this is OP - thanks to all so far for the info. for me, Lupron failed after 2 yrs; started zytiga which probably has failed since psa went way up while taking it - been about 3 months - after all...
Sorry for long post but its not as easy for me to make these shorter as it used to be. Want to ask some very targeted questions on your experiences with certain foods that can help with dietary...
RobLee, 1. when you mention you take the divided doses between 10 and 4, I think you are saying not taking them 12 hours apart ? (since between 10 and 4 is 6 hrs) 2. you mention the insomnia and...
will be starting zytiga and prednisone (5mg twice a day, with food) have read that one side effect of pred might be insomnia or restlessness, and I guess restlessness at nite can = insomnia. ===> for...
Thanks to all for your replys so far ! Re those who picked or would have picked xtandi, and re that not requiring the prednisone -- I think based on so much reading that it seemed that some patient...
Am castrate resistant after lupron only, no chemo or other rx. (diag 2010, imrt 2011 with 6 mos Lupron; 2015 psa starts rising; 2017 axumin shows spread to many lymph nodes; 2017 Lupron 1 year, 2018...
gmoose2 and gobucks - thanks for your replies I did post a new thread as per your suggestion gobucks - titled prednisone side effects when taking zytiga - put in a few more questions in it related to...
am now metastatic CR since Lupron not responding - had imrt only 9 yrs ago, then Lupron off and on since 2016.. Dr says to research and choose xtandi or zytiga: 1. Am interested in specific side...
2 questions - am now metastatic CR since Lupron not responding - had imrt only 9 yrs ago, then Lupron off and on since 2016.. Dr says to research and choose xtandi or zytiga: 1. Am interested in...
mattamx assuming one can do IADT when on adt + zytiga vs just adt, as per this post and Allen's comments and lots of articles and studies, there is a lot of info there that could go into your...
Jerry mentioned on Xtandi and Firmagon for one cycle of IADT - I didn't realize that Xtandi or Zytiga (with ADT) would be something that also could be part of IADT (for someone still hormone...
Jerry, thanks for replying about that. Am guessing you have some top notch drs who helped analyze this, since most drs I think would not have people do scans when psa was that low, due to scan...
Jerry, forgot to ask you - you mentioned doing the scans =am guessing you do the scans once psa had started to rise while on iadt since only at that time the imaging would more valid due to imaging...
Jerry, Thanks for your reply. I'll quote post here and add some comments or followup questions embedded: I don’t have a lot of answers...just posting to share my experience with IHT. I’m a G9 bone...
Allen, Thanks for your post and the information. I will look into the situation of the spread to para-aortic as being viewed as distant. As you mention, the results even for those with distant were...
Allen, The original field did not include pelvic lymph nodes, but as per my earlier posts here on the topic that referred to some of your previous posts or articles, that is should the pelvic imrt be...
1. I'm starting to research intermittent ADT (IADT). I am on continous ADT. More info about my situation below in 3. a. I have just a brief time to learn more about this and then see if its something...
Want to get back to the topic of my post and refine questions: 1. Do you take iron supplements to help with ADT caused anemia ? (esp if your diet does not have a lot of iron) if so, what type of iron...
NKinney, I finally read the article you pointed to on anemia https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1472681/ Wow, the causes of it for men on ADT are more complex than I thought and that it can...
Skypilot - forgot to mention re my history - that got 2 opinions on if pelvic imrt should be done - both said it was too risky due both to needing to go higher than the pelvis re para-aortic but also...
To all, Thanks for your replies, and they are giving me a good perspective on this. Advocating for oneself, and staying on top of pca developments, since community MO might not be aware - good...
This is OP. I realize I should have not asked 2 questions in one post. Thus if anyone has comments on my question in orig post about Vitamin B and pca, that would be helpful. And certainly this...
NKinney, Thanks for your post. I will study the article you mentioned and also follow your other comments and those of caslessclay and try to learn more. About your first comments - to quote You have...
I forgot to post subject of the thread and don't see way to edit that - sorry for that - I think the subject line would be Does using community oncologists (non pca experts) have an impact on quality...
