Both Zytiga and Xtandi didn’t work for me. Both dropped my PSA a couple of points but it went right back up. PSA was 7.5 a couple of weeks ago after rising over 1.0 for 2 months in a row My...
When I went to Moffitt for my first “Second opinion” the doctor there told me “Keep in mind, there’s a lot of money in treating Prostate Cancer so there are a lot of people working on it”....
Doing ok for now. Got a big drop in PSA the first month of being on Xtandi (Over 3 points!). The next test a month later PSA was up a point but I had radiation on my bone mets to reduce pain a couple...
I had to switch from Zytiga to Xtandi a little over a month ago. Can’t really tell a difference in the fatigue factor but not a lot of opportunities to be very active right now anyway. The only real...
My PSA had been slowly climbing for a few months. 7.3 to 7.6 then took a big jump to 8.7. I was on ADT and Zytiga which never did work well for me. My MO changed me over to Xtandi a month ago and I...
I was on Zytiga for about 6 months. Although it did drop my PSA a couple of points, it never got below 6.1. PSA went up a point from 7.6 to 8.7. in the last month. The doc changed me over to Xtandi...
When I copy the link and paste it into my signature file it gives me an extra https:// at the end. I’m on an iPad....
Made a couple of edits to my post to better reflect my journey. I’m learning the more complete your history is, the better your responses. This has been going on for 3.5 years and my memory comes and...
Thank you. Right now I’m on Xgeva for the bone mets. Going to have a bone scan next week. Pain has been increasing in my lower back where I have some mets. In addition to that I also have a cyst...
Started Zytiga September of 2019. Helped some but never got a big drop in PSA. I’ve been on ADT for < 2 years so, this is a little soon I would think. Anyway, my MO and I agreed Xtandi is the next...
Great news Dennie. Keep living your life out loud. Things can be pretty good, even with this disease....
Well my PSA is up a little from last month. Having a really difficult time getting it down. Conferred with the doc and he said not to worry too much and we’ll see next test (30 days). I’m usually...
I’ve been on Eligard for over a year now. Hot flashes were pretty bad to begin with but have gotten better over time. Exercise definitely made a difference. MM seems to reduce the severity as well...
I’m somewhat of a mongrel in my bike tastes. I’ve owned Harleys (1200 Sportster, V-Rod, Road King) but currently the stable is a Kawasaki Versys 300, a KTM Duke 390, a Yamaha MT 09 and a BMW R1200...
Changed my username from my real name (duh) to something more appropriate for me. Motorcycles are my passion hence Biker and I worked as a public safety engineer for 23 years so Biker 911. See below...
And please forgive any errors in dates as my memory isn’t what it used to be....I suffer from CRS....
Been around here a while and figured I’d share my story to help you guys to get to know me a little... I’m currently 63 dx with PC at age 60. Here’s a timeline of events. June 2016:Had routine...
Just got my latest results from my MO. My PSA dropped to 7.35. Hopefully just a flare from getting off the Casodex. Guess I should post my full story. I’ll work on that....
I really thought it was just sciatica for a while so I can’t pinpoint the exact time it started. The pain hasn’t really increased a lot but it is more persistent. Nothing even approaching...
I have had sciatica before and I think this is the way it started. I’d have the hip pain and the jolts shooting down my leg. Now the pain is more in my tailbone and lower back. It’s not really bad...
I’ve been lurking here for about 3.5 years dx in July of 2016. Long story short I was a G9, had a RALP, Radiation had to wait due to issues with emergency room screw up. Had radiation finally, then...
Yes you are correct. Forgot about that benefit. Thanks for reminding me.......
I don’t really believe the claims about Marijuana curing cancer or even making it better (Not enough research yet). That being said both Marijuana and CBD’s have other benefits that I can personally...