Can't think like this, man. Just stop it. Seriously. Reflect on what you did do. Children. Way cooler....
How long after IMRT delivery did these side effects emerge?...
sooooooo what do i do now? What is the consensus? Find a urologist, look for a medical oncologist, grovel to my RO in the hopes he will do follow up? My primary care doctor says I should chance down...
I am honestly pissed. I had a bad potassium test in July. The RO called me to tell me (surprise!) however when he called he had no clue what he was treating me with. I had to refresh his memory....
I would think the same thing. I have an appointment with my GP tomorrow. Mostly I will just vent to her but I do need to take ownership of this. It seems insane to me to just pat me on the head and...
Received my last Lupron shot a week ago. What is next? No check ups of any kind? Who do I follow up with, my GP? I don't know but it seems to me you RO should tell you when and how to follow up???????...
No pain at all in hip. The stomach shots can hurt but they are not Lupron....
LOL So then maybe placebo only works when disease is only perceived....
I felt that way fir many years then I learned that doctors are no different than any other profession. Some are incompetent, some are lazy, some are full of shi$.... Now when I walk into a doctor I...
Thanks for the comments. Seems there is no real answer as one poster indicates it gets worse for years and another suggests it gets better in months. I guess I'll just need to take it one day at a...
Well, I tried that approach and spent hours sick and in pain. Hence my question. When can I again eat spicy food without becoming ill?...
I finished 26 days of radiation a month ago, when can I eat spicy foods again? Does anyone have a link that offers any insight? Experience? I accidentally did a few time and suffered pretty damned...
sounds just like my story... My PSA went from 1.6 to 5.6 in one year....
My urologist and RO both stated that any conflicts in interpreting the disease between pathology reports, MRI, PET scan required they treat it as if the the most aggressive report were the most...
I was not a candidate for brachytherapy. Thanks for the info....
I just finished radiation and still have 2 more months of ADT to go.... My PSA came back .09. Is this OK? Good? Fair? Great???...
Can anyone comment on erections and abilities after twenty six days of radiation and six months of ADT? Continence? (with timeline) Basically just any info on what is in store, with timeline of your...
My first RO (Columbia Presbyterian) told me that you need to treat the cancer based on the worst pathology report. Makes sense of course as you err on the side of caution, this is cancer. I too had...
Sorry to hear you are having problems. The waiting... must be very hard. Hot Flashes? Damned, I'd take 6 a day and throw a party. I get at least 30 and they are no joke. I get dizzy and nauseous with...
I am a little late on this but in case others in the future find this thread, you want to go to Duke in Durham for optimal care.. One of the 5 top PC centers in teh country. I am in NYC and set to...
BTW, I forgot to mention although I think it was implied. In addition to exercise I drastically improved my diet after reading your posts here. Peace...
I want to thank you. It was your posts on this subject that gave me the awareness so I could "defend" myself against this. Since I started ADT I have lost 10 pounds. (4 months ago) I walked 3 miles...
26 is the max???????????? I was slated for 44 before a PET scan came back with a great result. I am at MSK and my doctor is head of RO. He wrote the protocols used.I have to have a full bladder...
I am surprised you were not advised to get both radiation and ADT therapy immediately. Am I missing something????? You had a PET scan of the pelvis? I am 4 months into ADT, and 4 weeks into...
At least I think the pain is coming from nerves between my prostate and testicles. Like electric shocks. Very quick jots but very significant. Not often but they do get my attention, and quick. I...
one more thought in 2016 and 2017 I had no gout attacks and my diet was awful! I ate shell fish on average 2-3 times a week and meat the other days. I also drank beer, lots daily. I ws also on a...
I am in my 3rd month of ADT. I have not had a gout attack. In 2018, I spent 6 of the 12 months on crutches from gout. My gout attacks have been very severe lasting 6 weeks or more at a time. For the...
No. It's a slippery slope and we already give up too much privacy in my opinion. Jim[/quote] wow seems to me a no brainer that medical records of a parent should be available to offspring i can't...
This....
I got my simulation, tattoos and body cast. Also I have been on ADt for 2 1/2 months. I am doing OK. LOTS of intense hot flashes but I am fighting cancer. A small price to pay. I have done well with...
No. Almost though. My urologist was at Columbia and he did the biopsy. I then sent the slides to Dr. Epstein (Hopkins) for a second look. In the meantime, I was not comfortable with the radiologist...
Glad you got it all sorted out. I had mine sent from Columbia Presbyterian to Hopkins with no problem, just a little paperwork. Everyone was very helpful at both institutions. Then I had the results...
Well, you did better than I. You had an office visit!...
When did you actually talk to your doctor? Let me explain. I went in, my protocol was set and that was it. I have been rather surprised at the lack of follow up and I have no appointments to see my...
Who is my doctor? The RO is way to busy to bother... last time we spoke he did not even know what he was treating me with. Twice we have talked and both times he forgot we already spoke. I have kind...
I better not notice as I will be under general anesthesia. LOL No one here has had the spacer???????...
Because it is so much easier, faster and efficient. Very much the opposite is true. We are freed from rudimentary toil to concentrate our efforts on other things. Think of the sciences for example....
Like I told my rheumatologist today, diet has about ZERO affect on gout. It's ridiculous to restrict your diet when doing so does nothing....
Thanks for the replies! Has anyone here had the spacer? Mine goes in Wednesday, in two days. (markers also of course) Spacer or markers were never discussed as optional. Both were simply presented as...
Just thought I'd update. This Lupron is no fun. I did much better on DEGARELIX. With Lupron I have hot Flashes all day long. In ice cold rooms with the vents blowing on me. My legs ache. My teeth...
What can you tell me? Are Rectal Spacers a newer addition to the Fiducial Markers? How long does it take? What else do I need to know?...
I read the NY Times cover to cover, daily for decades. I also subscribed to countless magazines and news letters in print. Those days are longgggg gone. Its 20 years since I read a paper or the like....
QFT...
A few days, my urologist ordered both tests as soon as the PSA result came back....
Oh, and my Potassium at the one month test sent me to the ER. My RO said it had nothing to do with the therapy but I never had a problem previous....
Just got my lipids done and Triglycerides are up over 44%! I have lost 17 pounds. Total cholesterol is insignificantly down, good cholesterol is up. I have a tire around my stomach which was not...
My doctor sent me to the ER to retest and it came back 4.4. It has been tested regularly recently as part of my cancer monitoring. 1/11/10 3.7 1/12/10 3.9 9/27/12 3.9 10/22/12 4.7 4/26/13 4.8 2/27/16...
So then my PSA reduction after one month of Degarelix from 9.3 to 2.4 was not nearly as effective. ;-(...
This is what I am experiencing. I could not have said it better....
I too am 4 weeks past my initial shot and I have to keep paper towels next to my chair as I watch TV because the sweat keeps dripping off my head and onto my glasses. I also use a towel between my...