At Cedars-Sinai - San Fernando Valley Office. Marc I. Botnick, MD. Radiation Oncology. Accepting New Patients. Radiation Oncology - Tarzana. 18133 Ventura Blvd #102. Tarzana, CA. From You....
I had the same procedure done four years ago. My stricture was quite bad that I was unable to void. Urethrotomy supposedly is not a permanent treatment, based on an old study, it usually lasts four...
Excellent. No more worries of bladder cancer. Keep us posted....
So, what exactly did he do today? Perhaps he just dilated? No cysto? If he did the cysto he would have already seen your bladder? Perhaps you can read the summary when available? Did he schedule you...
Keep us posted. At least the doc is not panicking....
Good Luck....
Hi Swan, I think your urologist needs to know the condition of your stricture(s) before he will recommend what procedure should be taken. There were two other tests that I went through when I was...
Mine has not been treated yet, it’s been 4 years since DVIU. I explored Optilume but my reconstructive urologist has not done any, as I mentioned previously, I did exchange an email with a urologist...
Hi Swan, it may not be as bad as you imagined. Here is part of my report when I was bleeding everyday for like 10 days in a row before the Cysto with pediatric systoscope. We identified a narrow...
Glen, urinating sitting down can provide additional force in case you have a blood clot. Again, to not waste your trip to the urologist, call their office and let them know that they should expect a...
Urologists usually will not force the cystoscope through a stricture. How did you find out that you have multiple strictures? My stricture was narrowed to a complete blockage, you definitely don’t...
Just happened to find this thread. I went through the same thing, at this point I assume you have a stricture (same as me), first, find a pediatric urologist or one that can get a hold of a pediatric...
If it was me, my response would have been.. "Hmn!, you sounded very bitter, did that happen to you and your famaily? Talking from first hand experience? Do share, get it out of your system, it might...
Thank you kindly, looks like I may have to change my plan. I am currently on Blue Shield PDP $96.xx a month and getting my medication at CVS. I checked other preferred pharmacies on my plan and they...
Wow, I just looked at my cost at CVS and for 30 days, 250mg, $1,901.84 per month. I have Blue Shield of California PDP. OK, now I need advice on changing my Part D Plan. Any suggestions? I am not...
I do not think that I will ever feel secure enough to say I have beaten it. Perhaps not the right attitude but so many stories about recurrences even after a long period of time (5 years and longer)....
Thanks for the info on the urologist. I may consult with him, I do have an appointment with one of the reconstructive urologists at USC on August 1st in which I plan to bring up Optilume option and...
Thanks Spark, Where is your stricture located and the length of your stricture? Where did you get the Optilume procedure? I am unable to find a urologist in So Cal that performs such procedure. I...
I don't have any advice but remember seeing posts regarding the suprapubic catheter before, I believe a member has had it for about five years and have had positive experience with it. I too suffer...
I posted this on another board but feel that it may benefit those that have stricture here as well. Recently FDA approved, Optilume is DCB (drug coated balloon) treatment of anterior urethral...
I wonder if anybody had ever looked into this. The reason I am positing this is because I have had blood in urine just like many of us who had radiation therapy to the prostate. I had both HDBRT and...
Just found this post, RIP Gunner. His story was an inspiration. I too was diagnosed with G9 in 2017, originally was diagnosed with G6 in 2012. Its been 9 years since first diagnosed. I take...
Thank you for keeping us posted. Sharing knowledge and experiences is a gift you give us. Keep it coming and hope you situation improves....
I did have blood in urine and stricture after HDRBT and IMRT. My treatments ended in October of 2017. Last blood in urine was January of this year, was able to have Cystoscopy which showed those tiny...
Second shot completed March 10th. Still wearing mask when out and about. However, started dining inside the restaurants for a change....
Just an update, Bio-Marker test, CXBladder, came in at 4.6, 4 is a cutoff point for unlikely to have BC. However, the people at CXBladder kindly explained that, had it not Been for the qualitative...
