Hi Mrs. BD, My dad started abiraterone on August 10, 2019. His SGPT/ALT: August 09, 2019: 32 September 06, 2019: 34 November 06, 2019: 140 November 21, 2019: 54 His SGOT was not measured in November...
Dear Ron, Sorry for your loss. Your dad fought the beast bravely for seven years to the best of his and the medical science's ability. He was surrounded by the love of his family till the very end....
Really sorry to hear about it. Your post got me thinking. We have been hearing about a lot of cancer diagnosis lately. I wonder if it is because of increased awareness and testing or is it also a...
Thanks a lot for your inputs everyone. They were insightful. I will post an update and will go with what the doctor suggests in my dad's case. I like the idea of getting it checked at the oncology...
My Dad's was to get his PSA checked in Mid-April but India being under lockdown the doctor advised us to delay the check till the lockdown opens up by May 03 as his last PSA of 0.001 was under...
Great News :)...
Congratulations :)...
Hi, I found some useful tips on this thread for my dad: https://healthunlocked.com/advanced-prostate-cancer/posts/140273333/sleep-helpful-hints-and-suggestions...
From a daughters point of view - Dad's PCA has changed me in many ways - earlier life for me was monday to friday evening was for meant for work, friday night and saturday was meant for my "me time"...
Well here in India things are different - we have lots of homeless people/beggars on the streets asking for alms, usually saying they are very hungry and have not eaten anything for a long time-...
Thanks a lot everyone. I feel this forum has been GODsent for me as it was the first place which helped me to digest the diagnosis and gave me hope and has since been my go to place to gain knowledge...
Hello Everyone, Just wanted to share a happy news. DAD is finally undetectable with latest PSA of 0.001 (down from 0.103 in November 2019). Going to visit the MO tomorrow for the future course of...
Thanks a lot for your responses. They have definitely given me a perspective on how to handle things from now on. He is fit and fine and capable of making his own decisions but is not really open to...
Well i have a question which may not have any right or wrong answer. But i am looking for an answer from a patients/parent/father's view point. So, i do understand ultimately it is the patient dx...
Thanks Mattam and gobucks... Gobucks you are right about the MO’s original advice being altered after I questioned if it would be enough... there is nothing preventing us for getting blood tested in...
Hello, So my dad's liver enzymes increased 3 months post taking zytiga - they were at ~1.5 times the normal limits. The MO advised him to lower the dose to 3 tablets (750 mg) along with 5 mg of...
Just an update. It maybe helpful for anyone who maybe facing such a situation in the future. We got our tourist visa granted yesterday- all of us got the standard one year visa with maximum stay up...
Wilderness, Thanks a lot for your wishes. It is surely a very important trip for the family and we need all the luck. We would not mind getting a bond reserved for medical expenses, they would have...
Fairwind, an medical test is mandated for anyone above 75 years old who applies for a tourist visa to Australia. If he was under 75 there would be no requirement for a medical and no hassle of...
Hello everyone, This maybe off topic but since i could not find much information online on first hand information i thought i will post here. So my parents and us have planned a trip to Australia to...
Hi All, Due to elevated liver enzymes on zytiga - the MO referred my dad to a gastro-ent. He did check the liver manually for inflamation and ordered a few tests - Hepatitis B and Anti HCV for...
Thanks a lot Gobucks, we visited our MO yesterday. He advised us to stop the Abiraterone for 2 weeks, and take udiliv 300 mg tablets twice a day (ursodeoxycholic acid) for the liver for 2 weeks and...
Thanks Union98 i checked for his medication - he does not take any statins or any other medications except for these and one for his marginally high BP. Will remind the MO about the BP medicine he...
Hi everyone, Wanted to post an update and ask your help for my dad's latest numbers. While the lower PSA has brought us some relief from the pre-test anxiety, the elevated liver enzymes has caused...
Thanks jcjames for updating the post. Six years undetectable is a benchmark a lot of us aspire to reach to. Here's to praying for many more undetectable's for you. Thanks for spreading hope and...
