Per Dr. Kwon, Mayo, (see video) a drop of at least 50% after 2 treatments is likely a sign of success. PSMA & Lutetium-177 in 2022 | Eugene Kwon, MD | DIY Combat Manual for Beating Prostate Cancer...
Tall Allen is a great resource for everything known about PC. He may post here eventually, but he is very busy. He is a PC survivor, also. Here is his blog to contact him by, possibly:...
I am not a doctor but a 5 year survivor, with a GS9. My PSA jumped from 0.4 to 7.3, in 3 months, recently, due to an increase in Testosterone (T), from 240 to 330, we think? I had been off Lupron...
I had RP, EBT & started Lupron for 2.5 yrs. Maintained <0.1 PSA. Went off Lupron & after 1.5 yrs. rose to 0.4. Axumin Scan showed lesion, only on T-ll. Had it CyberKniffed. 3 months later T went from...
Thanks, mattam. It will work until it doesn't and by then hopefully there is something better?...
Well, as an update, the Lupron/Appalutamite is working after 3-4 weeks. MRI, a week ago showed a shrinking of the T-4 lesion and restracting from the Spinal Column opening. So holding off on...
Here is my RO: Dr. Bedwinek -...
Mumbo & mattam, yes the Doc. is checking on all the possible ways for funding. I can afford to make the payments but would have liked to spend the money on something else. Thanks for the thoughts &...
Thanks, Duck2. I am getting the first month free and that is it. My Doc. is approaching Janssen for any discounts. What are your stats., how long have you been on it, SE's, if you don't mind?...
Well, we think the Cyberknife treatment went well but in the interim, my T jumped 35% (244 to 331) & my PSA went from 0.4 to 7.3. Had the more precise PET Scan & I now have numerous mets. in the...
Great discussion and this confirms what my RO told me about the uniqueness of high GS. Mine was a GS 9 (see history). I went from a PSA <0.1 in 5/21 to PSA 0.4 in 11/21. This is after 3.5 yrs. of...
Good to know, Scott! Some day I may need to know but we have to weigh the costs, timing, etc., I guess? Hope your psa continues downward! I hope the longer we can stay alive, the closer we will be to...
My RO determined that my cancer is Oligometastatic and suggested just treating the met now. I just finished (today) 5 doses from a CyberKnife treatment of a metastases on the T-11 Lamina, of my...
Fortunately, I currently don't have any use for this test because I met with my MO and he returned me back to my RO to use Cyberknife on the lesion. I am going in for additional scans (CT & MRI) this...
Oncotype DX AR-V7 Nucleus Detect Test. Forgive me if someone has already posted about this? From their website:...
ntz guy, Not sure if it can be radiated. It is on the thin bone (lamina - T11) next to the spinal cord but not sure if they would concerned about the close proximity. Read somewhere that with the...
Have not posted for a while, just enjoying not thinking about the monster. However, as we 9'ers know, there is a likely chance it will come back? Well it has, at a 0.4. Maintained a <0.1 until...
An alternative method, if interested? Had Fiducials placed (4 gold markers), 2/1/18. Had to do a low fiber/residue diet, 2 days before. Also, had to take a laxative 6 pm night before and restrict...
Second PSA<0.1, since finishing the Trifecta (other than continuing on Lupron)! Keep exercising, eating right, etc., and being an inspiration for the newly diagnosed! Hang in there Warriors, my MO...
Blackjack, before Lupron (on my 3rd 6 monther), I think I remember that, Lisa Edelstein, was "sexy" looking? :) She could be "Lou" Edelstein, now as far as I am concerned? :) And yes they actually...
John, very similar situation here, but no LN involvement (fortunately). MRI showed tumor contained, but once the surgeon got in there he found extensive spread. I'm not sure if primary radiation...
Ted M, My URO, was a former surgeon and recommended I go with radiation because of possible incontinence/ED with surgery. I was a G8 and the MRI seemed to show organ confined. Like others I wanted it...
I have been on Lupron/Casodex (ADT) for 6 months and had no loose stools until I had radiation treatments (RT). And now, 6 weeks following RT the loose stools have lessened. So, just with ADT I...
