My RO is Dr. Knab at the Elliott/ Dana Farber in Londonderry. He is very good. My MO is Dr Roberts Dana Farber Boston....
I am a Dana Farber Prostate Cancer survivor. I have noth but good things to say about them....
I rang the bell two weeks ago and got my certificate at Dana Farber. It's a really good feeling. 39 sessions and I have just one more 30 day Lupron shot, followed by hurry up and wait. CONGRATS!!!...
Get a MO, no not rely on your URO. I just went through this and got a MO after 3 straight rises one year post RP. I just finished 39 sessions of radiation and 1 more Lupron shot to go. I was 0.09...
So first PSA test following radiation is less than 0.04. Good start. But I had a Lupron shot today as well. It's kicking my ass again....
It's a fun roller coaster ride. The prep is the hard part, then starts the side effects....
We today I finished 39 straight weekdays of IGRT. now the waiting begins on new PSA results....
Guys, I am fully aware that is why I said "Cure", because that was the term my RO used in our last meeting....
No, my Uro refused to give me a ref to Dana Farber after 3 straight PSA increases so I had to go to my GP and ask, she agreed. DF said I def. needed treatments. Thanks to my support group at AnCan I...
So the ADT is worse than radiation. Fatigue and lack of appetite has been the worse part. Also going #2 was just once a day,now it is up 6 or 7 a day due to irradiation from the radiation. Also...
So to the exact day one year post RP I was re-diagnosed with Prostate Cancer and have completed 4 months of ADT out of six and 35 days of radiation out of 40. Just 5 more sessions to go and 2 more...
Your Uro can do it over the phone....
I am currently on both. The only issue I had with Casodex was I got a rash 2 weeks after starting, so I took a few days off after I got my first Lupron shot. Now I have no issues with it. Lupron and...
Sorry about your Dad. I am not at the stage but I am advanced. I can't go to the gym or umpire high school baseball right now but I do at least one walk a day and go to daily radiation. If you are...
One year post RP I was diagnosed with my cancer return. I am now on 6 months of ADT and 8 weeks of daily radiation. I would rather have C-19. Just saying ADT sucks!...
I intended to be on the Zoom. Radiation yesterday knocked me out, so I took a nap....
I am in....
Starting my 8 weeks of radiation today. I was literally re-diagnosed one year post RALP. I will be heading that way in a few minutes....
I am 7 weeks into ADT. Casodex and Lurpron. I start radiation in a week. Also had RP 14 months ago. I would take surgery over this anytime. It seems my body does not like Lupron. Hot sweats and...
Nothing gets me down. I am going to win, but War Is Hell! I lie, we all get down, but the fight continues. FP/Russ...
Looking forward to ADT ending. I still have 5 months to go. Me and the Meds don't get along. I am lucky, I am only 58 and in good shape, so that helps and hurts I guess. It's been a long 18 months....
Funny, I have lost weight since starting ADT. I just don't get hungry. I would rather have surgery than ADT....
So far Lupron and Casodex are not playing well with my body. I am very tired most of the time. My left hip that does have some sports injuries and arthritis is in constant pain. I also got a rash...
So, I just had my first 3 month shot of Lupron. My first shot was a 30 day dose. Should I expect any different side effects? So far, it has just made me tired and have a low appetite. I lost 5 lbs,...
I am in the same boat. My MO and RO are still working but my Urologist is not. I am on ADT and my shot is still on for Thursday. I had an MRI at Dana Farber last Thursday. my PSA is up to 0.09 13...
And stop your treatments? I am into my 2nd month of ADT. No way I am starting over. Optional treatments, checkups, labs, YES. Not active treatments....
I think Dana Farber was the safest place in town yesterday. I was very impressed....
I went to Dana Farber yesterday for my pre-radiation MRI. Very few people working or allowed in. I was met at the door and evaluated from 6 feet away. The lady that checked me in at radiation was my...
Thank you. I will check it out....
Has anyone else had a rash from Casodex/Lupron? I have been on both for about 4 weeks and have a rash on my back and stomach. My MO said to stop Casodex for a week. Thoughts?...
It was one year ago on Feb. 5, 2019 when I had RALP. Over the year, my PSA went from <0.06 to 0,06, 0.08 and one month later to 0.09. I am now on 6 months of ADT and 8 weeks of radiation starting May...
I always have Benadryl on hand and take it when the fun is over. That deflates the issue. There will always be a little pain when you use a muscle that is not used to being worked out. As young and...
You will get used to it. The next day you will be a bit sore but that is from lack of use. BTW, I have never tried 100 mg of any ED drug. I have plenty on reserve. I may try that....
I have been on it about a year. Start low and build up, I found 7 units work best for me as long as I hit the sweet spot with the shot. I am now on ADT and starting radiation, so the desire is just...
Bones and nodes were clean a year ago. We will find out in the coming weeks. Thanks for the welcome. FP....
So happy to see the new comments and updates. I get my first Lupron shot on Wed. I have been on Casodex for almost 2 weeks. Meeting my RO next week to lay out the radiation plan. I read the entire...
I will be fine but you need to be your own advocate. My surgeon thinks my PSA rise was OK. I knew better and went to an MO at Dana Farber Boston. He disagreed, like me. Round 2. Ding! Stay on top of...
JD, Do what these guys are saying. Be proactive and don't do what I did by putting it off until my PSA was 13.1, stage 3 cancer. My Decipher is .66. My cancer was has now returned one year post...
Thank you BD. How are you feeling post surgery?...
So, I am starting Post RALP ADT today with 6 months of Casodex, with 3 shots of Lupron and 6 weeks of radiation. One year to the day I saw a new MO at Dana Farber in Boston last month. My PSA had...
Update. I got a referral from primary care and saw a MO at Dana Farber Boston 2 days ago. He wants to start radiation and hormone therapy ASAP. Meeting with the RO at my local Dana Farber a week from...
So true. Thank you!...
Thanks guys. I already use the Trimix and it works just fine. I do imagine the ADT will effect my labito, but I hope to still be able to make it work if and when. I know it's silly to be concerned...
I am and have been getting my PSA tests done at Dana Farber since my first on post RALP. Heading there right now to get a new baseline for radiation and ADT....
Simple question. I am 1 yr post RALP and about to enter Radiation and Hormone therapy. I have had ED since RALP, but the shots work for me. I am seeing a small recovery on my own. With Radiation and...
Quick update. I did get a referral to Dana Farber Boston and saw Dr. Roberts MO yesterday, exactly one year from my RO. You guys were right, it seems the cancer is still there. We are working on a...
You will know when you are ready. I had my surgery in Feb and was umpiring in March. The surgery itself is not too bad, but the cath sucks. Once that was out, my life was pretty much back to normal...
Kegel exercises can strengthen and train your pelvic floor muscles to help control urination. This what I was talking about. I do go to the gym and am very active as a football official and baseball...
I have a referral in now requesting an appointment with Dr Sweeny at Dana Farber Cancer Inst., in Boston. I want him to take over my case. Waiting on a reponse....
You already have a lot of advice, I am just shy of 1yr post RALP. DO YOUR EXERCISES NOW! I did and I was off pads in a day post cath removal. I was back to working from home 3 days post surgery. I...