Doxa: I had a similar pathology after my RP in 2011, stayed undetectable for almost four years and then had SRT almost three years later in August of 2017. My PSA started slowly creeping up about 18...
I had SRT in late 2017 and noticed some blood in my urine a few times this year. I told both my MO and RO about it during one of my follow up visits and they referred me to my Urologist, whose NP...
Diagnosed at 54 in late 2010. Burning pain while urinating led me to the doc, then to a Uro, then to City of Hope who has been managing my treatment ever since. My Dad was also diagnosed at 54 a year...
Congrats Mal. It has been over nine years since I had my RP and almost three years since my SRT and I am very grateful to have an undetectable PSA. Looking forward to many more happy years of...
We all have our own opinions and choices to make. I know I did before I came to the forums to get opinions from the fine people that offer them. And I still do. After all, isn't that what these...
Although you had ART, my understanding is that after salvage radiation, if PSA rises to .2 and it is confirmed by a second test of .2, it is usually considered a second recurrence. At your current...
What is a dog rock?...
Just read about the VA launching a trial for Vets with COVID 19 using Degerelix. Sorry if I did not post the link correctly. If you can repost with a clickable link, please do....
Thanks Sky for posting the link. Although I have never had Lupron, and never wanted it, if the single dose were like a one month shot, or even a three month shot, I would take it just for the added...
Just read this article this morning. Found it very interesting. Sorry if the link is not posted correctly. If someone can fix it, be my guest....
Galtex: I had 37 treatments of SRT 2 1/2 years ago and experienced no side effects at the time except a little fatigue during the last week or so. That ended about a week after I completed my...
G7, 3+4, 16 nodes removed, one left obturator node positive....
I was also taking Avodart with the Casodex, which decreased my PSA from .441 to .110 (75%) in the first month. Some say the Avodart can mask the PSA by 50%. Either way there was at least a 50% drop....
I was taking only 50 MG of Casodex daily for six months, before and after SRT, and 20 MG of Tamoxifen daily for about the last two to three months. See my post above for more info on my particular...
Truth is logo, after my PSA kept rising I don't believe he was right, world renowned or not. Thanks to consultations with two MOs and two ROs at other cancer centers of excellence, and the advice of...
Right, Djin. In my case I had a world renowned Uro who kept telling me not to worry until I decided to take matters into my own hands after the Axumin scan. I did have a couple ultrasensitive...
I did the same as MotownPaul and had whole pelvic SRT when my PSA rose to .441 a little over 6 years after RP, and a negative Axumin scan....
Yes Djin Tonic. Read on and you will see what they were feeding the 17% more men who went on to develop prostate cancers, and how the study was stopped. IMO, this trial was flawed and did nothing but...
I was recently advised by my most recent MO, an old curmudgeon from New York, not take any vitamin E because it could cause prostate cancer. I was diagnosed with PCA over nine years ago, have been...
Glad to hear the Casodex worked for you. I had an Axumin scan after I recurred and my PSA was at .336. It was totally negative. I went on to SRT. As Bobbiesan indicated, a PSMA scan "might" locate...
I have had very small amounts of blood appear in my stool occasionally for the last several months or so. My SRT ended two years ago. I am not really concerned about it at this point. I see my RO for...
I had 66 Gy in 37 treatments back in 2017, in addition to 6 months of ADT (Casodex & Avodart). So far so good....
Please count me in too!. Was devastated by my pathology which included mixed acinar and ductal features. I have had almost nine years of ups and downs, and still hanging in there. When I am feeling...
Although all my doctors have been male, in my almost nine years of dealing with PCA I have been familiar with three female uro's at City of Hope in Duarte, CA. One of them is actually an...
Craig: Your PSA 0.05 is very low. Nevertheless, if it continues to rise, it could mean recurrence, and the next course of action would be either ADT and/or SRT. I am a COH patient as well. Who is...
Andrew: It was the one inserted during the procedure. He stayed in the hospital overnight and when they removed it the next day he could not urinate on his own yet. So, they reinserted it and left it...
7 if it is rising, 0 if it is not....
A month or so ago, and following successful RP and ART over 25 years ago, my 81 year old father just had a sling put in and only had to have a catheter in for about a week. No issues after that and...
My MO recently told me not to take anything with Vitamin E. After reading about the studies on Vitamin E I was surprised I had not been told this by my Uro, MO or RO long ago. I recently found an...
Andrew: Would the avoiding sex still apply to those of us who no longer have a prostate? Thanks....
I started my ADT approximately 5 weeks prior to my SRT....
Casodex, an anti-androgen, blocks androgen receptors. This prevents testosterone and other androgens from binding to the receptors in PCA and other cells. It is used to prevent the testosterone flare...
I am already forgetting things and I'm not even on ADT. What was the OP's question??...
My vote would be 12 hours max. As others have said, I would prefer not to have any medical professional attending to me if he or she has been on duty for more than 12 hours....
Congrats Andrew! I am a little over 18 months post SRT now and still undetectable. I saw my RO last week and he has scheduled our next follow up for February, 2020. My MO wanted to move me out to six...
Good luck Jazzman. Keep us posted....
Leah: The doctors at POS are some of the best. However, if your husband insists on some kind of treatment, consult with Dr. Chris King in Radiation Oncology at UCLA and/or Dr. Howard Sandler in...
I recall my MO and his fellow researchers at City of Hope conducted a study years ago using white button mushroom powder to help reduce the levels of PSA in PCA patients whose PSA had been previously...
WoW! With your husband's pathology, his post-op PSA was great!! Hopefully the Casodex and Eligard will help keep it down. It will be tough for the next year or so just before those PSA lab tests and...
Jazzman: Almost four years after after my RP my PSA started creeping up as well. Although I probably should have started salvage treatment earlier, my URO recommended I wait until the Axumin scan...
An alternative might be finding and adding a good psycho oncologist to one's team of doctors....
Bob: Although my MO recommended Lupron, I refused it when it was time for me to start treatment of my recurrence six years after RP because of the terrible side effects. I knew I wanted SRT and I...
Billyboy: Congratulations on such great research and on arriving at your decision to have Dr. Wilson perform your surgery. Wilson performed my RRP at City of Hope in early 2011, and like he says you...
I was on Casodex for six months before during and after my SRT in mid to late 2017. I chose to forgo Lupron. My SE's were minimal, a few minor hot flashes here and there and some slight breast...
Although I have to agree that salvage prostatectomies are rarely recommended and performed, I would recommend consulting with Dr. Tim Wilson at St. John's in Santa Monica, CA. Wilson has performed...
Great news! Congratulations on completing the marathon! I completed my SRT just about a year ago and have been very pleased with the outcome. Quarterly PSA's have been <.008 ever since. Best wishes...
Good plan Paul. I had a negative Axumin scan then decided on ADT and SRT late last year. It seems to be working. Don't be surprised if the scan is negative at your low PSA. Afterward, the ADT and SRT...
I am also still working full time, now almost eight years since my diagnosis. Other than three weeks after my surgery I have worked straight through all of my treatments. Never missed a day of work...
Billyboy: Something I found from PCA Advisor dated 8-02-16: "Survival Outcomes in Gleason 9-10 PCA Similar With Radiation, Surgery" "Radiation therapy and radical prostatectomy (RP) offer men with...
Billyboy: Other than some minor incontinence that dissipated within a few weeks (less than one pad a day), the only other SE I experienced was ED. I did have nerve sparing surgery and tried both...