You said they believe they got all of the cancer from the bladder neck out… does that mean they were able to remove the cancer from the bladder neck during the scoping procedure? I’m curious as my...
Thanks… I looked into that too. His says it feels like a very mild version of what he felt when waking up from surgery. For him its not associated with incontinence. We will have to ask the doctor...
On occasion my husband wakes up in the middle of the night with what he calls a bladder cramp… he says it’s a painful cramping that is relived when he urinates. It doesn’t happen often… maybe a few...
Melanie, we consulted with Dr. Rob Reiter , Dr. Chris king, Dr.Lam , Dr. Epstein …. Epstein was suggesting ART due to the 6mm margin, but everyone else said early SRT. My hubby decided to go with...
We consulted with top notch docs, and they all agreed on the low psa trigger for salvage treatment. My hubby is high risk of BCR due to the large positive margin… but no one wanted to do ART due to...
One more thing… you are correct that the tumors that produce little psa you will want to consider salvage treatment at a lower psa . For instance if a “ normal” guy would consider 0.1 BCR, our...
Melanie, my husband was 44 years old and had a psa of 1.9 before he had a RALP. He ended up having a very large, 38mm, GG1 (3+3) tumor . Positive margin at bladder neck too. In my research I found...
My husband had a very unusual case... high volume Gleason 6 with a low psa, pathology confirmed by Epstein. His pre-surgery psa fluctuating 2.4- 1.9 We consulted with numerous specialists ... most of...
Hi Eaglekeeper! T3B is very unusual for G6. My husband was T3A and G6... that is also very rare. We sent his pathology slides to John’s Hopkins Dr. Epstein to confirm. He is the worlds leading...
Sister, kudos to you for being your brothers advocate! I am the same for my husband... it’s a very important role. One thing we have learned iduring my hubby’s prostate cancer journey is that you...
Thanks for posting this! My husband currently has an inguinal hernia that he is ignoring 🙄... I’m sure the hernia belt will get old one of these days and he will get the surgery. My main concern is...
Husband diagnosed at 44...
My Husband was diagnosed at 44... I had a gut feeling... I even ordered his first PSA test myself online. Everyone thought I was crazy... But my intuition was right!...
Hey Todd! Congrats on your undetectable PSA! On another note... If you had 3 offers in the first day your buyer doesn't have a lot of leverage.... Also, as you have learned, you really have to watch...
Thank you Coffee fan for the info!...
Is anyone here a patient of Dr. Chris King, the RO at UCLA? We received a notice from UCLA that he is no longer with them. Anyone know where he went?...
My husband was T3a at 44 with several years of luts... I say get checked at 35! My husbands father was diagnosed at 85! After my husband was diagnosed!...
My husband takes metformin and red yeast rice ( a natural statin) ... this video is really informative. https://youtu.be/ZALiphbJABE...
I’m sure they will be doing that tomorrow... will be interesting to see what it is....
Halbert, I agree with you wholeheartedly! At this point we don't expect him to have very much time left. We would rather see him happy and able to spend time with his wife (who also has some...
My father in law was recently diagnosed with advanced pca . Psa 700 with Mets everywhere. He has been on casodex for about 2 months. He is feeling much better, with a big improvement in his back and...
The pathologist, Dr Epstein highly recommends RO Dr. Mack Roach at UCSF. If Epstein likes him, you can be assured he is excellent. Judging by your PSA numbers, you won’t be needing him anytime...
My husband had a pirad 4 lesion... I learned far more than I ever wished to know about the DWI and ADC values ... according to my research his very low ADC values meant he surely had a high Gleason...
I’d get an MRI. My husband ended up as stage T3a . His Psa in June 2018 was 2.3 . January 2019 PSA was 1.9 , DRE negative. Paid for an mri out of pocket for ($1200) for peace of mind. It found a...
Dr. Scholz, Dr. Lam at PCRI in Marina Del Rey routinely prescribe metformin to their non diabetic patients. My hubby could have gotten it from them... but that requires getting stuck in hours of...
