This seems to be hot topic in some places these days. There are a number of very vocal people on social media who talk about patient privacy, and who (rightly I think) want to see changes in some of...
Into, Prostate Cancer is certainly a 'good news-bad news' situation--or maybe a sort of bad news--could be worse news. Until you have a biopsy with a Gleason score, you don't know. The vast majority...
I can also comment on the multifocal nature of PC. I was diagnosed by an old fashioned ultrasound biopsy, 12 cores with 3 from each quadrant of the gland. Of the 12 cores, 3 were positive for PC, all...
Jason, some more pre-surgery prep ideas: For the first week or 10 days, you'll have a foley catheter. If possible, plan on living on a single floor and not trying to do stairs with the foley in. If...
Oh well, I guess. I'm a surgery patient, treated at age 56, and I've done really well. I'd echo the other opinions, and find a well regarded surgeon who has done thousands of procedures. Ask them...
62gal, you missed my point. In 2014, a long experienced Urologist told me that it did...and they did a biopsy, and found cancer. Maybe it does, maybe it doesn't. The real point I was trying to make...
Jason, I'm an example of the 'some supplements suppress PSA but have no effect on cancer'. My PSA had started a gradual rise starting at age 54. I had been getting annual 'standard sensitivity' PSA...
jason, In your situation (G7, rising PSA) you are definitely NOT in the potential overtreatment category. Overtreatment, which was really a thing some years ago, is much less common than it was 10-20...
Jason, You're right, now you're in that exasperating place of looking for clarity and finding more fog. What you do have, now, is a lot of really good information, and some actually pretty clear...
Every doctor is different, and it likely depends on you post surgery pathology. My information is similar to yours, and the variation, to me, is about the Dr. I had my surgery in February, 2015. My...
RE Terry's post One of the things that many of us report is that when we meet and talk to 'our team', there is a gut sense that we're in the right place. It's not 'just' about settling on the right...
Ok, more good information. Brachytherapy comes in two flavors, if you will: LD Brachytherapy (LOW DOSE) is where the put multiple 'seeds' of radioactive material in your prostate, and they stay there...
PJ, as Mumbo said, information is good, it is power. Dr. Google is only as good as the questions it gets asked. You'll hear the latest opinions. Let's hope the news is encouraging for you....
btc, The really good part is that the experts all know each other. They communicate and share challenges. Duke is as good as it gets. He'll be in good hands. Also, spinal mets was the worst diagnosis...
You're in Andover, MA? There some great and near-great treatment centers in Boston. Surely someone there in the RO world has encountered your issues before....
RE Radiation: Please talk to an actual expert, not just Dr. Google. Some radiation therapies are essentially non-invasive, and over in 1 or 2 visits--such as permanent brachytherapy (seeds). SBRT...
Again, please talk to a radiation oncologist about radiation. A urologist is a surgeon, and they don't know the latest and greatest about radiation. Modern treatments are very different from even 10...
Jason, in your quest to cover all the bases, you've talked to surgeons about radiation therapy. Please, go see a radiation oncologist at a center of excellence. You might find that your best...
JC, with a G9, the surgery is only somewhat likely to bring a cure without additional treatment. What the scare tactic (and that is what it is) is saying is: If radiation fails, you can't have any...
You're on the path now. Take advantage of the talk tomorrow to get clarifications. It's OK to get a reputation as a patient who asks questions and wants detailed answers. For the rest....eat healthy,...
It does get confusing, to be sure. As Mumbo said, your RO is in charge of your treatment. He or she can tell you what they can and cannot do in relation to a location near you. The key thing is to...
First, it may be possible to have the RT done locally. Second, do talk to an RO. THEY are the experts on the radiation therapies. One option is SBRT--sometimes called Cyberknife. In this process,...
I'll admit when I saw your title, my first thought was, "Ditch the Miracle Whip and buy a jar of Hellmann's" :)...