For those people like myself, who are not able to go to the places where the pca experts are - and thus must use community oncologists - can that mean that we will not get the best advice as to...
Am trying to add resasonable vitamins and minerals due to not being able to eat lots of foods due to IBS but have read that some vitamin B might be bad for pca ? and trying to understand so can...
Allen, Thanks for the info. To answer your question, if mets were seen, and were few enough and were in areas where SBRT spot radiation could happen. Also, could give info on if the stronger bone...
Unlike many who have posted here, I am not experienced in doing lots of weights, nor of knowing the best approach as to reps and sets, that could help (even if somewhat) while being on ADT. I realize...
Have read that in general, psa needs to be of a certain value for imaging to show the best or most accurate results - the psa number varies depending on which imaging. What about for someone who has...
Break, re calling local center to see if they will get axumin, just to clarify - there is just one center in the area that does axumin so far, and probably that will not change - but to clarify - I...
Break, thanks for the ptr - that wasn't there the last time I looked at axumin site, though that was some months ago. Am surprised their list is not longer, or at least that they don't have more of a...
Allen, re your comment: If you want a second opinion on the Axumin scans, ask David Schuster at Emory - he's the inventor. I did contact Emory, but they do not do re-reads/2nd opinions on scans done...
Break60, sounds like you are doing all the right things re exercise, and its great to hear that you enjoy it and it helps you avoid feeling sorry for yourself. Thats important info and concept to me...
Redwing, thanks for the info on how you approach it re the sets/reps. I realized that the study was in effect saying something like "Here is the way we have found the best to do the reps and sets,...
was reading lots of past posts on this forum and on web related to challenges of doing exercise while on long term adt due to ADT side effects like fatigue, depression, etc and also about loss of...
Break60, thanks for the info on your situation. was in communication with Dattoli office today and will get them the records and scan images and past imrt prostate imrt records. I want to get them...
Allen, This is OP (hwtom) I did see rad onc recently at local radiology place (part of the local big corporation hospital system in my area (not an academic place) In the visit, the dr just said he...
Jack and Diane - thanks for the info on how to edit post - i had not seen that icon earlier; it seems that one of the admins or moderators has already edited and added the topic - thanks to whoever...
Well I apologize for not putting a subject line - is there a way that this can be done once its posted ? Can I ask administrators to do that ? The subject line should be something like "IMRT to...
I've found various postings on this site (ptrs listed below) that discuss about pelvic IMRT related to spread of pca to pelvic lymph nodes and those discussions and pointers to studies and articles...
Thanks for posting this topic. On the area of the side effects and impact on the spouse, are men on the longer term ADT able to drive, or with the brain fog and fatigure, is that not safe ? What...
just an update to my scan that I finally was allowed to have by another dr - the axumin scan showed spread to multiple pelvic lymph nodes, including one in rectal area. It did not mention spread to...
Allen, sorry for the delay in replying. I did find a medical oncologist that had no issue in ordering the axumin scan. They are not a gu medical oncologist per se but do see many men with advanced...
Mattamx - thanks for your comments about this and I will be looking for another dr. Am wishing you all the best in your upcoming bone scan. Woody - thanks for your sharing about your MO not only...
Allen, thanks for your reply and ptrs to info on your site - I only wish I had more knowledge to understand better that level of information. As to your comment that I got the response from the dr...
Redwing - some comments to your reply [Edit: Deleted poorly received and ultimately fruitless post. Never mind. Carry on. Be aware, as with anything posted by the group of well-intentioned amateurs...
Break60, thanks for the feedback - will reply to some things you mentioned embedded below I'm just another patient with high risk PCa. But I'm surprised that (a) you let PSA rise to 4.5 without...
Since my pca recurrence, I have not seen a medical oncologist until recently. Thus I don't have any direct experience about how they work with patients in certain ways. I had IMRT as initial...
Allen, I will ask if they can check back with manufactuer and point to the study. I have no experience in reading/interpreting studies, but noticed in this one that it said "In addition, this trial...
Allen, on the topic of if Axumin can detect in bones, the manufacturer of it had told someone in support group that the manufacturer has no information that Axumin can detect things in bone. (and...