update as we're finally learning some new things. I met with the Stanford team and had my first post-surgery scan, the Axumin CT. Results are not final, but radiologist...
Hi All, As an update I am meeting with the extra team (medical and radiation oncologists) at Stanford next week. Another round of scans are planned, and then I have second opinion meetings set with...
Hi Mattamx, Thanks for sharing your perspective. As for me, although not confirmed it appears my PCa is also systemic so there's a lot to consider from both sides on this one....
Thanks everyone for the encouragement and insights. I'm intensely gathering information now, and as you all know its a lot to absorb. I'm waiting to hear back from the team at Stanford, but have...
Thanks for the comments. Haven’t met with other doctors yet, just the surgical oncologist who was really surprised by the results. Setting up a meeting soon to get better info from additional...
Hi, Sort of new here, but putting this out for input or ideas. Here's my situation - Diagnosed in July with PSA 10.7, Gleason Score 4+3, clean bone, CT, and PSMA/PET scans, and completed RALP RP at...
Hi, Thanks for sharing your situation. It sounds just like mine. I'm 52 and was diagnosed with PSA 10.7 a few months ago and completed RALP surgery at Stanford in August. Gleason 4+3. Negative...