Thanks a lot for your replies. They have been very helpful - i will share a print out of this with him and advocate screening on a regular basis....
Hi everyone, We are going to break the news of my dad's Pca to my brother soon. He is 34 years old currently and an Australian Citizen living in Melbourne. Our maternal side has a history of Breast...
Your friend needs to change the Uro ASAP. In case of my dad, at the pre-diagnosis stage two of the Urologist we consulted did mention that they felt it is advanced and most probably in his bones...
Congratulations. 5 years is a milestone worth celebrating. Here's to many more undetectable's for you. I hope and pray that with the advancement of medicine the unusual becomes the new norm for...
Thanks a lot for your replies - Like you all suggested Prednisone seemed to be causing the bitter taste. He now gulps it down with a glass of water after his meal and it has seemed to help. Dan we...
Hello, My dad takes 4*250 mg of Zytiga (Abiraterone) tablets immediately on waking up in the morning, has tea and breakfast after an hour and one 5 mg of prednisone with his afternoon lunch. He also...
Thanks Pratoman. The MO said the high sugar was caused by the prednisone and asked him to henceforth take 5 mg once a day instead of 5mg twice a day. We have also asked him to cut down on sugar - he...
Hi everyone, Just wanted to post an update on my dad: 1 month since starting Abiraterone acetate (Zytiga generic) and 10 mg prednisone PSA went down from 4.46 on August 03 to 0.837 on September 06...
Thanks a lot for your input JNF. I will discuss this during the next meeting with the MO. Sr. Sailor yes, my dad is still hormone sensitive and i hope and pray that he will have a good run on...
This definitely happens. I would say my parents would be one of these people who many a times don't understand what the doctor recommends - rather i would say they do understand it and take it at the...
Great News :) Here's to many more undetectable's for you....
Hello everyone, I read a post on another forum which talks about APCEDEN vaccine for distant mets and another treatment option - AC225/Lu- 177. APCEDEN i understand is immunotherapy like Provenge. I...
Hi Mattam, I did re-clarify from the MO, he said there is some research which says Abiraterone can be taken with some light snacks but it needs more evidence, so currently it needs to be taken on an...
Every morning - boiled tea prepared with Tulsi leaves (10-12), mint leaves (5-10), curry leaves/sweet neem (10), 1 inch freshly grated ginger, some cinnamon powder, 2 tablespoon turmeric powder. Add...
Great news :). Naples, i was just reading up on your journey and i found a post in 2016 which said your uro was not positive but MO was much more optimistic. The same is the case with my dad. After...
Mattam, Thanks a lot. I would say i am lucky to have him and would love to do everything for him to a happy and comfortable life. Touch-wood, the side effects continue to remain minimum for you. We...
Blackjack, I hope the PSA Drop continues for a really long time. Thanks for your book recommendation. I will surely look into it, but sometime later - the diagnosis is still sinking in - currently I...
Thanks a lot mattam, wings of eagles and randyd . I took your advice and am glad that we went to the MO. He echoed your voice and asked us to switch to Abiraterone along with a corticosteroid. Said...
Thanks a lot Cyclone. An update: We visited the urologist today, he was indeed happy with the PSA results. He discussed with the assistant doc whether they should refer us to the radiation onco now...
That's awesome. Congratulations :)...
Thanks a lot for your replies. It made me feel better. The PSA test awaiting for the result and later awaiting to meet the doctor is such an anxiety invoking process - and I know this is just the...
Great news on your birthday. :) here’s wishing you lots more non detectable readings. Happy Birthday :)...
Hi everyone, we got the 3 weeks post orchiectomy and Casodex PSA Results today - the PSA has dropped to 4.46 ng/ml and the free PSA is 0.55 ng/ml from the initial PSA of 114 ng/ml. We have an...
Thanks a lot mattam for your reply. Will update the post once we get the results....
Thanks a lot for your words of encouragement and support. It means a lot to me. It has given me a lot of hope, which is what i needed currently. Have to get his PSA done in two days time- keeping my...