Good luck! You're going to do great!...
My brother told me yesterday his PSA went up to 8 on his recent check up. He has not had cancer and most recently had a UTI and multiple peeing at night and a lot of frequency. It sounds like...
It sounds like you're definitely experiencing cystitis bleeding. If you look at one of my posts that you got in late on, I came back and answered some of your questions. So many reminders of what I...
@SteveO I'm not sure if this is the same thing you're talking about, but since Lupron and Zytiga, I've had weakness in my legs, pain at times. I have a hard time getting up from the ground or floor...
@theswan I have had a lot of blood since 2019. We got it stopped after two bladder fulgurations and about 25 - 30 hyperbaric oxygen treatments. I didn't have any bleeding until the stricture...
I've lost almost all of my leg, arm, chest, and some pubic hair too. I haven't had to use a deodorant at all....
@akai I have two. First one is 3 cm long and is near the tip. The 2nd one is right where the prostate used to be. I'm not sure how big it is but whenever anybody inserted a catheter (before the...
@akai Actually, my experience with the Optilume was good. It definitely got the stricture open. I'm just having some kind of trouble with my bladder either2 from the radiation damage or signaling....
I'm wondering if any of you have had a similar experience. I had salvage radiation in 2010. In 2019 I started having bleeding so bad in my urine that a golf ball size clot kept me from being able to...
Thank you all for your encouragement!...
I posted here a little over a month ago about the news after my PSMA scan. It didn't look good. My doctor in Austin gave me the "stats" of 2 years if I continue as is, 3-4 if do blah, blah, 4-5 if I...
I'm so sorry Stephanie. Thank God for angels like you and family to take such good care of Jeff. I have an angel that will be there for me. I hate that she will have to do this, but someday my turn...
I keep a little portable fan by me. I have a larger 6 speed on on my desk and a 3 speed that I take on the go. They are both rechargeable by USB cable to a computer or wall adapter....
Thank you all. Such good and encouraging information. @F8 - Yes, I'm an electrical contractor....
Thank you Sr. Sailor. I'll check that out....
Nobody has had fast rise like this?...
Thank you all for the amazing support. So many good things that you've brought up. It's so good to read about similar journeys of people who have beaten the odds. Octorobo - Yes, I'm going to MDA in...
Thanks Go Bucks. I feel the same way. It's just such a shock when you hear someone say it after dealing with this for 17 years with relatively low PSA for most of that time. I've looked all over my...
Thank you Mattam. It may not have sounded like it from my writing, but I am staying positive and looking at all options. I was told that the Casodex was for 4-6 weeks for tumor flare from the Lupron....
Steve, Thank you for sharing all your posts. I'm checking with my Dr. at MD Anderson next week on this treatment option. did your insurance cover it?...
I'm curious. My PSA had stayed on a slow rise for 10 years. The highest (other than original diagnosis) being .93 in August of 2021. All that time I was on Finasteride. My doctor took me off it...
I have to come clean here. I don't get on the forums very much. I've only posted a little over 40 times. Part of it is busyness. I'm just too damn busy all the time with my business. The other part...
I didn't do O2 during radiation. But about 9 years after radiation I was bleeding from radiation cystitis in the bladder. I did several sessions of hyperbaric oxygen therapy. I'm a believer. I've...
@garyi How right you were. The PSMA found several hotspots. He grossly misrepresented what it could do along with the future Lu177 treatments. I'm now on Lupron and Casodex and about to have to add...
I went there for a second opinion with Dr. Corn. At the time he agreed with my Urologist that he didn't think I needed to do any further treatment yet. I am now stage 4, started Lupron, Casodex. My...
He may find it, he may target it, he may hit it, and while HE may be successful, YOU, I'm sorry to say, will never be completely "done with this".[/quote] That's totally true. Bad choice of words on...
You've had quite a journey there. Best wishes on your treatment. Man, I love how you do your stats, I've wanted some kind of graph software to chart my PSA. Did you make those spreadsheets or get...
I hate to write this, but your physician seems to be an optimist; I hope he is right.[/quote] He is what I would call optimistic, but also realistic. But, I think the reason he believes that is more...
Thank you. My doctor believes he can find that little bugger and destroy it with surgery or radiation and be done with this....
My urologist has scheduled me for a PET/CT PSMA scan on May 3rd. I was just wondering if any of you have had this done? Also, I thought I updated my signature, but it didn't work. My current PSA as...
I hear you. I have a bag with me at all times to keep pads, wipes, depends, underwear, and clothes. The clamp didn't work for me. So, you had one. Did you have problems like infection, etc?...
I have few questions for any of you that have had the artificial sphincter put in. Do you have any leaking afterwards, I mean long term, not right after surgery? Are you able to do things like play...
First, congratulations Sonny. I did 25 sessions of HBOT. I have not bled in over 9 months. I had this situation with my glasses. They told me it would probably affect my vision and told me not to go...
My bleeding started about 8 years after salvage radiation. I went to my uro, he did a scope and showed me what looked like little volcano looking spots on my bladder. He said that sometimes during...
Randy Joe, I replied to your post about Hyperbaric Oxygen therapy. My doctor told me that my bladder was the worst he had ever seen in 15 years of practice due to radiation cystitis. I had been...
Forgot to Include signature. Let's see if it's there now...
I did the Hyperbaric Oxygen therapy last year. I had been having a terrible time with bleeding, had two bladder surgeries to cauterize and remove one golf ball size clot. I also had 14 catheter...
Thank you for posting Rocky. You are a warrior and are inspiring to us all. Peace be with you brother....
My signature hasn't been showing up on posts. I'm doing a test post to see if it does now. If not, can someone tell me how I activate it. It shows up in my profile....
Same here. I was just under the .2 last time, and it was showing a slow rise over the last year, so I'll more than likely be starting the Lupron too. I'm not looking forward to the side effects,...
I think I may have misunderstood my urologist too. He must have meant that if my PSA rose again on my next check up, that would be 3 in a row....
Thanks to both of you. Yes, that last number should be .19....
I edited my signature right before I made this post. I checked my profile to see why it isn't showing. It said it may take a few moments to show up. Here it is again, hopefully....
I started trying to find my answer in previous posts but I got a little overwhelmed. My business just has me tied in knots right now. I thought I had seen where there were other ways to test your...
Congratulations Mike!...
Thanks Jaybee! Your post was very encouraging and I'm going to make sure he sees it....
I love that song. Words written by Morey Amsterdam aka - Buddy Sorrell on Dick Van Dyke....
logoslidat - I should have clarified. Since he chose not to do any kind of medical treatment such as chemotherapy, he basically was sent home to die sometime within 6 months. "I won't go into that...
This post is not about me. It's about my father-in-law. He was diagnosed with stage 4, prostate cancer, metastasized into bones. Diagnosed in Austin. Went to MD Anderson. Told the same thing and sent...
Devasted - I understand how you feel, but maybe there are other ways to feel better than to possibly fuel the fire and cut your time even shorter. You're going to start feeling better after you've...