Nice editorial in Nature this week on the need to study cancer survivors https://www.nature.com/articles/d41586-019-01095-9 Here is a little if the link doesn't give you access When Gregory Aune was...
Hi Clocknut let me know how it goes recovering from you hand surgery. I have trigger fingers and thumbs in both hands too. I have been blaming it on Lupron side effects. My 6 months after treatment...
You and your Dad might follow-up on research currently underway changing drugs when PSA goes up. This excerpt is from an April 2019 Wired magazine story (A Clever New Strategy for Treating Cancer,...
Great information Craig sorry you have to deal with this. If you haven't read, The Key to Prostate Cancer Mark Scholz I would get a copy. The book includes various experts who take on different...
Kmac it looks that a good plan to me, although I am not a doctor. They hope to get any remaining cancer. It may be that they recommend long term hormone treatment after that. Good for you for...
It appears that the PC regret studies are similar to other regret studies indicating that regret is associated with poor decision-making. Taking your time for treatment decisions is good advice and...
I had dentist that was interested in replacing my old fillings and crowns. I no longer use that dentist. It seemed that every other year he would find one to replace. In my view these are revenue...
P of course it will be different for everyone. I just got my T-Tot results at 440, 3 months out of 6 months on Lupron. Treatment ended Nov. 28, 18. It was 886 in May 15,18. My Libdo is still low but...
I woke of this morning wondering about my hand pain and lupron. A little pain in knees and feet too. I am 3 months out of a six month Lupron journey. It worked on helping to kill the cancer with my...
Saipan here is the quote from the U.S. Government Accountability Office https://www.gao.gov/assets/670/662727.pdf : "The Social Security benefit formula adjusts monthly payments so that someone...
I took social security last year at 68 when my PC was diagnosed. I had planned to wait until 70. A GAO report indicated that taking SS early works out about the same as waiting. Even with the 8%...
New, I did a little research on this and it appears that although it cannot be ruled out that PC progresses over time to a higher Gleason score it is not considered significant, at least according to...
Justin, it sounds like the treatment that you had may have promise for folks that want to continue with AS. Avoiding radiation and surgery and their side effects even without a cure was explored in...
Good Article! I have wondered why the cancer treatment insurance coverage does not include reimbursement for cancer recovery like diet and exercise, as there may be a lot of additional health...
It appears that you may have neurogenic bladder. I have one due to a disc fragments hitting the nerve root but I have the opposite problem-retention. I found a urologist at the time who could...
Cyclingthe50 I would continue to try to understand my PC a little better prior to selecting a treatment. This might include a second opinion on your biopsy, John Hopkins is good, covered by insurance...
GeetarMan I agree and it should be a crime. It is extremely sad that a man in his early 80's who was regularly getting physicals was not being provided a PSA test or even given the chance to discuss...
Vistacal, you information regarding your experience with AS should help others. Thank you for posting. It seems to me while you are again waiting for treatment you might want to do some genetic...
Todd I have never read an article with some much relevant information. I am so happy for you and your wife. Best wishes!...
Hi Beaver, lets start with your insurance plan. You need to go through your options carefully. You want a comprehensive medical plan (more expensive) as it will hopefully cover MRIs, genetic testing,...
I agree it is the Lupron, although I am used to aches and pains running long distance I have more since my 6 months lupron experience. However, my orthopedists said it really doesn't matter if it was...
I thought it might be good to start a thread on Patient Navigators to see what others think about the service. My best experience with a patient navigator was at the MD Anderson Proton Center. My...
I am happy for you Writeblock. You will need to keep exercising resistance and some aerobic. You might end up gaining a little weight, but you can deal with that later. I wish I had tried Megastrol....
Nice writing Dude! I am sure your story will help others. Glad to see you are doing fine. Best wishes. 69 yrs., 44 3D-CRT/IMRT Radiation delivered via 3D-CRT in 1.8 Gy minimum dose fractions to a...
Mentor that is a drag. I had the same diagnosis early this year. I recommend your read everything you can. There is a lot of good information out there. I liked Mark Scholtz, The Key to Prostate...
Mufjem, I am proud of you. You are taking AS very seriously and doing all the follow up testing that is necessary for AS. Your results to me look like you are doing what you need to do. Your PSA,...
