I’ve been on Xtandi since 1/20/20. Zytiga before that but the Zytiga didn’t agree with my kidneys so switched to Xtandi. I’ve had several SEs but nothing too bad. Hot flashes, BP needed adjustment on...
I had a brief stint on Zytiga but experienced some kidney issues and stopped, restarted a couple of weeks later and had to stop again. Switched to Xtandi and have had several side effects but nothing...
Sounds like you are a great son. Wondering if Provenge would be an option?...
I wouldn’t risk it....
I’d discuss ADT with Xtandi or Zytiga but that’s just me. DT being less than 10 mos. to me would indicate a more aggressive approach. Again, no Dr. here but I’d be inclined to hit it harder than ADT...
Very interesting. Worth a discussion with the MO. Thanks for sharing......
Great news! Here’s to many more zeros!...
Sorry to hear of your loss. Just a note to say that all men’s prostate cancer does not necessarily produce PSA. Therefore, PSA is not always an indicator of disease progression. When this is the...
I discussed that possibility with my oncologist. Unfortunately, insurance will not pay for both at the same time. So given that, Provenge may be my “go to” plan whenever Xtandi fails, and after...
“When science breaks down, philosophy takes over”. Well stated, mattam! Certain 70s experiences made the reality of that crystal clear and disturbing at the same time...hence the 180...the truth is...
Any chance of trying Xgeva to help with the bone met pain? It’s worked wonders for mine but in a totally different location. As others have said positive thoughts and prayers sent your way....
My favorite science was physics. Who wouldn’t find understanding the universe fascinating? I never thought of math as a science but rather the language used to describe science. Like halbert my math...
I’ve been struggling since going on ADT. Historically I’ve not had a problem falling asleep until now. Staying asleep is a different matter. I’ve been getting very creative with Rx’s and combined...
Drink, walk, rest, repeat......
I second Cyclone-ISU’s advice. Some days are tough to power through and retirement is an option for me. Still there’s something to be said for having a reason to get up and a place to go, be...
Reminds me of the movie “MASH”. Parties are great for the living to celebrate life, family, and friendships...whatever you want to call it......
I had the Axumin F18 PET scan at a PSA of 1.0 with a doubling time of 6 months to find a previously diagnosed negative biopsied bone met (first identified on an F18 choline pet scan with a PSA of...
I started out on Zytiga with pred and had to stop after two weeks due to kidney issues. Restarted two weeks later and had to stop again for the same reason. Kidneys back to normal and now I’m in my...
I got my first Eligard shot in the arm. Hurt like a mother when injected and had a golf ball size lump for a day as it gradually subsided but took a couple of weeks to completely heal. 2nd shot due...
That was a good read...and another that comes to mind from Alan Parsons: Time, flowing like a river Time, beckoning me Who knows when we shall meet again If ever But time Keeps flowing like a river...
I’d just like to add to the comments above that there are guys whose PSA is not a reliable indicator of disease progression. I first heard that from an MO at Moffitt in Tampa when my PSA rose to 0.1...
I've just started on ADT and had my first 3 month shot in December. My MO went with Eligard and when asked about Lupron said they were about the same. Shot to the right upper arm and hurt like a...
Thanks, Sr Sailor. Good article and that explains it. Sure worked quickly!...
Any experience with Xgeva? I have two painful bone Mets in the left ischium. Basically, it hurts to sit and had been hurting for at least a couple of months. Had to go for a six hour trip for the...
Clemson fan here too!...
Update: Just heard from the MO and he is stopping the Zytiga/Pred. Creatinine is up again. He said he’s never had a patient have this issue and is referring me to a nephrologist for a work up. In the...
Thanks for the reply Cyclone-ISU and the well wishes. It’s awesome that this drug has worked so well for you. I can only hope to be so fortunate. After receiving the results, Almost two weeks ago the...
