Merry Christmas 🎄 to you All! I haven’t posted in awhile nor been online much lately. My husband just completed 33 rounds of radiation between Oct17-Dec04 w a daily commute of 4 hrs to the city and...
We have our dates for radiation. Simulation Sept 27 and 33 low dose RT’s to start Oct 17/19 & another PSA prior to Tx. He’s been doing well on 150mg of Casodex for the most part, but he’s developed...
Thank you for your well wishes. Yes our RO is planning low dose RT to the prostate bed. Our doctors best guess the remaining PSA is from this area based on some +ve surgical margins & the removal of...
Thank you both for your responses. My husband’s doctors agree he qualifies for the PET Scan & will order it, but gaining access to it in Canada is not so easy. Our Doctor had approval or funding for...
Good Morning ☀️. Have to brag a little here. Our young Canadian tennis player did it!! We’ll take a training tip from her and visualize my husband cancer free by Jan 2020 😀. My husband is back at...
Hi Nytngale, Good to hear from you. I agree this is a long road & not easy for any of us! Thanks for the prayers & your response. I continue to think of the two of you as well. Glad to hear your...
Hello Marv, Sorry you need to be here. I know the feeling of needing heartfelt, honest information in those early days & weeks when you’re making treatment decisions. You’ve come to the right place....
Hello All, I’m so happy to report my husband is doing great these days. Feeling more like himself every day & the incontinence is so much better, 1-2 nearly dry pads/day. Yeh!! However, the Casodex...
Hello Everyone, Hope you’re all enjoying the summer. We had a beautiful weekend in cottage country! My husband is now 14 wks post RP. Doing well and feeling pretty good. Back at work on a GRTW plan....
Hi Yaamba, I didn't have a chance to respond till today. I'm glad Mattam did. I'm also one of the wives of a G9 on the forum these days. Those numbers are so hard to see. I totally understand your...
Hi Mumbo, Didn’t have time to respond till now. Taking a much needed break from home updating and headed to the cabin for the long weekend 😀. Yes it looks like you and my husband have similar stats....
Hi NOTk, Just letting you know I'm following your thread too. Your a G9/10 w a high PSA and 57 like my husband. Thank-you for posting your information & experience. Very encouraging news so far. ~ LjK...
Thanks for the info on the PSA half life guys, I'll have to look at that. In some ways it gives me a little hope; although going into surgery, the reality was he'd likely need further treatment at...
Hi Mumbo, Thanks for responding. I was told by the surgeon prior to surgery that one of the undesirable side effects of pre-op Casodex is it can cause the dead cancer cells to become sticky,...
Hello All, My husband is officially 9wks post RP. He's doing well w his recovery but has significant stress incontinence and is finding it very difficult some days getting used to this new normal....
Hi Andrew, Congratulations🎉. Great to hear🍺!! ~LjK...
Hello all, We are still waiting for true spring to show itself around here. There’s actually a possibility of frost tonight! It’s just over 2wks since pulling my husbands catheter & drain; he’s...
Very happy for you. Good to know this, we will have to watch for that! ~LjK...
Yes it is 😄! Looking forward to going for a walk w him & maybe for some ice cream🍿....
Good news to report today...we received an end of day call yesterday that the drain sample came back w normal creatine levels, so its looking like lymphatic drainage is the cause for the elevated...
Thanks for sharing that FranPro. Great to see another low PSA post surgery & that you’re staying positive & doing so well!! My husband finds sleeping on his back is most comfortable for him & does ok...
Hi Nytngale, Wonderful news on the latest PSA#. I’m so glad to hear it & that he’s tolerating his radiation treatment so well. Let’s hope your husband continues to do well w treatment & this cleans...
Hello All, My husband is nearly 3wks post op from his RP and although still a bit weak, feeling pretty good. He’s being very patient, but getting very frustrated w his tubes!! They were supposed to...
Hi Nytngale, Thank you! Yes things could have been much worse. We had some wide eyed Residents by Fri evening! One day at a time for all of us around here 😊. How are things at your end?...
Hello forum family! It’s a nippy sunny morning & there is a forecast for snow ❄️ on Monday. Yikes! We are so ready for warmer days & for spring to stay. Well we are on the other side!! My husband had...