I am trying to connect with those that have both PCa and Bladder Cancer for advice. I will be seeing a bladder cancer specialist for consultation regarding bladder cancer next week. History of...
Progressing, what type antibiotic was prescribed for your UTI?...
Is Obama care an option? I went that route for couple of years before I was eligible for Medicare, I am in California....
A urologist will do a cystoscopy to look into your urethra and bladder to make sure everything is OK. You can make an appointment now and wait since no more blood is seen. Perhaps it is just a one...
Hi, looking for information from members who have had Internal Urethrotomy done with the injection of Mitomicin C, or members who may have some knowledge regarding this MMC on stricture. Not a whole...
Island, here is the discouraging study on urethroplasty after radiation therapies. This is what set me into the panic mode. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5017559/#!po=79.4118 Long term...
Hi island, it was not Dr. Doumanian that cautioned me not to do the urethroplasty, it was the urologist that originally did my DVIU when I was on vacation in Bangkok. Dr. Doumanian offered to do the...
Michael, I had a complete blockage while I was on vacation abroad and ended up in an emergency room. The urologist did a DVIU, that was in March of 2019. Its been 15 months and it is back, I am...
Jasper, the urologist that I am seeing is supposedly a specialist in reconstructive in this area (urology), he has been practicing in this field for about 15 years. However, one of my concerns is...
Definitely feel the same as the doctor who has the stage 4 cancer. I also read that book "When Breath Becomes Air", it was depressing. In California, with the warm weather here, people feel less...
Has anybody had a stricture caused by Radiation Therapies (HDRBT and or IMRT)? If so, where is the location of the stricture and how did you handle the stricture? Thx, Akai...
Hi Jasper, just came back from my urologist's office, the cystoscopy shows that my stricture at the Boulbar is back, we saw white spongy material narrowing my urethra and he was unable to pass the...
Thanks Jasper, sounds like a pretty major surgery. I consulted one of my urologists, he said that because of my radiation treatments (HDBTY and IMRT) the wound will heal very slowly and he did not...
Hi Jasper, can you please share more info of your experience on urethroplasty, where you had it done, how long it took, how long did it take to heal, anything one should look our for, etc. I know...
Urethrotomy is not the only option, urethroplasty is an open surgery that usually offers a longer lasting solution but it is a surgery. My urologist, Dr. Leo Doumanian at USC performs such surgery....
I developed a complete blockage stricture at the bulbous in March of 2019 after HDRB and IMRT in 2018, not sure if it was caused by the treatments though. The urologist performed DVIU which was a bit...
Please go ahead with the cysto. My treatments were HDBRT and EBRT. One year after the treatments, Blood clots and blood in urine, difficult to start. Went to see a uro, he wanted to do a cysto but I...
Has anybody tried this? I wonder if it applies to Bio Recurrence as well? https://www.mirscientific.com/ Thanks, MP...
I did 18 months together with Zytiga after HDRBT and IMRT. I was undetected during the entire 18 months of ADT. However, three weeks ago, which was about a year after ADT ended, my PSA went up to...
While having HDBT in August 2017, the uro installed Space Oar in preparation for additional EBRT, however, not done properly and don't know if it ended up helping or not. Try to make sure the uro has...
My Blue Shield insurance also insisted on generic. While I was on their Gold PPO policy, my cost was $10/month with the subsidy from manufacturer. Now I am on Medicare, my RX policy is still with...
Congrats, you give all of us hope, thanks. MP...
Does that mean that patients with BC should wait for PSA to rise to a certain minimum level before having a scan? Is GA68 PSMA scan now available outside of clinical trial in the US? Thanks, MP...
Just a little update, met with my med oncologist today. He ordered another PSA test, 4 weeks from last test. He said that the fact that my PSA went from undetectable to 0.13 in 3 months is not a good...