An aside: Did you know that if you say "Alexa, open the pod bay doors" She will answer, "Sorry Dave, I cannot do that"...
The MRI may reveal something. However, fluctuations in PSA, especially the kind you're seeing, are usually related to prostate infections--which are notoriously difficult to treat. Also, again, this...
Jota, I see your concern. I'd ask, as I am unfamiliar with the system in Spain (I'm assuming you're in Spain from the 'Toledo' in your handle), what is the process for seeing a specialist there for a...
Joto, How old are you? Yes, the slowly climbing PSA means that a few cells escaped the scalpel during surgery, and they have started to grow, so it is likely future treatment is coming. As Mumbo...
60Michael, I suspect he chose it because of, well, everything. His list of issues was long and very difficult to grasp when one realized it all applied to him, and him alone. Purgatory seems fitting....
Concierge care can be a great thing. The idea of having a virtual consult/2nd opinion with Cleveland is also good--this is the sort of thing that is almost always recommended in high risk cases. Two...
I recall many of his posts in the past. The pain and suffering he endured was hard to listen to--but he never failed to reach out a hand to the newbie. An amazing individual. May he rest in peace....
Short answer: Yes. Longer answer: It can take a while. Anywhere from a few months to a year is not uncommon. If you haven't already, do have your doctor give you a scrip for daily cialis, or try...
There was a guy taking a job interview for the Postal Service. Interviewer: We occasionally have meals together, do you have any odd dietary issues? Man: I don't drink coffee, or anything with...
Problem resolved! I called my local office and talked to a very helpful person who went through my application line by line and found the problem. Basically I had put down that I was working through...
In prep for your appt at Simon, I'd suggest you go with a list of questions that have come along, and a notebook, and it's really helpful to take someone else--your wife is ideal--who can help with...
Jack, exactly. Already have that mostly figured out--thanks for the thoughts. It's going to work out....
Thanks, Jack. I'm going to make an appt at my local office and go there, hopefully early next week....
That is more or less what the guy said--now, I was driving and stunned at the same moment, so I'm not entirely clear--Problem is, of course, that the future home budget is based on getting the...
OK, so it gets stranger. I got a call from SS this morning that thrown me for a total loop. My planned retirement date is May 31. I was told that because I'm a year early for retirement (65-8 vs...
I would wholeheartedly support your calling the input number at IU-Simon and talk to an intake specialist. You probably don't need a formal referral to get started. A good question to ask your local...
I was treated with surgery a bit over 9 years ago, and have had a great outcome. That being said, I was in a much lower risk category than you are, with your G9. Always remember the fundamental:...
I'll add my welcome as well. I was not G9, so I followed a different path...but I get it. From the link someone posted, IU-Simon is on the list of NCCN centers of excellence--which is the umbrella...
We all know Tadalafil (Cialis) as an ED drug, but it's initial development and first use was for pulmonary hypertension. The ED benefit was originally noted as a side effect....
LOL Hurry up and wait. It's the gubmint way....
It is now 9 weeks since I put in my SS application, and the website still lists it a "under review". I have not received any requests for additional information or documentation. I have the feeling...
Hugo, good for you to be on AS. That is a great path to be on, just do keep doing the "Active" part. TR therapy, as you've already experienced, is controversial. However, it sounds like your Uro is...
One of the key things that I found in my experience was really simple: At the end of the day, it's your gut that will win out. If you have personal, individual confidence in the decision--then it's...
That's punny....
There have been various members of this forum over the years who touted various food/supplements as PSA reducing. And one, at least, regularly posted his PSA scores. What was never, ever said, even...
Back when I was diagnosed, in 2014, I had been taking a prostate health supplement that contained Saw Palmetto. It did seem to help with the moderate BPH that I had been experiencing. I was also...
It sounds like your doctors are saying much the same thing a we are--you have an uncomplicated case of low-intermediate risk prostate cancer, and any of the common monotherapies are likely curative....