Yes the 18th will be here soon. Thanks for the list Halbert & for keeping tabs on us. Much appreciated. On our way to the city to see Anesthesia today. I’ve had all my surgeries at this hospital so a...
Hi All, Haven’t posted for awhile. My husband is doing pretty good. His PSA went up to 185 (Yikes!), but has dropped to 50 after being on Casodex. He managed to keep working. Mild side effects to...
Why we are considering surgery... Following G9 biopsy results, PSA 150, we met w the surgeon for his MRI results & even w negative CT & Bone scans, we were totally prepared to hear our only or better...
Has anyone read the 2 articles in the Urology Times I mentioned in my post on 13/03/19 sugg by jmadrid RE: RP vs RT as primary treatment in high risk cases in the <60yr old cohort? Many of you have...
Big John, I had to figure out the signature thing too. 😊. You need to be logged in. Go to the menu upper left corner on your screen. Go into my profile, hit edit profile & scroll down to signature....
Yes this forum has that effect. You know you’re talking to people who are walking this same path. We are being told the very same thing about surgery. If you choose not to go w it as your primary...
Hi Big John, My husband & I are still very new to this forum site, but it’s been a great resource for us & the guys here know their stuff & have been very supportive. A special hello from Manitoba &...
Hello All, First off, thank-you all for your comments & the MSK & Urology Times Links. We also ran my husbands numbers through the MSK nomogram & got those same results. We were in the car for 3hrs...
Hello Everyone, An update on my husband. Much to the amazement of the surgeons my husbands MRI on March 05 shows PCa is contained to the capsule & nerve bundles appear unaffected. Very surprising...
Hello All, Great News Dogadays! Lets hope things stay there. Fairwind, tough numbers, how are things this week? Hello Maleko, good you've joined. Good luck w your treatment. My husband is doing well...
Hi Dogdays, Good luck @your f/u visit & hoping your numbers continue to stay low. Looks like you’ve benefited from newer radiation techniques not available to us @our treatment center. We’re in the...
Thank-you all for your responses & being honest. Helps to hear first hand from you as we muddle through this phase. My husband took his 1st dose of Casodex today. Waiting for the MRI appt. We saw the...
Hello All, To Nytngale: Unfortunately it sounds like we have a few things in common & their are similarities in our husbands characters! Thank you for sharing your journey so far. It sounds like...
Hi All, Some Good News today: Bone scan is clear!! He has some Osteo which we knew already. CT in January was normal so that's all heading in the right direction! So far "Best case scenario for a...
Yup, I've encouraged that. One step @a time:) He doesn't really like the computer or his phone. He prefers to be in the garage w his tools & cars....
Hello All, Cyclone, your post came exactly when we needed it! My husband has been handling this PC/Gleason 9 diagnosis with such courage. Yesterday I could tell he was reconciling things in his...
Hello Tudpock18 & Redwing57, Thanks for responding. I'm new to posting on a forum, never done it till now as I'm sure you can tell. I wasn't sure what happened to the above post after I submitted it!...
Hello Gleason 9 Crew! I am the wife of a newly diagnosed husband (age 54) with aggressive PC, PSA 150 & Gleason 9. That’s all we know at the moment. I’ve been posting under this heading; “PSA 150 -...
Good Morning. All your posts have been extremely helpful and I’m so grateful for this connection. So thank you all for your insight & taking time out of your days to send messages. They are keeping...
Thank-you I'll have a look. I think surgery, if offered or possible will have to be up to him, but I think if they can manage it w other treatment it would be better for him. He's at work right now....
Thanks for your replies. I will do my best w your suggestions. This will not be easy! ~LjK....
Thank-you for your posts. I didn't think surgery would be a great option either from what I've read. Some of the RT looks promising. Not sure how he'll handle the info on ADT & the potential side...
My brother knows of 2 men diagnosed years ago that both had high grades w Mets ( I don’t know where) who had surgery, chemo & ADT. Went on sugar free & vegan diets & one has been in remission for a...
Hello All, It feels like a lot has occurred in such a short time. In our notoriously slow system, they certainly moved quickly for him; & I’m grateful. The Bone scan was yesterday - results still...