Don't know how significant this is, while under the spell of Lupron/Casodex. Been six months since RALP and ADT and 6 weeks post RT. My T level went up 4 units to 24 within 4-1/2 months. Don't know...
Been waiting for the experts to respond, so my guess is that if tissue is still available from your biopsies or any final path report, it can still be done? Discuss with your Doc's, obviously....
Yes, DJBG! Sorry about that!...
It was actually administered by my Surgeon's nurse. He directed me to the RO, also, for RT. I am now going to use an MO, who is in the same building with the RO and mentored by him to do follow up...
DJBG, As I posted earlier in the thread, I finished Adjuvant RT 4/16/18. So, it was not Salvage. I went on Lupron/Casodex one week after my RALP, due to my path being upgraded from GS8 TO GS9. The...
Yes, HappyRick, as redwing says, sorry you have to be here. Keep up the exercise and eating healthy. It seems to be minimizing my SE's on Lupron, to mainly "warm flashes", at night. My Dietitian...
kabog121, No one explains it better than Dr. Catalona, IMO, in case you haven't read him: http://www.drcatalona.com/quest/quest_spring03_2.htm ...
notyet, can you tell us your GS? Also, have you had any scans for possible bone mets?...
Adagio, don't know if your knee can take it but jogging is great to combat Osteoporosis. Does not have to be a fast pace, either. Been doing it for several years and just turned 70 and my bone...
So, how long or how many Zometa injections do you have to have, Everton?...
FB, I didn't have a bell to ring after my RALP, either. It is after radiation, which hopefully you won't have to have?...
My uro recommended Neosporin 2-4 times per day. Worked for me and I had the fun of little foley for 3 weeks! :redface:...
This could be FB because your Bladder now sits almost on the Rectum? You may find, for a few months yet, squirting a little when you fart, too? Here is a video of me ringing the bell, following my...
Andrew, enjoyed your blog, especially as a fellow engineer, although retired, and your references to data, measuring, food and exercise. Fortunately, I am married to a Dietitian and she keeps me on...
So, Everton, what is Zometa like?...
Thanks, Everton! Yes, it is a great feeling! How were your SE's with Chemo? I hope to not have to go there but with a GS9, who knows? Keep up the exercise and fight the good fight!...
Thanks, Andrew! Yes, it is a great feeling to "get ur done"! My Doc. said now live large!...
Thanks, 81! It is one of several SMS Hospitals, in the St. Louis area, on the West side. I live in a small town just to the North and it was an easy drive but I got tired of it pretty early. I now...
Finished Adjuvant RT 4/16/18. My SE's were mainly an extra urge to go and fluctuation from too soft of stools to slight constipation, when I took Imodium. The rectum nerves get over stimulated and so...
Mine, too. Congrats, John. You showed fortitude ringing the bell before going to pee. Well done! [/quote] SP, anything to help us get through this! Actually, I only drank 12 oz. of water before...
Larry, yes I had a few of those, "get on the thrown quickly" incidences, too. Imodium helps but it kinda constipated me, so I went back and forth taking it. I have to force the car from heading...
Rob, that was the same thing my RO told me that the "boost", as he called it, of just the prostate bed would hit less of the rectum and would lessen the SE's. Hang in there, you can see the light at...
Finished Adjuvant RT 4/16/18. My SE's were mainly an extra urge to go (rectum) and fluctuation from too soft of stools to slight constipation, when I took Imodium. The rectum nerves get over...
Thanks, Mike! I forgot to get a picture of the poem, I recited. It is a popular one. Most likely you will have something to do, also! Try to exercise as much as you can because, as I mentioned, my...
DJBG, I just finished Adjuvant RT yesterday. So, it was not Salvage. My SE's were mainly an extra urge to go and fluctuation from too soft of stools to slight constipation, when I took Imodium. The...
carattop, Fantastic results! How were your hubby's Side Effects on Chemo? My MO says, for me, the Chaarted study does not show any value for Chemo because I don't have any distant mets. (that show...