Metformin has been getting a lot of attention lately for its potential benefits beyond diabetes. Some doctors are even prescribing it for off label use such as cancer prevention. My husband has...
Jason, where are you located? The cash price for a 3T MRI at UCLA is around $1200. That’s what we had to do. Money well spent! Get an MRI!...
My husband is 45 years old and his PSA was 2.3 in July 2018 and then 1.9 in January 2019. His DRE was normal. The urologist last year assured my husband that he is fine and had nothing to worry about...
The plan is to start him on casodex and then in a couple of weeks he will get a Lupron shot. I hope this will help relieve his pain. The vascular surgeon has advised not to do any surgery... they...
Thanks for the replies guys. Anyone know how long someone like this has to live and can they be kept comfortable for a while? There is some controversy over whether or not to treat his aneurism. It...
Hi all, I usually post here to get info for my hubby ( you can see his situation in my signature below) But now I am here looking for advice for my 84 year old father in law. He is the type of man...
If you go the RALP route I can highly recommend my husbands surgeon. Dr. Robert Reiter at UCLA. He has done thousands and is very good. He doesn't have the greatest bedside manner, and UCLA is a fast...
It was suggested to my husband to do focal laser therapy. His MRI showed a 12mm pirads 4 lesion. He decided to have a prostatectomy. Post surgery revealed a 38mm lesion. His surgeon commented that...
Update: We got the second opinion pathology report back from Dr. Epstein and also spoke to him on the phone. He agreed 100% with the UCLA pathologist findings (whom he spoke very highly of, she was a...
Hi Paige, Your husbands pathology report is very similar to my husbands, with the exception that he was a 3+3 (waiting for confirmation on that from Epstein) His first 3 month psa was <.01!...
My suggestion would be to ask Dr. King!...
So what’s the trifecta? Continence, erections and??? My hubby had an excellent recovery... no ED and 99% dry from day one. He befriended another guy who had surgery by the same surgeon on the same...
Thank you everyone for your words. Especially Donna... this was very helpful. Hugs to you !!!...
I just did this last week. I used the forms and sample letter that is in the link that pratoman posted. I emailed those to the pathology department at UCLA. They had their own release forms that I...
I just got this news last week... I went from thinking all was dandy to OMG- this might actually kill him. I am trying to be calm... and trust me... I stay calm, cool and collected around him and...
Mattam… My Pca anxiety was nearly zero... UNTIL the surgeon told us that his G6 invaded the muscle at the bladder neck... He told me he literally went to the lab and had to see it for himself because...
Guys, I will be honest. I have been freaking out a bit.... I am 41 years old and my husband is 45. I have not been able to stop thinking about PCa and how it might take him away from me. I am trying...
I am just curious... I know that men with a true gleason 6, or organ confined low & intermediate risk Pca are usually cured and don't die from it. But what about the rest of the guys? If you are...
Interesting article! Really resonates with us as my hubby has been a professional auto mechanic for 30 years......
We got an email from my hubby's surgeon asking for authorization to send his slides to get Decipher testing. This was after I sent him an email asking if he was concerned with the high volume G6 /...
Island time, when you sent your slides to Epstein, what was the turnaround time? Were you able to consult with him by phone? Or do you just get a report? Jasper, I’m so sorry about your dad. Yes,...
Thanks for the responses! I’m hoping all that Epstein finds is a true Gleason 6 that will never kill him! But we really should know if there is anything that warrants SRT now instead of waiting for...
Not everyone who has RALP get's ED. I am sure youth had a lot to do with it (45) but my husband has had no ED or size reduction. He was getting " morning wood" with the catheter still in. He only...
Hey guys (and gals), I am a wife posting for my husband. In case you remember me from previous posts, in January my 45 year old husband was diagnosed with very low risk Pca, PSA 1.9 and 1 core out of...
Interesting... We live in Ventura County as well. But closer to Thousand Oaks. No strawberry fields here. I would not be surprised if there is a link to chemical exposure and Pca. My husband has been...