Hi, I have Medicare part D supplement plan. I also have private insurance ( blue cross) through my wife’s employer. The cost is extremely high. Would anyone please like to share how much they pay for...
I just got my psa. It went from <.05 to .05. I am very nervous about this....
Thank you, Mumbo and Pratoman. I wish if I didn’t know about them. My MO ordered them and I can’t get an explanation as to why they keep going up or what should I do about them. They must mean...
Barb1, I am sorry this is an old post but was just reading it. How is your husband doing when it comes to neuroendocrine PC? hope he doing fine. Thanks...
Hello, I have a rising chromogranin A (132) and rising CEA(9.7) which they are making me very nervous. Has anyone dealt with these 2 markers please?does it indicate bad prognosis? I did a colonoscopy...
Thank you very much cyclone. I truly appreciate it...
Yes, I am treated with a very good pc MO. I sent him a message but haven’t heard from him yet. I am treated at MSK in NYC....
I am on adt for 4 monthly Firmagon injections. The following is the trend: 10/2020- 1.89 ( before injections) 11/2020-.15 12/2020: .06 1/2021: .05 2/2021: .07 (is this a resistance ?) T = 11 Is it...
I am on the same boat rcroller, nothing has worked for me. I have 2 unconfirmed lesions in hip bone and one near the bladder which was negative when biopsy was done. I don’t know what to do. Very...
Don’t worry about the biopsy. I was told when I did the same test that you need to agree in writing to the biopsy but also was told by the same people that no one can force you to do anything. So, no...
You need to wait until psa reaches around .5 to have a good chance of a pet scan finding something auxium scan won’t find anything untill you teach about 2 Psma also needs something around .5 to give...
Mine did the same and it’s now at .51. I have not started ADT yet. I expect to start in 2 weeks. I saw studies to suggest starting early is better for overall survival and it does not make resistance...
Hello all, I have blue cross insurance ( primary) through my wife and Medicare (secondary- only part A and B only). I am going to start ADT end of next month and wondering what is the best way to...
Thank you all for your response. Roblee, if it’s not a problem, what are surgeries the 2 CT scans led to please?...
How often you guys do bone scan and CT scans? I am asked to do both and worried from all the toxicity from these scans. Is it safe to do them like may be once a year or so ? Thank you all for your...
I understand blackjack and am aware about the debate to start adt earlier or later. NIH should get me in for the scan no later than middle of February (hopefully), so the delay I think is not that...
Thanks blackjack for your message. To my knowledge, you start adt in 3 conditions: 1) high psa 2)Mets confirmed by scans 3) rapid PSADT less than 6 months I might be wrong but this is what I...
Thanks very much , cashless for your interest. To be honest, as you can imagine I am very disappointed at my results. My D level around 60. I have been taken. D3& K2 together now in one pill for over...
Cashless, You said “Increasing the raspberries to 5, has allowed me to "roll-back" Roll-back to what please, you mean giving you better results? My wife puts about 10 raspberries on my morning...
Thanks cashless, now I understand...
Cashless, I thought your psa went up to 5 and not .5 after SRT and withyour diet and exercise program it went down to .5 and now .4 I am just trying to understand how the diet is working with you. It...
CONGRATULATIONS, cashless. I envy you :-)...
I think .8 and .9 are the same. The trick is in the DT. I take your case teddy9 as a guide for myself. I learned a lot at this stage of the game from your case. I still can’t get into the NIH because...
Hi teddy9, Was just wondering how you are doing. Sorry to see your jump to .9. Happy new year and best of luck. Happy new year everyone...
Redwing, Congratulations on your good results. I am trying to understand your numbers and compare with my numbers. My MO told me when he calculates the DT, he only takes the last 3 readings. How did...
Thanks, Jerry. Do you remember where you had it? Thanks a lot...
Hello everyone, Does anyone knows if the g68-psma is covered by Insurace. I have a very good plan through my wife’s company and not sure if it’s covered. I would appreciate your experience with this...
Thank you ALL, I truly appreciate your thoughtful comments. I have been having 2 horrible days and nights thinking about it but when I relaxed a bit, I realized that I have learned from here and from...
Thanks very much Roblee, no problem at all. I started my SRT at .07 but the RO didn’t offer me ADT and my surgeon never mentioned anything about ADT so it’s hard to say who dropped the ball, if not...
Thanks, Roblee, What do you mean by saying “doing things early on night have helped”? Did I miss anything based on my situation? The only thing that I could think of that I didn’t do is combining ADT...
I applied for the NIH clinical trial offered at Maryland but being put on the waiting list until January or February...
Not really sure what to say or do anymore, very disappointing result I just got despite me trying everything I can, psa stil rising. Can I wait a few months to start adt or it needs to start now. I...
My personal experience was different. Psa=11. Admitted to hospital for inflamed prostate( prostitius). A month later went to 9. Biopsy reveals cancer. 2 months later I had RP. my psa the night before...
Thank you all, To be honest, although I am Very grateful it stopped rising for a month and half, I can not draw any conclusions due to the short period of time. I pray it’s a sustained result like...
Cashless, cashless, cashless....... Since I got sick, no matter what I have done to control psa. For the first time ever my psa has been holding steady and a bit lower than before. You know, I tried...
Congratulations, cashless. You are a very lucky man and smart too :-)...
I am not sure if this is good or bad although I told my RO and he didn’t reject it I did coffee enema almost every day or every other day....
JohnT, 11 years to ADT resistance or in the case of your neighbor to 19 Or to death?...
i am not sure if i should start a new thread or not but this leads me to the next Question which relates to the first one which is the effectiveness of spot radiation To one or two Mets before...
Thank you all for your sincerity in your answers. I do appreciate it. any recommendations when I should start adt considering my PSADT is 5.5 months?...
I have a question about the effectiveness of ADT in Terms of the length of time before it becomes resistance. I have heard a doctor that says one of his patients were on It for 17 years, I have read...
George, thanks very much for your input but I might be misunderstanding where You stand on this. You said the pet scans are worthless if you gonna start ADT And then you said you would do the Mets...
Thanks George and GfB George, the reason I am thinking of doing the pet scan is to see if there is one or two Mets Then I can treat it with radiation. I wasn’t thinking of a cure but a way to delay...
Thanks George and Bobby George, my PSADT is 5.5 months and my MO suggests that I should Think about starting ADT. if I do then I am not qualified for the NIH trial 18f- dcfpyl. The radialogy suggests...
On August 7, a whole body MRI found a lesion at T6 and the report said”possible metastatic”. My MO ordered another MRI for the spine only on August 29 and the report said: “Since August 7, 2018,...
Any chance or a treatment in my case to help me postpone the start of ADT? My MO suggested that I need to start it due to 5.5 PSADT. thanks...
I saw my MO last Friday. I was so nervous and VERY anxious to the point that He said” I am concern about your state of mine more than the cancer” or something Close to that, I was so nervous and I...
I just called my insurance to check to see if it’s covered. My doctor’s office Told me to call the insurance company so I did. The insurance company told Me to have the doctor calls for...
Bohemond, You have no ideas how much I enjoyed reading this post you wrote. My main Concern about ADT or the way I thought of it is that once I start it, it will cripple Me and limit my activities...
I regret not doing ADT. now I am stuck wondering when I should start my Lifelong ADT. Too late for me now....