Todd, clearly you are the poster child for miracles and the wonders of effective modern PCa treatment. I’m toasting you’re success with some Frank Sinatra select Jack Daniels right now and wishing...
Just saw my MO yesterday and told me to quit all the “voodoo” crap I was taking and take only what’s prescribed. Everything effects everything else and the more crap the greater the chance of...
I second F8’s suggestion to stay on top of it. Get the best Drs and tests available to you. There are no do-overs for those who don’t act timely. I was 53 at Dx with a PSA of only 3.5, 3 cores...
I was recently in your situation a few months ago. My DT was six months. My PSA was rising steadily about 0.1 every month, but a very low value. When it got to 1.0 I opted for an Axumin PET scan and...
Thanks for the replies. I’m scheduled for some tests tomorrow, kidney function, CT, and abdominal ultrasound. I’m hoping the MO has results by Monday. I had to chase these tests down myself today....
Received a call from my MO early this morning. That’s never good. Apparently the Zytiga and Pred I started a couple of weeks ago is frying my kidneys. MO advised I stop taking all Rx’s as well as all...
Unfortunately, PSA is not always a reliable indicator of disease progression. Although it may be rare, it happens. I am one of those lucky guys who had a very low PSA but developed my first bone met...
Initially my URO was all about statistics...you only have a 25% chance of having cancer, you only have a 20% chance it got out, you only have a 2% chance of having aggressive cancer that will...
Congratulations, Pratoman. I’m in a similar situation, and was supposed to be done 12/31 after 32 years in state government work here in Florida. My wife is younger and still wants to work. She went...
Thanks for the advice mattam and Argent. I understand your reasoning and thank you for sharing that. unfortunately, I find myself in a bit of a hyper vigilant state at the moment with all that’s gone...
I was about to start Xtandi but just saw the study last night and called my MO For an appointment tomorrow to discuss. I’m thinking Zytiga may be the better choice at this point but want to get his...
Thanks mattam. Glad to hear you’re doing well on yours. Hoping for a similar experience and time will tell. Appreciate all your feedback through this thread and I’ll consider myself lucky if I’m one...
Saw the MO today and confirmed the two Mets are definitelyPCa. Had my first bone met two years ago, had it biopsied, and results were benign “boney island”. Wrong... Axumin revealed it has gotten...
Yep AK123, looks familiar from your stats. Agree it’s frustrating, to say the least. I hope you have a good RO and MO on your team. My URO is useless. Anyhow, I’ll update after my MO appt on Monday....
Thanks GoBucks. It’s bone Mets not nodes. They’re in the field already radiated to the max level. You can only get so much. I’ve been to Moffitt in Fl and I think you hit it with “better to be alive...
Well, I met with the RO today and so much for zapping as an option. The metastases are Directly adjacent to the area already radiated In my SRT, which obviously failed. The RO says zapping these...
Thanks, trailguy. Guess it wouldn't hurt to share the Axumin results with the RO and see if there's anything he might recommend. I'd much rather get zapped than start the ADT/Xandi route......
Yes, he’s very much that way. He said if I got too far out of line he’d let me know. He’s sent me numerous journal articles in the mail and seems to favor delaying QOL impacts in the absence of data...
Yes, the pain preceded the scan but it doesn’t line up. The Mets are on the left and the pain is on the right. I’m thought the pain might be a node but not according to the scan so it must be...
Thanks for the replies. I’m definitely not in any hurry to start Tx and would like to put it off as long as practicable, but given all these factors I’m thinking it may not be wise to continue to...
Received results today from an Axumin PET scan last week. My PSA has been rising fairly steadily by 0.1 each month, DT x 6 mos, and started experiencing some possible symptoms (pain) so the MO...
I’m scheduled for an Axumin tomorrow. Although my PSA is only 0.8 or so with my 6 month DT and some right side groin pain the MO thought it best we check. I was surprised how easily the insurance...
Add me as well....pT3a...G-8....