This is 100% true! This is how I found the help I needed back in the day. A Google search on elevated PSA and the rest is history. This is the exact reason why I try to post updates because I...
Quick update to my update 3 years ago...wow that went fast! Just has our 6 month test and still <0.006! Djin, thinking of you again. I think of you every time we see that beloved < sign! It was the...
Have you considered a Decipher test?...
Our son started testing when he was 28 he's 32 now. Testing has fluctuated from as low as .63 to .83 and back down again. Started testing super early so we'd have a really good baseline....
Wow I have not posted here in a long time, in fact I know my profile is not current but I absolutely have to thank you for posting this and following up so diligently! After completing SRT my husband...
Paige, Do you know why no lymph nodes were removed?...
Congratulations GG! My husband finished his thankfully uneventful SRT a week ago. No ADT, next uPSA in 3 months. Good luck and prayers to us for excellent results!! :)...
GG, My husband started SRT last week. He has a decipher score pretty close to yours. Prayers for an undetectable Spring!...
In addition to the kiosk change, at our last LabCorp test we were able to hand her our phone so she could scan the code on the lab order without us needing to print it....
We use them every 3 months for the uPSA. Our test results are posted the very next day (even if it's a Saturday) typically no later than noon. They have never once not been there the next day. Once...
Flat out, point blank- I would NEVER have gotten through this without you! You have been there for me day in and day out no matter how late at night, no matter what time of year (even when you didn't...
Same thing happened to us at the 9 month mark. We've been pretty much hanging there ever since (for the most part)....
That's what we're doing as well, testing every 3 months and taking action at 0.03. RO is in agreement....
We have the same PSA as Tennis so I'm following this thread and obviously obsessing on every word :)...
Proto, I noticed you said you're not a doctor just a guy recurring like Tennis. Does that mean you think he's in BCR?...
We never really looked at open although it was tempting only because we're in Chicago and do have access to Dr. Catalona. The reason we didn't is because I was under the impression that with RP there...
Yes but I think he only does open. I was going to switch our after care to him because our insurance was going to drop the University of Chicago but they ended up working the contract out at the last...
You picked the exact 2 I would have recommended. My husband had surgery with Zagaja in February of 2017. Top notch surgeon....
Well I certainly understand why you're not sure on the ADT then. Only 5% of 5% and low risk Decipher. Looks like you're on the way to a cure once and for all now though! Wishing you the very best and...
Prato, I think I've been thinking your entire tumor load was 5% of your prostate because I saw this in your signature on another forum. "5% of Prostate involved in Tumor" but are you 5% pattern 4 of...
This is wonderful news!! Thank you for sharing this. When I saw the title I automatically assumed it was going to be bad news. Just seems like there's a lot of it around lately. I read everything...
FWIW my husband also had a prior hernia surgery so he too had mesh. I asked our surgeon about it because I had also read that it can be an issue and he was not concerned. It turned out not to be a...
Stick around this place. These people are amazing, they will help you through this....
No he had Da Vinci prostatectomy at the University of Chicago. I did briefly consider checking out open but only because we have the mac daddy of open prostatectomy right here in Chicago, Dr....
Glad you wrote back already because I was just going to edit my last post as I went back and read some of your history and wanted to sincerely thank you for your service! I truly mean that....
We never even really got to the point where his young age needed to sway us. We were leaning towards surgery to begin with and then once we found out it was invading that section of his urethra that...
My husband had a large TZ tumor. RP was a good option for him because it removes a portion of the urethra which happened to be where part of the tumor was growing into. At his MRI we were told EPE...
Thank you TA, Fairwind, and 142. Sardines are a fantastic idea and he loves them! I'll read all of those studies this morning. I asked his doctor (our regular GP, not his RO) to test his Vit D and...
Because we gave up dairy I thought it would be a good idea for my husband to start taking calcium. I just read a few things on the internet that said too much calcium is bad for PCa. Should I have...
Bravo! So well deserved! I say you're elite and then some! Thank you, thank you, thank you!!...
I'm so sorry about your wife. That's so kind of you to say, thank you! So far I don't think we regret any of our decisions and hopefully that doesn't change or I don't miss something we should have...
InTheShop, Question for you...I thought that leftover prostate tissue could not generate PSA because it no longer has its blood supply so it dies off, but cancer cells have their own blood supply...
TA, Thank you for explaining it that way. That is helpful. It's a difficult spot to be in. We had the last follow up we're going to have with our surgeon and they're high fiving him for excellent ED...
Thanks IntheShop and John_TX. Yes, we'll be watching for a trend that I hope never comes. We do have an RO so we're good to go on that (hope we never need her). I was talking to the someone in the...
15 month PSA result came back at 0.014. I was praying it would stay at 0.006 but it didn't. When it went up last time I didn't know his Decipher score yet so this time I'm even more worried about the...
"A little ditty 'bout Jack and Diane Two American kids doin' the best they can" Married to my high school sweetheart 31 years, this song always reminded me of us we really were two American kids...
IT, I always appreciate honest advice. I don't want things candy coated so thank you. It's funny you said what you did because I was honestly just thinking the same thing. We could be 6 months away...
Thank you, John!...
Glad you said that because I was going to ask (not for our case since my husband already had surgery) if it should become automatic for those deciding between surgery or radiation to have this test...
TA, I did not see the PORTOS score. Based on what the RO sent me I don't think GenomeDx sent that. She sent me everything they sent her which was 2 pages and a fax cover. Is that part of the Grid...
Just saw the Decipher results for my husband. He's high-risk at 0.75. His PSA is 0.006 at one year from surgery. Not sure how to take this info, I am of course very scared. Does that mean high risk...
We use walk in lab and like it a lot. Results come the next day directly to me even if it's a Saturday. I can send them to our doctor by simply pushing a button and entering their fax number. They...
When my husband had his he didn't get any type of sedation. He said overall it wasn't too bad. He said it was pretty much the same as his first standard 12 core biopsy except for the ones in the TZ...
Thank you! Yes we are similar and I see you're doing well, love to see that!...
Wilderness, on the +50 multi, is the Selenium and vit E a concern? My husband stopping taking it because I read they were bad for PCa and all the multi vitamins I check have them. Otherwise he pretty...
I have an update...My husband just had a blood draw which was exactly 12 months after RP to the day. We received the results and his PSA is down to 0.006. We don't have the
I read your blog and I just referred someone that is concerned about PCa there. Thank you for all that you do to help everyone. Your blog is amazing and so well organized so that it is easy to find...
Thank you NKinney. IT has also been thoughtful and sharing his experience with me after I posted about my husband's uptick. When I asked about our margin the surgeon made me feel hopeful that he...
My husbands pathology is a pT2+ with his margin at the bladder neck. When PSA starts to increase can you help me understand how the intraprostatic incision is meaningful? I was hopeful after...
No eggs or dairy for us either but PSA still went up despite doing that. Even though PSA went up we still don't eat them. When I ask our doctors about this they look at me like I'm crazy. They say...