SubD, mine is caused from the radiation the urethra is inflamed and sensitive. Of course, I am only a month out from 44 zaps I have more of a ich which is similar to itchy eyes if you leave it alone...
Hi BlackJack, I wanted to thank you for your post regarding having sex in the morning etc... I have just finished 6 months on Lupron and 44 radiation treatments. Besides that I had developed peyronie...
Marksun that is great your running times have increased. I am slowly building back my endurance after not running with the knee issues. The radiation effect is like a 40% drag on me, but speed work...
Hi MarkSun, as a fellow runner and 6 month Lupron patient let me say I feel for you. The combo of the radiation and Lupron can wear you down a little especially towards the end of treatment....
Hi Randy, best wishes on your cruse and treatment. If you haven't had genetic testing this is something you should order. This might increase your treatment options in the future. " In February 2018,...
My dad had a hip replacement at 90. It has served him well he is now 94. Mobility is extremely important to health. Hopefully your dad is working with a physical therapist on using a walker or a...
Nice to see! 69 yrs., marathon runner with knee injury, 41 of 44 3D-CRT/IMRT Radiation delivered via 3D-CRT in 1.8 Gy minimum dose fractions to a total of 79.2 Gy., 10.5.18. PSA .012, 8.12.18, 1.42...
Jim I hope the PSA jump is nothing. If it is I am sure you will deal with it and get on with life. Here is an interesting article on the subject....
EZ I am a little ahead of you with 3 out of the 44 treatments to go. I had the tattoos and CAT is done without any interruption prior to final positioning. LIke Bob my only se have been minor itching...
No side effects from Casodex actually had a little T boost as I didn't get the Casodex prescription before my Lupron shot. After a month on Lupron started getting pins and needles, and mild hot...
The combination of EBRT/IMRT and brachytherapy HDR if you can handle it based on your health. plus ADT is often recommended for 4+3 to kill all the cancer. Don't be afraid of hormone treatment. If...
Tebozo I have heard good things about the University of Texas Southwestern Hospital in Dallas. A physician friend of mine had his surgery there. His brother is in a clinical trial there for PC too....
This study compared patient-reported outcomes from contemporary external beam radiotherapy (EBRT) using an intensity-modulated approach (IMRT) vs EBRT from the 1990s. Participants were selected from...
P34 I have had the dilation 4-5 times over the 20+ years since I was diagnosed with a neurogenic bladder. I recently did it prior to radiation which I believe has helped quite a bit. However doing it...
Just to let you know my dad had a biopsy radiation treatment and hormone treatment for six months at age 78. He is now 94. He was overweight, had a bad knee and hip (hip replaced at 90) and told me...
Thanks for your honesty Pratoman glad your 2 year ordeal is over. Enjoy life!...
Almost everyone over 50 has a meniscus tear or a little arthritis so the Lupron doesn't help. After PT and six weeks of rest, I am running again. I also visited with a very good orthopedic surgeon...
Good for you ldog, it looks like you have found the right diet and you are fit. Since I started Lupron 6 months ago I put on 10 LBS at 5'7" from 147 to 157 all around my waist. Since you have lost...
Hi Tigers sorry you are having to deal with this. I think AS is definitely worth pursuing. However I would recommend some genetic tests off your biopsy slides. This will confirm the aggressiveness of...
Bob I am seeing the same endurance issues, but I am doing more exercise resistance training and PT exercises than I have ever done. It has helped with both Lupron and RT. I ended up tearing my...
Bob yes they do provide the modesty hand towel however it is on and off at a fast pace. True at my age I shouldn't care but I have always been a little shy. It would have been nice to qualify for AS...
Since I had been taking Lupron for 4 months prior to starting my 44 treatments I still wonder if I will walk out into the waiting room without my clothes. My main goal has been to finish my remaining...
There are a number of things beside the lupron that can cause fatigue. To start I would get your thyroid checked. Here is a good article on other causes...
Mark keep up the good work. I devoted a couple of my newspaper columns to it. A old coworker who was always a jerk spotted me in a checkout line and pointed to my crotch " I read in the paper you...