Dave, congrats on your continued good reports! I hope that you have a long string of those in the future. Your story is similar to my husband's. Mildly elevated PSA, biopsy with G7, surgery G9,...
Estimates are just that. But, one thing remains true - the virus is still here and will be for a long time and life will be different. The numbers in many states are still climbing and will continue...
Glad to read your post Cyclone. We just returned from hubby's check up this evening. Doc told him his PSA was undetectable. He PSA this past year has been reported as <0.04. We got home this evening...
Thank you for the comments of support, Mattam, MichaelT, garyi, Pratoman, and FLBeachgal. I just want to add a clarification. I worked as a bedside RN for 17 years and described what my life was like...
Mattam, I agree. It is a basic failure of refusing to or simply not understanding the key concepts of this disease and others. The other diseases noted on the list, while not 100% preventable, do...
One comment re death rates: We all need to remember that the COVID deaths are currently 54K for just a couple of months. Flu deaths are for a 12 month period. Annualize the current COVID deaths and...
I haven't been on the forum much of late and I generally don't comment much other to than ask a question here and there since I am a bit of what I consider an outsider since I am simply the spouse of...
Just my perspective as a healthcare provider with many colleagues in the field who are seeing multiple deaths daily: COVID-19: No vaccine - No Treatment - No Immunity individual or Herd Flu: Vaccines...
I am following these posts with interest. My husband has had two episodes of blood in his urine over the past several weeks and passed a small clot each time. He is about 18 months post RALP and...
My thought is that when this thing is over, we may not truly know if we overdid it. But, I guarantee that we will know if we didn't do enough. Wash your hands even when you think you've washed them...
So, this year we've gotten off to a bit of a rocky start. At the beginning of the month, we had a great report as hubby's PSA is still non-detectable. Last weekend we lost my brother to stage IV...
Congrats on the great result. Hubby just back from OSU with another non-detectable too....
Just of note re biopsy results. My husband's initial biopsies were 4+3 and 4+4. Post-op biopsies were upgraded to 4+5 - things can change significantly from one test reading to the next....
Thanks to all for the support and sorry to not report back sooner. Yep, wine is self-medicating - so I guess I do "take something", but it's way more tasty than an SSRI, LOL! GoBucks - no great meal...
That's wonderful! Stories like yours give my husband and I great hope for the future!...
Thanks much, Island Time. The wine is helping also. I will post our findings tomorrow. I know we are going to continue this living in 3-month increments business at least for another year. Hopefully,...
Hubby and I are heading to OSU tomorrow for the 3 month check-up and next Eligard injection. Does this pre-test anxiety ever go away? I am good until about a week out and then nervous as a cat. He's...
Add us to the list. My husband is currently in the 1st year of ADT and just finished radiation back in May. So far PSAs <0.04 - non-detectable level at The James in Columbus, Ohio. Living in 3 month...
I'm lousy at figuring out how to post links, but here is the brief write-up of the study from the Journal of Clinical Pathways in a cut/paste format FWIW:...
Thanks for the attempt - not sure why the links won't work as I copied them directly - I could try them again, or if anyone really wants a look, go to the California Hospital Association page:...
I served for many years as a CNE in a large community hospital. The following documents from AHRQ provide the basis for evacuation and recovery planning in most American hospitals. I borrowed these...
Thanks, for the video F8. A sad story for sure and I can empathize with his anger. My husband's doc ordered a PSA on his physical the year before his diagnosis that was never done and the omission...
Interesting article list - not at all reassuring except that the majority were older than my husband when they passed. Of note, I recently read that Frank Zappa was diagnosed with terminal prostate...
Agree, treading carefully in any treatment choice is important, as is not taking the recommendations of every "study" with an eye-catching title. In this case, the article title alone could scare...
Interesting study. However, I don't believe anyone should be deterred from going the ADT therapy route based on the higher hazard of Alzheimer's disease/dementia alone. The researchers did identify...
SchoolPsych, Congrats on a great report! My husband's situation is very similar to yours and the reference to "worse and worse" news characterizes just how we felt last year. First the diagnosis,...
You can tell us you love us anytime - it is, so they say, what makes the world go round after all! I'm good for ice cream anytime I make it to C'Bus!...
I have learned to find comfort in the stories of the others as well. We are now a year into this journey and like you, it no longer dominates every waking moment. I find that my anxiety begins to...
Likewise, LadyJane!...
Glad to hear that he is doing well these days. Our guys had similar pathology reports. I would definitely pursue the PET scan to see if they can identify any source for the continued PSA. My husband...
Thank you for this, Donna. My husband's situation was a bit similar to your husband's, upgraded to 4+5, postive bladder neck margin, +SVI, +EPE, and 1 positive node. I have gone through periodic...
Not a lot of new advice to add, you've gotten some great advice from the fine folks here and are doing a wonderful job of educating yourself. Your low PSA, G10 disease is in a class of its own and...
Yep, Bucks - wanted to be sure to share where we ate. It was a new spot for us - Old Bag of Nails Pub, had good fish and chips and hubby loved it as it they had an all you can eat option. The carrot...
Thanks to all for the well wishes. Love the precious metals analogy, JNF! He enjoys hunting small game - squirrels, rabbits, and groundhogs of course. But, his primary is deer hunting - an official...
Went with the husband for his latest 3-month Eligard injection and physician visit. Good news - PSA is still reading at <0.04, non-detectable by The James standard. Breathing another sigh of relief....
Good article Prato - thank you for posting. As someone else already said, this article should be provided by docs prior to ADT to help couples prepare for what's to come. I did a good bit of research...
Thanks for the info Zzarth. Replacement helped my husband into a long remission. This time, not so much. Will be doing some reading on the homeopathic route as well....
Here are a few of my Zen moment pic links - will need to be copied and pasted since I can't get the img option to work correctly (operator error I'm sure):...
Yellowstone is definitely a Zen place for us. The trip is especially welcome this year. I would love to share a few pics, but no clue as to how to get them posted in the forum....
Thanks, guys. You're right, Bucks - he really doesn't need this right now. I think in this symptom ramp up is in good part due to the inflammatory responses ramped up by surgery, ADT, and radiation....
Does anyone else here also have Hashimoto's? My husband was diagnosed many years ago after suffering repeated bouts of idiopathic urticaria and angioedema. He was initially treated for allergies with...
Congrats to those who are finishing their rounds of ADT and SRT, wishing all many years of nondetectable PSAs. This has been an extremely helpful thread. Hubby just received his 3rd Eligard injection...
Posted on the main board - but, thought I would add some info here as well. My husband just had his second 3-month visit at the James with his MO. PSA <0.04 which is the non-detectable standard...
Wonderful news, Lady Jane! Great way to start the weekend! May the progress continue unabated!...
Hi LadyJane, Ongoing prayers appreciated! Good news that the drainage appears to be decreasing - I surely hope that is movement in the right direction! Hang in there!...
So sorry to hear things are still bumpy. The ongoing leak is concerning and as you stated, urethral anastomosis leaks are rare and usually spontaneously heal. I had a patient many years ago with a...
Congrats on the results Captain G! May you have many, many more. My husband is on a very similar journey to yours and it's good to see you both would good results....
Thanks, guys. And yes, Bucks - always wine!...
Thanks to all for the positives. Yes, mattam, we'll take those 3-month stretches - each and every one!...
Returned from the MO visit. PSA <0.04 - undetectable by OSU standards. 2nd 3-month Eligard injection. Halfway through SRT, only side effect is mild to mod diarrhea. Grateful at this point, living...